PG I am so sorry to hear that your brother is having so many health issues right now. My thoughts and prayers go out to you and your brother. Lucy...
Hi All So glad I am not alone with the fatigue, although I am so sorry that anyone has to go through this. I do have a call in to the doctor about the dizziness and "the tireds". Hope everyone is...
Its been a while since I have written and just wanted to give everyone an update. I have been trying to catch up with posts and seems there are several new members. They discovered I have progressed...
Cindy I am so sorry to hear about the loss of your boyfriend. I know losses of those we love can take time to come to terms with. My thoughts and prayers go out to you. Lucy...
Hi Honeydew Just wanted to add my welcome to the forum. Itching seems to be a normal part of liver disease but there are things people hear have tried that seem to make it more tolerable. As Connie...
Welcome back Karen. Sorry to hear that you have been so ill. Glad you are back home and things are going better. It is hard not to over do when you are feeling well. Things get so piled up when the...
Hi Areeland So glad that you found us and know that you are not alone. I am so sorry that you are having to face this without your normal support system. This disease can feel so isolating without...
Ami I too have AIH but have not had a transplant at this point. I hope that you will get a new liver soon. I certainly know what a roller coaster ride you have been on for these last 12 years. I hope...
John So glad to hear from you and that things are starting to get better. We all have missed you. Hopefully we will here from you again soon. Will keep you in my thoughts and prayers. Lucy...
June I am so thankful that you did not recieve more injuries than you described. What a frightening experience. Please keep us updated on how you are doing. I hope the neck pain does not get worse....
slyblondie Welcome to the forum. You will find wonderful advice here and lots of caring people that are tremendously supportive. Good luck on this journey. Lucy...
AmeeP, vana44, and beachygirl Just wanted to welcome you all the forum, and to express my regrets that you and your families are having to deal the this horrid disease. My thoughts and prayers go...
Bea I am very sorry to hear about your father. I do not have experience with liver cancer however with any lengthy any help/aide that can be provided to your mom would be helpful. My thoughts and...
Jerry I think it took about a month for my levels to go down some but it was longer for it to be able to get it under control. Urso was the first medication they put me on and that was over four...
Polly I am so sorry to hear of your loss. My thougths and prayers go out to you and your family. May you all find the strength to get through this difficult time. Lucy...
Jerry I too have AIH and am on pred and urso along with others for this disease. I know that my levels have fluxuated many times during the course of this disease and have stablized without an...
Mer I agree vent all you want. Working with multiple doctors can be so frustrating especially when they don't seem to hear you. Remember you know your husband better than anyone and have first hand...
Sue I am so sorry to hear of your loss. Losing those that we care abuot can be so devasting. I too hope that you have a strong support system to help you in this time. May prayers continue to go out...
Sagewoman Just wanted to add my welcome to the forum. I don't have any information regarding LND, but I wish you luck it it working to help stablilize your levels and eleviating the problems that can...
Penny What a wonderful post. It is so hard to see things when you are living it every day so thank you for this info. Lucy...
Margaret Just wanted to add my welcome to the forum. I really don't know anything about the TIPS procedure but I do know that there are several people here that loved ones and themselves have had it...
Hi Jerry I take urso along with prednisone and imuran. Urso was the first medication I was on and it did bring my alkaline phosphate level down but not my ALT or AST's. I had no side effects from the...
Judith I can only imagine what a scare that was for you and your husband. I too get food caught frequently and sometimes even water when i take too big a drink (warn him about that one). Glad things...
achord Wanted to add my welcom to the forum. I know that some medications can affect the liver and enzymes, but Connie is right that he should really try to pin down his doctor about what it all...
Pasey 1 I too have a hard time with healing, although I thought it was from the pred I take maybe it is a liver thing. If I get a scratch it seems to bleed forever and looks like I have been really...
toolost Although I do not have hep C, I do have AIH and cirrhosis and I too have to have an imaging scan (ultra sound, cat-scan, ro mri) done every six months due to the increased risk of liver...
prayers Just wanted to add my welcome to Healingwell. I too was diagnosised with cirrhosis in January 2008 and the diagnosis itself was so frightening. It is certainly possible that his reluctance to...
Susan I am saddened to hear about the progression of the disease with your mom. Hospice is a wonderful organization and I hope that they will be of help to not only your mom but for you also. This is...
Penny I am thrilled that Harvey is doing so well. Reading your post brought tears to my eyes this morning. I celebrated my 25th aniversary last June and can only hope that you and Harvey get to...
JJscherer I too am so sorry at the loss of your sister. It is so difficult to watch someone you love pass on and I am sure it was even more difficult since it was so unexpected for you. I hope you...
Christina and Judy Just wanted to add my welcome to the forum. I agree that your husband should be on some type of sodium restricted diet unless during blood work they have found his sodium to be too...
Kat Wanted to add my welcome to the forum. Connie is right that knowledge is power when dealing with medical professionals. Please learn all you can to arm yourself with questions for your doctors. I...
Hi Dakota and welcome. I too was diagnosised with AIH a little over three years ago. I certainly can understand your shock at finding out that this disease is very hard to control and the possibility...
Penny I am so thrilled for you both that things are going so well. I hope his appointment goes well and all his lab results come back in a good range. I know you are both thrilled to be home and on...
Itsme I have never been completely weaned from pred, but when I went from 10mgs daily to 5 mgs it played havoc with my body and mind. Achy and sick feeling but the worst for me was the mood swings....
Penny So glad that Harvey is doing better and they are looking at moving him to the rehab floor. What a miracle. May you both be blessed with this second chance. I am sorry to hear though that there...
Penny I am so sorry that your family is having to deal with another medical problem. My heart goes out to you and your family and will keep all of you in my thoughts and prayers. Lucy...
Risperadol is a antipsycholtic drug that is used primarily with people suffering from hallucinations and delusions such as schizophrenia, ptsd, bi-polar disorders etc. However it is also used in some...
Helen I am so sorry to hear that Jerry has passed. Please know that my thoughts and prayers are with you, Lucy...
Hi blue-rosebud and Welcome to the forum. I also have AIH and take prednisone and imuran along with urso and several diuretics. I have not taken cell cept although what I have read about it that it...
Hi Anndalena Just wanted to add my welcome to the forum. I am so sorry that your family is having to deal with this disease. I too have cirrhosis and the fatigue can be very difficult to deal with....
Mo Wanted to add my wlecome to the forum. I am so sorry that you and your family are having to deal with this difficult disease. This is a wonderful place to express your feelings and not feel so...
Penny I am thrilled that things are going so well for Harvey. I can only imagine how exhausted you are at this point. Please remember to take care of yourself as he is going to need your care when he...
Penny I am so excited for both you and your husband. My prayers go with you for a successful surgery. Lucy...
Sad Daughter Just wanted to add my welcome to the forum. Connie is right that you or someone in your family needs medical power of attorney to be able to advocate for your mother. There could be many...
John It is wonderful hearing from you. So sorry to hear that the chemo is making the esld symptoms more severe. Connie has given you some great suggestions with keeping your immune system up. Please...
Helen You and Jerry and both in my thoughts and prayers. May you have the strength to endure this horrible time. Lucy...
What wonderful news. My continued thoughts and prayers for a healthy liver. Lucy...
La Bunna So glad to hear from you and thanks for your update. It gives me hope that maybe one day my life will be back to "normal". I am not sure I even know what that means anymore. I am so happy...
Butterfly So glad that things went well for your hubby. My continued thoughts and prayers go with you and your family. Mer Prayers go to your and your hubby too for a successful surgery. Lucy...