I can totally relate to this post. The first signs of my liver condition was sever, mind boggling, literally drive-you-crazy, itching! I tried the powder - didn't work (they have it in pill form too...
I've been hearing a lot about the product "Juice Plus" lately - anyone else hear of it or use it?? Sounds very interesting and the science behind it seems pretty solid....
Marco - yes and no to the itching. Initially it's what got me into the doctor (I was CRAZY with itch while I was pregnant, they thought it was a rare liver condition associated with pregnancy and it...
Connie - are you happy with Dr. Harnois? I'm so-so about Pungpapong. I struggle to get information out of him and unless I ask a direct question I get no information about disease or prognosis....
Yes, I'm in the transplant program but no where near being a transplant candidate yet (I hope!). What are you being treated for?...
Hi all - I haven't been on in about 6 months but wanted to give a quick update on my PBC, hopefully it will give others hope. Quick update: I'm 37, female, diagnosed with PBC a year ago (but had it...
Hi there! I haven't been on the site in a long time...I also have PBC (diagnosed last year @ 36yrs old). What a frustrating problem to have for a guy - but I would love to have that side affect as a...
Hi there! I've been off the forum for a while but am catching up today. I am a 37 female also with PBC, I'm being treated by the Mayo Clinic in Jacksonville, Florida in the U.S. For many months they...
I've read about Dr. Palmer's book on liver disease and hepatitis, but I was wondering if anyone can recommend any other books they've read about cirrhosis and/or hepatitis. I'm particularly...
Hi everyone – I’m looking for some advice on how to handle talking to my family members about[b] my diagnosis. I have autoimmune cirrhosis (PBC/primary billiary cirhossis) and autoimmune hepatitis....
BrokenMommy - I just looked at your website for Gabby and have been crying since. I'm so sorry for your loss and sooooo happy for your gorgeous baby girl! What a blessing to have her. I have AIH...
I’ve been doing a lot of research today, I’ve spent hours on the computer which is probably both a good and bad thing. I’ve found the best resource for information is other patients and those who...
Thanks for writing back pjay - reading your post was like you were reading my mind! I also have fatigue and poor stamina, I never linked the decision making thing to this but I also have noticed that...
good suggestion hep93, I will do that. Plus my sister in law is a nutritionist with her masters - I should probably talk to her ;)...
pjay - thanks for writing. You are the only other person I've heard of with PBC. I've been dealing with this (diagnosed with) since October/November, so we're still finding the right combo of...
Pix - I just re-read your post. Should I expect some "gross" stuff to come along with this already oh-so-fun disease? I haven't had anything gross yet, but as I said, this acne is doing a number on...
Thanks pix & hep93. I appreciate the response. Both of my conditions are auto-immune related, which I'm beginning to believe is the hot-new medical term for "we have no idea why you have this but...
Hi everyone - I'm new to this site, just stumbled upon it searching for information online. I've been recently diagnosed with Primary Billiary Cirrhosis and auto immune related hepatitis. My...