I was going on a long bus trip, and discovered, in a big planning group meeting, that there were not going to be any bathrooms on the bus. They said that there would be "stops". Sure... I didn't want...
Dear Family Rock I got AIH when I was 56, and I also had high enzymes. It takes a long time to recover from a flair (months), but I can tell you that I am doing well. I am a personal trainer and I...
Ha! Ha! I was on prednisone for autoimmune hepatitis, (I also have Crohn's) and I was developing the large frontal stomach. I didn't fit right in pants, as my rear remained relatively small. I went...
Hi! I have Crohn's in the colon only as well. I haven't needed surgery, but my understanding is that the disease can go anywhere in the GI tract from the tippy top to the final end. If the colon is...
Nanners, I haven't been on the forum in a while (health is good, just busy), and I just read about your family situation. I want to add my support to the others. Please take care of yourself, because...
Cayer! I do Tang Soo Do and Jiujitsu. I don't train as hard as you do, but I am a first degree black belt and an instructor. Nothing "beats" a good fight, and unless you have tried it, people do...
I never had the soft voice, but I must tell you that the fatigue is unlike normal tiredness. I am normally a peppy, restless, squirmy sort of person, and when the hepatitis first hit, I was too tired...
I'm a semi-retired psychiatrist, a professor and a personal fitness trainer....
One time I saw a woman leave the stall. I went right in, and it was wet. I almost went back out and confronted her. Luckily, I controlled myself. But, GRRRRRRRR.!...
Sniper and Randy, you guys are the greatest! I love how you laugh at all the embarrassing stuff that goes with crohns, a decidedly impolite illness!!! What I don't understand , and maybe some ladies...
Hi! I just want to add my two cents. It is important, I think, to not decide that surgery is "bad" and meds are "good", or meds are "bad" and diet is "good", or excercise is "good" and giving in to...
Hi! I have AIH, too. I couldn't tolerate immuran at all--I was severely fatigued, and I was too nauseated to eat enough. Plus, my enzymes started going up, even with 40 mg prednisone. I did, however,...
Connie, my thoughts, prayers, hugs, and every molecule of my poor diseased liver will be hoping you have a good surgery. You help us all so much, so maybe you can get a little support from us. pix...
Elexis, as far as I understand, the Crohn's doesn't directly cause other autoimmune diseases, but instead there is a genetic vulnerability for autoimmune diseases in general. so, yes, I can get them...
I find myself getting anxious about getting cancer--I have crohns and also autoimmune hepatitis, so I am on strong immunosuppressants!! Which increase the cancer risk. I need YEARLY...
I do understand how just when you think you're ok, something else pops up! I have Crohn's, then when that was stable, I got auto-immune hepatitis, and then when that was under control I had a...
Hi! I have Crohn's and autoimmune hepatitis. I take asacol (pentasa) for the Crohn's, but I need entocort for the hepatitis. I took prednisone 40mg daily for one year and had all the side effects (it...
Amber, don't be scared of a liver biopsy. It is not even as bad as getting stiches. They use ultrasound (like an xray with sound) to see just where to get the biopsy, then they put a shot of numbing...
Hi Ferret and Dany Yup, it's me on Yahoo! I have had a liver biopsy--it was the first thing the hepatologist did---I guess the little sarcasm (Was it fun??) didn't come through in the post I did know...
Hi, Ferret! I have had AIH since 2007. My enzymes went in the 1600's and I developed jaundice. I took prednisone 40mg daily for about a year, and had good results, but they gave me imuran, which made...
Hey, isergodur---we here on the forums think its ok if you are difficult. We're all difficult. Our illnesses are DIFFICULT, and if they are hard to diagnose, that is frustrating for the doctors, but...
Hi, Flutterbies I have had Crohn's for several years now, and even those with severe disease have good times as well as bad times. Getting proper treatment is key, and since you (finally) have a...
I have a friend who would say I "created" my Crohn's because of dysfunctional thoughts... Or maybe eating gluten. Pix...
Hey, I'm still reading it. It is very interesting, and I like multdimensional problems. I would like them more if they didn't involve me...;-( Pix...
June, what did the Mayo doctors say? For sure, stress (physical or mental) can make it worse, but I don't know if that is why you are worse. Is there any health professional you can ask? I wouldn't...
I have autoimmune hepatiis and crohn's. I went on a wonderful cross country car trip with my son to colorado. basically across the usa. He understands me and knows my situation. Things were generally...
Hi Jstar, The decisions are agonizing, and there is no "right" way. I had similar conflicts around my mother's care and my father's care-- It is just so hard to know what to do. Maybe it will help to...
June, another thing could be an infection somewhere, even as minor as a virus sometimes. You should ask your doctor!!! Any new medications? Pix...
Hi, guys! I usually go with autoimmune, and it fits in well with my autoimmune hepatitis, highgrade colon dysplasia and sarcoidosis. (It is fun to give a history to a new doctor...they sometimes run...
puleeze don't make a link between shoehorns and Crohn's...........
Dear Pink Grandma Thank you so much for what you said to me in your post. I do have financial things in place (power of atty, advance medical directives) and stuff like that. My main person will most...
Thanks, Penny. Of course I have family and friends, but I don't know how I would ever figure out how to ask for so much help, especially when I wouldn't know what I need, since I would be so sick. I...
Dear Pjay I agree with you wholeheartedly. I myself am basically a vegetarian, and I eat properly most of the time. I am a big exercise fanatic and I am a personal trainer, too. I know from my own...
Nutrition is a difficult area. On one hand, it seems logical that eating healthy foods lead to having a healthy body. There is a consensus now that fruits, vegetables, grains and plant fats are good,...
Dear psc wife, Thanks for responding to my post!!! I don't have any side effects (yet), but I've only been on it for a few days. I might have a transplant in my future, too, and I would like to ask...
Thanks, Hep93. It was a good link. Pix...
Thats reassuring! Have you ever had prednisone? Does the enterocort help your crohns?...
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I have been started on enterocort for my hepatitis, and I know it is useful in Crohn's, too. (which I also have....) I know it is a steroid that is supposed to have "minimal" side effects compared to...
Dear "Mom" No, not really, nothing gross. I guess what I meant was that there was no question that you couldn't ask. I was on prednisone 40 mgm each day for about a year, and I got acne, too. Plus...
about the bathroom problem,--Sometimes I find it is helpful to make a statement or command rather than ask a question. Instead of "Can I use your restroom?" say "Please show me the restroom." If they...
Dear "mom" I have autoimmune hepatitis, too. I have had treatment for two years so far. Thinks move slowly, the liver has to heal, so be patient. Ask us any "little" question, even if it's "gross",...
While we are complaining about not being understood, I would like to add my two cents, plus a memory from my past. 1- What I hate are the positive thinking people who assert that if you just try hard...
It's the first thing I think about when I go anywhere. Once I got on a small plane that didn't have one. I had to go when I got on the plane==I didn't want to miss the boarding while I was in the...
Hi! There has been alot of discussion about what "normal" is. Everybody of course has their own illness pattern. I think that "normal" is what you are used to, can cope with, and allow you to run...
Hi! I went out on a first date with a man who "confessed" to having Crohn's disease, expecting me to become grossed out. When I said "I have it too!" we spent the rest of the evening talking openly...
Hi, I have AIH, too. The course is unpredictable, so you really have to take one day at a time. You may be able to have a child, or not, but the most important thing is that you do the most you can...
Dear Dakota! Are you getting the answers you seek by following the references in the posts? How are you feeling? How have the doctors been treating you? Pix...
Hi, Dakota I also have AIH, for the past two years or so. I was on prednisone 40 mg for a whole year, and I'm on other meds now (cellcept). I have "early" cirrhosis, which was found on the liver...
I like insidious. It does creep up, so that the definition of "normal" becomes more and more impaired. Over the years, bowel movements become gradually more frequent, more urgent and with more mucous...