Well Just got home from meeting with the doctor. They have officially removed her from the list here in Houston. As of last Friday, actually. Her doctor doesn't want to give up so he will start...
They increased her Kristalose (form of lactulose) to 6x a day. She wears the diapers at times but her skin is in such bad shape that it rips it or burns it. She is allergic to adhesives generally and...
Hi "gang" Thought I'd update on Mom's continued decline in health since it's been a while and we aren't in a better place. Since my last update she has been on the lovenox inj 2x a day and her...
We had a milestone yesterday as Mom was able to go home! However, they expect her back next Tuesday for a draining and overnight observation. We'll take however many days at "home" we can get at this...
I'm sorry you're having to go through all of this with your Mom. It is so hard to watch our Mother's be in bad situations like this. I'm going through similar scenario myslef. My suggesstion is about...
I know I've dribbled bits and pieces in others threads about my mom but I thought I'd post up. Today is day 20 our of 23 that she has been in the hospital. Since day 1 she has been drained every 3rd...
Thanks JoAnn :) It really is something they need to change but I think that is a general consensus amongst us with loved ones on the waiting list. This is our second attempt at being on the list in...
HI JoAnn We are battling that as well with my mom and her MELD is a 13 so I feel your frustration. Our biggest complication right now is this autoimmune disease she has developed with her blood and...
Just wanted to pop in here and say that My mom has had AIH for 18 years now. She has spent most of 2009 in the hospital and sits in Surgical ICU as I type. She has developed a blood disorder and they...
Oh, I forgot, last week the hepatologist mentioned that if the shunt didn't work after this last revision...which it isn't then there were 3 options. 1. Surgical shunt from the stomach to large...
Thought I would update: Been 7 days now in the hospital and she is very weak and tired. They drained her again today and got 3.5 liters. We have a new issue, Antiphospholipid Syndrome, which explains...
Hi Debbie and I would have to agree with you. I felt the same way when I found Healing Well. I don't have any answers for you but I can sympathize with you, to an extent, of the pain and sadness you...
Wish you the best, Pix. My mom has taken prednisone for 18 years and it really has taken it's toll. I've never heard of this other option. I'm going to read up on it. My mom also has AIH....
I'll be headed back up there today. They put her in ICU overnight. Seems as though the fluid on her lungs has gone higher than it ever has before comparing to past x-rays. It's up to her coller bone....
Well after an all day visit with her at the hospital today, and speaking to doctor "A" out of the group of 3, I do feel better about the fact that they simply do not know what is wrong. The short of...
Penny Thank you for that information. You're right...they don't discuss any of that on the internet that I've come across. Just that recurrence was minimal of the PE and that they were having...
They did admit her and pulled 3 liters from her. She is small...5'2" 170. That is small for her. Most of her weight is in her mid region. The rest is just skin. I emailed her doctor last night and we...
I've done all the research on it and it is FDA approved for this purpose. My sister is back in the ER with her tonight. She spent the weekend with me and got worse as the day progressed today. They...
Research. Her doctor doesn't like to give any kind of solutions to problems. Just sugar coat things and say..."I can't wait til you get a new liver!" I've read that there has been some decent success...
Has anyone had any luck with Talc powder for pleural effusions? My mom is at the point of being drained every 4 days, even AFTER having the TIPS procedure 2 times. She is only getting 1 1/2 days of...
Brief: My Mom had the failed TIPS procedure only to find out it, along with the portal and hepatic veins, were 100% blocked with blood clots. They cleared those and added 3 more shunts. Mom spent a...
Sue So sorry to hear about your loss. Like Connie said, atleast his last thoughts were that he made it. I'm new to the board but felt like expressing my condolences Thoughts and Prayers with you and...
Thanks! I'll read up on it so i can tell her about it. Her platelettes were low yesterday so they couldn't tap her lungs again until after she received more. Her numbers are still the same after the...
Good Morning all I thought I would give an update since it has been now 1 week since we went in for the eval of the TIPS. My Mom lives alone but only 7 miles away from my sister. I call and check on...
Thanks hep93 and Lucy Today we went back for a scope to determine what had happened and the doctor saw that her portal, hepatic, and the shunt were 100% blocked with blood clots. She heard him say,...
My Mom had the TIPS in January 09 and within the first 24 hrs they were having to drain her again. She has scarring on her lungs from the numerous times of them draining her that they can't get to...
Hi, I'm new and wanted to share. I'm sorry that you are so young and being diagnosed with AIH. I think my friend had this and it was just left untreated which took her life at age 22. The doctors...