OMG Joann... Enough is enough! You must be absolutely beside yourself by now. And poor Jerry. Yes, I am sure he is SICK SICK SICK of hospitals and ERs. I am glad he is back at Vandy today. With these...
Just wanted to stop by and say, along with all our other friends, "Congrats to Jerry & God Bless him" I've been in contact with Joann privately, so I knew that Jerry had received his miracle. Hang on...
Hi everyone! I am looking at the calendar and realizing that it's been over 10 months since hubby's transplant. HOW MUCH MY LIFE HAS CHANGED. I am now living a normal, boring, undramatic life....
I haven't heard from Joann in a while and I am worrying. Has anyone of you heard from her?...
Good luck, Bearhug! I'll be watching your posts. We've 'been there & done that'. Prayers that you "CLEAR"!...
Helen There aren't words to ease your burden. There is only faith in God and God's will. I will pray that God gives you the strength you need and the faith you need to hang on thru this sad and...
As stated before; God Bless You All ! You will get there. It just takes an unbelievable amount of sickness and suffering....
Thank you both, Judith and Lucy It has been weird................
Steriods were very short term.... but horrible. I couldn't live here if he were on them long term. They alter a person's personality to the WORST!...
You are 'almost there'. Just hang on as tight as you can.... it's true about "it is always darkest before the dawn". He'll be as sick as you can be until they give him a liver. BUT THEY WILL GIVE HIM...
HI to all, Well, I guess you all realize that once the transplant takes place... the lifestyle changes. If you didn't ~ I am here to tell you that it DOES. Things ~ after several months ~ actually...
Mer, I agree with JoAnn. Sounds like fluid in the lining of his lungs. My hubby had that same problem 2 or 3 times. The removal of the lung fluid is horrible. This was all a part of the acites. There...
Joann I will email you again and then you can email me....
Even if you have to say 'he is sleeping all the time'.... falling asleep in the car on the way to the dr. office.... complain about symptoms!!! I told them all the awful truths of his encephalopay......
Just a piece of advice that I had heard from a wife whose husband was transplanted in 1998. I used it often and I am convinced that it helped. ALWAYS hammer the doctors with your spouse's symptoms. I...
**********shiver ******* Love to all of you and I still pray every day for all of YOUR prayers to be answered. ...
XXXXX-ing fingers!...
Connie! You've just won a 'bingo!' on theory #2! This is what I've thought for a while now; All that constant attention has now changed to occasional attention. PLUS - he really, really likes to be...
Hubby is doing just fine! (Altho we have much much grumbling and shortness of temper with him.) It's odd... the better he feels, the more annoyed he is. [color=#800080> [color=#800080>Much] A chance...
really doing it! Who cares what the neighors think? ...
Seriously. open invitation. ...
Vacation? My dad was a decorated WWII hero and his will states that he is to be buried at Arlington National Cemetery. and you know what? I am LOOKING FORWARD TO THE...
/community/emoticons/wink.gif ...
Even though I don't feel particularly 'admirable' today. Today I am not the nicest or patient person....
"Hubby, did you eat?" "Hubby, are you drinking fluids?" "Hubby, have you had a bowel movement?", "Hubby, do I need to go to the pharmacy for you?" Hubby, do you need something from the store?" .....
Oops! Excuse my "happy fingers" Hubby had been on the Liver transplant list since 2/08. Transplant was 8/12/08. Sorry...
He was so ill at the end that he was close to dying. [color=#800080> [color=#800080> [color=#800080>
Hi to all and thanks for asking! Hubby is doing pretty darned well! His staples were removed... the incision scar ******shiver****** is looking kind of 'healed'. But, dang, it is HUGE. He has...
Hi to all, Just a quick 'check in', as I have gone back to work full time and I have a LOT of catching up to do.... Hubbie is still in great pain (transplant was 8/12 and he has been home since 8/22)...
heating pad HELPS!!!! Thank you!...
...
Yea!!!!...
I do know that pain and drugs are really goofing up his head and his attitude. I won't forget that. ...
Joelene I just FLEW to the drugstore after I read your post. GOT THE HEATING PAD. And he is using it right now. Thank u. Thank u. Thank u ! I would have been afraid to try one , if I hadn't heard...
The surgeon explained to us that the liver actually connects to something on the right side of the body (I believe she said 'the diaphram'???) and it has to be cut off of this. That right there is...
He hurts very very badly. His right side is just throbbing pain. Even the pain meds don't dull it. He isn't sleeping and has no appetite. [color=#800080> attitude. His is rotten. He is crabby,...
I believe we ALL felt that way - ALONE - until we found this place. Now, I believe none of us feels alone. Even at 3:00 in the morning there is someone there to cry with or laugh with or worry...
HOPE HOPE HOPE HOPE HOPE and Lots ans Lots of [b]LOVE LOVE LOVE and above all, [color=#800080> [color=#800080>
PG You are a sweetie!...
NO MORE LACTULOSE!!!!!!!!!!!!!!!!!! HOORAY!!!!!!!!! Saw the transplant doctor today for his first checkup visit. She said he is doing great and all the staples will be coming out next week. She also...
JoAnn We got the call from the "Transplant Co-ordinator". I wanted to talk to a real doctor and a real nurse. (Well, maybe she was a real nurse, but I had it in my mind that she was just an...
JoAnn 1. We phoned a doctor we know and we phoned a RN we know. We needed to know - immediately - if a liver is damaged by a cocaine overdose. We found out that it is NOT. 2. The donor was a young...
Judith Hubbie is 58...
Here is HOPE to share with all of you out there. (I don't think I ever mentioned this in my previous posts.... but if I did, forgive my duplication.) If that's the case here's DOUBLE HOPE for all of...
john What is going on? I worry....
Hi to all! I've been running myself ragged by driving back and forth to the hospital, answering and making calls to friends and relatives, taking care of the dogs and the house and getting myself fed...
BFF had to leave today. Wah. Hubbie is experianceing 'rejection' problems. Drs tell us not to worry, they can handle it with meds. I worry. He is doing pretty well.... not the star patient that he...
Joann I tried to send you a personal email and I don't think it worked. When I have a moment, I will send you another - in a different format. Now, I am really really busy Love ya, babes!...
Saturday morning update: Hubbie is feeling less nauseous today. His voice is stronger. They actually made him get up yesterday (with all the vomiting) and walk. The P/T folks are TOUGH - God love...
carol Thank you. I'm very sorry about your husband's ineligility. I will pray for the both of you. I'll pray that God helps you both Yes, this is all surreal. Hubbie is hurting very much today and...