Bag Balm is wonderful if the Gold Bond ceases to work....
http://www.foxnews.com/health/2010/08/26/scientists-create-liver-cells-patients-skin/ CRG, You can post the link as you did. But it's against forum rules to post the article itself. So I had to...
Thanks for the reminder to post. I've been reading the posts, but I have not been commenting much. Things are going quite well. Frank's TIPS has taken on successfully and we have followed Rick's...
Prayers of thanksgiving ascend from here, as well as prayers for continuing recovery ... Thanks Be To God !...
Sandi, Please know that Mike is still will you in your spirit, restord to health through God, and will smile upon your return to work and continue to be with you through the hard times and the...
Connie, Thanks for clarifying the fact that otc and herbals are not always safe. We check with Frank's transplant team before he takes anything at all, and I agree in stressing that caution must be...
Hi Milkthistle and welcome to a great forum where you can learn much, and offer much as well. Pink Grandma and hep93 are right. Always consult your hep doc first, but it can't really hurt since it's...
Mike, My Frank had a similar problem with his MRI. It could be a combinaion of all that is on your mind that escalates your anxiety. I would suggest looking for an open MRI, they are much less...
Sandi, Sucha beautiful poem and insight. Thanks be to God that you had those years, and thank you for sharing. Rob...
Dear Harp, Between all that you and your family are doing for your nbrother and the beautiful thing he did last Thanksgiving, give your Mom & Dad a hug from me for raising such great children! My...
Hi Susie! I agree with Connie. However, if you are suffering from the effects of ascites, as my Frank was when he had his done, then certainly consider this procedure. For Frank, it gave him his life...
Hi Trish! This Forum is an amazing gift and so helpful. It's nice to know that you were a moderator when Pink Grandma joined. She, Connie, and Rick have been amazingly helpful. It's nice to see...
Mr. E ... I congratulate you on your ability to quit drinking and for your concern about your family. My partner was told a few years ago that his liver enzymes were high, but his doctor never did...
Prayers ascend Linda ... I know how frustrating it is as a CareGiver to worry about the reliablilty of the Transplant Team, but the reality (or at least mine) is that they typically have a good focus...
Dear Allie, Please know that my thoughts and prayers are with you & your Mum as well. This must be so difficult for you. Please keep your balance and take care of you. Blessings, Rob...
Thank you all for the responses. Frank & I are not married, so that answers one of the legal questions. Also, he has not worked for the past 22 years as I have always been the source of income...
yes ... certainly a case of "less is more'! Do we know if there is a time limit after removing his name from the deeds?...
I will still have income from my own investments, so COBRA should be affordable. We own several rental properties together, so I'll need to remove Frank's name from the deeds before we can apply for...
Hi all ... I know that I have neglected the Forum, and I apologize for my absence. Frank was just listed today at NYU and I just lost my job and our insurance. What doI do?...
Mike, Nice progressive, and a great approach! I remember when Frank was hospitalized, I would bring food to him (the hospital food was terrible!) from a health food store ... all low or no sodium....
Dear Pink Grandma, "I can tell you as a former caregiver to 2 liver disease patients....(husband and brother)....I may not have walked in their shoes.......But I did pick up those shoes and put them...
Dear mallshopper, I am also a caregiver for my partner who has cirrhosis. It is a very difficult and time consuming committment, but your cousin is blessed to have someone to take care of her. Some...
Ranbrew, My partner is in the process of besoming listed for a transplant. I will be happy to talk with either one of you, and perhaps he will as well. Frank here is doing quite well with a...
Hey all .... and blessings for this Easter / Passover Season as it begins ... please remember that it is a Season and a Beginning, not just a day. Well, I tried real hard to keep my job so that I...
Donna, I am also feel for you with your loss. However, I am also concerned that you state that you are logging off from here. This site needs people like you to help others who are just beginning in...
Dear Nage, I am so sorry that you all are going through this. You have found an amazing support network here, truly blessed with angels to guide you. I love the fact that you do not fear your Dad's...
Mike, Walgreen's carries Bag Balm. It's in the moisturizer section in a green tin with roses on it and a cow on top. Please consider the TIPS ... Rick is right about the risks, but when Frank had his...
Anreeb, Please know that my prayers are with you. What you wrote about Mike holding his head in his hands touched me deeply, as it just destroys me when I see my partner rub his forhead in worry or...
Dear Mike, I am sorry that you are going through this, I know how difficult it is. My partner was diagnoses back in July and suffered through the ascites and all until he had his TIPS procedure in...
Great news Connie! Didn't he have a TIPs though? I thought that with a TIPs you would have to eventually transplant....
Thanks Connie, I'll be certain to post the answer that Frank's doctor comes back with. On another note, do we have an update on how Rick made out with his appointments? Blessings, Rob...
Hello all... A friend suggested "NAC", which is a powerful anti-oxidant, as a supplement for Frank to help keep his liver from any further damage. I know it's good for people with healthy livers to...
Beautiful. In my seminary class today, we discussed how difficult it is for caregivers, and how much of a physical and psychological toll caregiving takes. Two years ago, I took a seminary class on...
Charlie, I don't have much to offer in the way of advice, and I agree agree that this disease if terrible. So, all I can offer here is that prayers ascend for your wife, and also for you. Be good to...
Dear WorriedGirl, You and all of the posters here are such angels. You mention that you are "your mothers daughter". This is the legacy she has given you. I have to guess that you Mom was a loving...
DDLee, As a caregiver also, I can tell you that you have found the best place in the world for support and wisdom. Connie, Pink Grandma & Rick (Timeless) will soon be your best friends, and people...
Thanks Connie, for all of that. Frank's most recent MELD was only 6 ... it went down from 14. So, I don't know if UNOS would take him. However, I know that these scores can change drastically...
Hi all ! I apologize that I have not been online for the past month or so. Frank is doing real well and we just kinda became caught up in enjoying life while we can. We are looking at moving Frank to...
Good point about the amount of time that the solutuion will be in his mouth. Amazing how ridiculously obsessive we can become about these things! We decided that since his cut was so minor and is...
Frank's dentist asked him to rinse with salt water for a small cut that he has. Will that add sodium to his system? We're so careful about sodium intake, we don't want to mess things up!...
Beautiful Rick. How blessed you are that you can see the gifts and God at work through our adversities....
He's taking six 8oz glasses of liquids daily, and fresh fruit as well. His ascites has gone down nicely so far. Now he just looks like he has a small beer belly (for lack of a better term). He was...
Thanks Rick, We'll be out shopping today, so I'll look for Corn Huskers Lotion. Also, Connie, I apologize that I didn't respond to your question. Frank was just put back on Lasix the day before I...
Thanks Sue, I'll look for some balm today. We've been using lotion, but we'll switch now. We're real sodium hawks. Shopping takes at least three times longer now and it's frustrating how manufactures...
Frank's edema has become very bad after his TIPS 3 weeks ago. His feet are becoming roundish, he has crackling of his skin, and a small rash. His doctor put him back on Lasix 80mg daily. It's painful...
Thank you Sue ... it is so difficult sometimes for us to cry. I love my partner so much and always promised that I would be there for him no matter what, but I never expected this. I always thought I...
Also, Rick ... you certainly are timeless! You are also a gift to this community, and an angel among us. Sometimes we ask why God would allow something so horrible to happen to someone, but then we...
Thank you, John and thank you Pink Grandma for re-posting this. I love being a caregiver for my partner, but I never thought that we would have to be going through this as our age. I know it's...
We left the house at 6:45 this morning to head to Pocono Medical Center for Frank's TIPS procedure. Frank had not slept much last night, but was nowhere near as nervous about the day as I expected...
Absolutely beautiful! Whata tribute. May I ask where you found that? I would like to have that in my file to suggest to people. Also, those of us who are stewards to the cremains of loved ones need...