Pink Grandma, They are getting there. The adjustment is difficult at times for me due to the relationship I had with dad. He was a great sounding board and always very level headed. That is not...
Jane, This forum gave me a great deal of comfort and the support is fantastic. There is a lot of information in the thread and I have a lot more available including some very useful websites. I hope...
Doglover1961, Welcome. Having just been through this process with my father the journey ahead may be a rough one. My father was told he had 12 months to 3 years. He passed away after 14 months. My...
All, Now that the dust has settled we can get on with our own lives. My kids seem to understand what has happened and mum is slowly getting a handle on the change in her life. Once again I would like...
Hi again all. Dad lost his battle and passed away peacefully in the early hours of yesterday morning. After seeing my brother and his family on Tuesday he declined rapidly and slipped into a coma on...
Good morning All, I hope your Christmas and New Year were enjoyable and fun.[img]/community/emoticons/turn.gif [3] Dad was admitted again to hospital on Christmas Eve and is still there. The...
Connie, We have everything in order including the Will, Enduring Guardianship and Medical Intervention Directives. We have discussed with Dad his wishes and have made his doctors aware as well. I am...
Good day all, Dads disease appears to be progressing. He is now having drains every 10 days with a removal of 10+ litres of fluid each time. He is also having more frequent occurrences of vagueness...
Hi again, Dad has been doing fairly well recently. He is in a regime of having drains every 2 weeks and they are getting up to 15 litres each time. He is coping with the reasonably well but it is...
G’day all, Well things are not getting better. Dad is now in a program of a drain every two to three weeks through what is called ambulatory care at the local public hospital. They will only do...
The dose at the moment is twice a day. There does not seem to be a really proactive approach from the doctors to his management. I am trying to get some more information so we can assist in the...
Yes, the TIPs has been mentioned but discounted because he has advanced liver disease and is at a greater risk for worsening liver failure after TIPS. I understand that those with encephalopathy are...
Dad had another drain two weeks ago and they took 21.5 litres out. He is now statring to struggle with the rate of fluid build up and the frequency of trips to hospital every three weeks. He tried to...
Hanging in there - Life has to go on and I am enjoying the time with my wife and kids....
Thnaks for asking - I forgot to include that bit of information. Following his last trip to hospital my parents received assistance three times a week. Mainly to be in their appartment when dad is...
G’day again, Dad had another drain last week. They got 15.5 litres out. His Actilax (lactulose) has been increased to twice daily but it does not seem to be having any effect on the fluid build-up....
Good morning all, Dad was in hospital for 5 days and had another drain where another 15 litres was removed, this time it was initially quite bloody but then ok. He was released but he never seemed...
Hello all, Well it happened again....hepatic encephalopathy struck dad down two nights ago. Mum found him in the middle of the night not knowing where he was. He was not able to stand or talk...
All, I will keep you posted as there is consolation in your support....
G'day All - Update time. My father had another drain last week and they got 15.5lt. He was sick last night and fairly disoriented and slurring but he appears ok today. ....and so it goes....
Penny, He is on Lactulose as well as a number of diuretics, beta blockers and tablets for blood pressure and his heart. Taz...
Penny, TIPS has been ruled out by the specialists already due to the other risks that come with it. I think that he is having trouble managing the medication with the changes that are occurring and...
Quick update, dad came out of hospital last night after haveing a drain. 18.5 litres was removed. His last drain before that was on 02 Feb 09 where another 18 litres was removed. He seems a bit...
Hep93, Thanks for the information. I guess the MELD score could be looked at in terms of the seriousness of my fathers condition?? I understand the MELD is the average of the last three blood tests,...
pscwife, My fathers ESLD is a combination of fatty liver disease and over prescription of methotrexate. He has been told that a transplant is not an option due to his age and other issues with his...
G'day again. I had posted previously under another post. I thought it only fair to leave that post to that person so they can have their time and place for answers and support which I have found to...
Yes, he is taking lactulose, 2 different diuretics, potassium and daily antibiotics plus some other medications. What a cocktail.......
Hep93, Thanks for the information. My father is seeing his specialist today for another check-up and booking in for another drain. He looks like he is 10 months pregnant. Dad has his days where he is...
Thank you all for your support. I know that the ride will be long and bumpy. I am not sure what is going through my fathers mind about his disease. I think he is in denial blaming his symptoms on...
Hello all, This is the only site that I can find that has people in the same position as me. My father, 67yrs old, has been diagnosed with ESLD. He is taking diuretics, lactulose, daily antibiotics...