I know about not taking over the counter meds. I always clear things with my transplant team first. But I do like to do research on things before I ask. It's like that Sensa. I researched that before...
I am a post liver transplant with Hep C. I was wondering if anyone has heard of someone with post liver transplant taking the raspberry ketone? I am interested in this, but am trying to do research...
Thank you, David. I'm hoping that it will work. The antibiotic they had me on for UTI really messed up my numbers. I was called on Saturday morning to be told ALL my numbers were elevated. My...
I'm sorry to hear about your Hep C returning, David. Can't wait until I can start treatment for mine. I won't be able for that until June of next year. If then. I developed a UTI caused by E.coli and...
You mentioned your children. What will happen when, by putting testing off turns out to be the wrong thing to have done? Then, it could be too late. There will be your wife, a widow, your children...
I agree with everyone else. I would definitely try another facility. Your PCP could do your liver panel tests. That way you can keep track of your MELD score by using the calculator at the website...
No, not taking cellcept. Just prograf and myfortic. But think there might be something wrong. Will be calling hospital tomorrow to talk to transplant coordinator about it. Have swelling where it...
David, I take 6 mg prograf twice daily. At first, I was taking 10 mg, then it dropped to 9 mg, then to 8 to 7 to 6. My skin had always been oily, but since having hep c, it has been very dry and...
Everyone's system is different. When my ammonia levels reached the 60's, I would start noticing that I wasn't talking right, having problems not being steady. The first time I blacked out, my level...
Was wondering if anyone has had restless-leg type symptoms after surgery? Feet tingle and lower half of body's temperature feels like it's hot. Have to stay out from under covers most of the time...
Thank you! My area of numbness is not at the incision sight but below it. Like in the front around the belly button area. I suppose I can live with no pain but weird feeling. That is a LOT BETTER...
Am on Prednisone, but only until the 29th of this month. No drains left in. My drains came out the day before I was released from the hospital. It's been about one month and 11 days since my surgery....
Does anyone out there know how long it takes for the swelling to go completely away after liver transplant?...
The tingling in my hands and feet started day before yesterday. I'm hoping that it doesn't last long, David. But if it does, then I'm prepared to put up with it. Not much else one can do. Hopefully,...
Yes, still having bad headaches. But I've figured out how to handle them somewhat. After I take the prograf, I wait for the headache to hit, then when it does, I take a pain pill. That gives me...
Evidently they are not going to be changing my prograf yet. I take 8 mg twice a day and then the myfortic....
Along with the prograf, I take myfortic and prednisone. My prednisone will be discontinued on the 29th of July. Then, my nystatin will be discontinued then too....
Found out what is causing my headaches!!! My prograf!...
Hello, everyone! Went to the dr yesterday and found out some things I didn't know and neither did my sisters (who were with me for my surgery). Evidently I had liver cancer. The dr said that I should...
Contacted transplant team. Told them what I suspected and they agreed with me. They are getting me a new prescription for a less potent pain pill. I have to go on Tuesday of next week and have...
I also have suffered with migraines. The pain is excruciating!!! And that is what this pain medication induced headache feels like. A migraine. The pain is the same, in the same area, etc. I just...
No headache if I don't take pain medicine. Headache if I do. No matter how many hours in between taking it. And yes, I will be calling the hospital tomorrow after labs in the morning. Thank you for...
As it turns out, my headache is caused by my pain medication...imagine that... I never would have thought that in a million years. But, it's true. If I don't take a pain pill for longer than the 4-6...
Did anyone who has had a liver transplant ever have headache afterward? Almost like a migraine? The light hurts your eyes? But, not all the time? Just after being up a few minutes and a light shining...
Yes, they took the gallbladder out also. It was bad anyway. I had my surgery done at UAMS in Little Rock, AR. Wonderful doctor and team. I am already off insulin. Surgery was on June 5th, (my...
Hello, everyone!!! Glad to be here to let you know that I have now had my liver transplant. Was called on Friday, June 4th, to come to hospital. Got down here, tests run, Saturday morning bright...
Thanks for all the input. I did call my local liver doctor (the that did the ultrasound) and his nurse said that it could be bile duct blockage or something that starts with a c. Never did understand...
Does anyone know if Hep C causes the gallbladder to go bad? I had an ultrasound done on my gallbladder about 3 weeks ago and just found out today that it was bad. Don't know what they meant by that....
Last time I posted anything, I was worried about my tests. Now, I have the results, and found that I have minimal heart disease. The cardiologist said it was nothing to worry about . So that makes me...
Thank you both for your thoughts and prayers. I have accepted whatever comes my way. If the doctor decides to or decides not to do the transplant, I know that it is for the best in the long run. GOD...
Had a CT scan done of my chest and a stress test. Both came back abnormal even though EKG was normal. Anyway, the heptologist said I could have liver cancer, and the abnormal stress test [b]could...
Thank you all for your prayers. I appreciate each and every one of them. And thank you for being positive....
Not sure what they have planned. Have to go this Wednesday for ct scan, bone density test. They called to confirm and the recording said something about nuclear medicine along with radiology. So,...
Just found out on Friday night, 4/2/10, that they found a lesion on my liver, and that my stress test (nuclear) was abnormal. I'm praying that neither one means anything, or that they confused my...
Ok, thanks. As it happens, I have an appt with the dr real soon. Fever is gone, redness has just about gone but legs are tender to touch. That is most likely because of my fibromyalgia, as the pain...
I don't know if this has any bearing on hepatitis c or not. But, back in October of 2009, my left leg started hurting when I went out to feed the calf before church. By the time we got to church, I...
Tried both...dr sending reports to ins co., and contacting manufacturer. Since I have Part D Medicare, manufacturer says no. Sandy...
I guess if I have to take the shots for diabetes, I'll just have to take them... The transplant coordinator said that I would probably only have to take them for 3 months. As long as I stick to the...
My genotype is 2. And, according to my internist, the combo shot that I took should have done the trick. But it didn't. Will the new treatment help people that have cirrhosis of the liver? Will it...
Yes, I am on transplant list. Have been since last year. They ran all tests needed in May still having my blood drawn every 3 months for them. I don't mean to sound filippant, but I have always taken...
Back in 1993, I decided to see a doctor about my nonsweating situation. For a few years I was unable to perspire. So, while I had insurance, I decided to get it checked out. They drew blood. Called...
Yes, I am on lactulose. That got to where it wasn't doing the trick by itself, so they also put me on xifaxan. I'm takin lactulose 30ml 2x daily and the xifaxan 200mg 2x 3 daily. I can't hardly go...
Thank you, hep93. I did just that. Copied and pasted post to New Topic. The reason I posted a reply here was so that others could watch out for signs of ammonia level getting up there. Once I began...
Hello, everyone. I am new to this forum. I am 56 yrs old, diagnosed with chronic hep c in 1993, and was going along just great until recently. I took the the combo treatment back in '99 and when that...