Mom received her liver almost 2 weeks ago, and is still in the ICU on the ventilator. They tried to take the breathing tube out once last week, but at the end of the day, the dr. thought it was still...
Hi Butterflythree, About 3 months or so before mom started really going downhill, she was nauseous all the time, and the month before she was vomiting a lot too, so the doctor had her on an...
Divadivainc, I am so sorry for all that you are going through. I can understand how lost and overwhelmed you are feeling, as I was in a similar situation to what you described. I am 28 years old, and...
Hi Emma, I was told it had something to do with the actual temperature of the blood of liver disease patients being lower than everyone else's, but for the life of me, I can't remember why...but...
oops! forgot to add a subject.. i don't know if this is the right forum tom post in, but if anyone has been through this, what's the best way to get a home ready for a post-transplant patient to come...
hi david, that's good to hear. same thing with my mom - she came in with a score of about 22 and jumped to 34 in a matter of less than 2 weeks and that really caught their attention. We are in So....
spookyjan, the encephalopathy makes everything so much harder for the caretakers. for most of the past month, mom refused to eat because her ascites was so bad and she felt so crappy. we literally...
i know i haven't posted much on the board, but i just wanted to share some good news for those out there still waiting for a transplant. after almost a year on the waiting list, and with a MELD of...
Today is day 13 of mom's stay in the hospital, and since 2-3 days ago, she has basically stopped talking. This really scared me since she was already sleeping all day. The nurses tell me that when...
Hi bostonmike, My mom experiences severe abdominal pain/tender tummy area all day everyday due to her ascites. It makes it hard for her to walk, sit up, have an appetite, etc. The pain is so bad that...
Mom hasn't had a TIPS, just been "tapped" several times. Her primary care dr., hepatologist, and transplant coordinator all said that they don't recommend TIPS because of the risks associated with it...
unfortunately my mom seems to be one that will have to deal with the constant swelling. we were admitted to the hospital a little over a week ago, and she was tapped once and they removed 4L of...
hi jewel, my mom developed thyroid problems after her interferon treatment, and eventually ended up having to have parathyroid surgery, which really wasn't too bad or hard on her. good luck!...
Everything everyone write hits it right on the head. I'm a fulltime, live-in caregiving for my mom, and it's exhausting, emotional, and stressful. But at times like these, I figure you only get one...
Hello all, Just wanted to introduce myself on this wonderful forum. I have been devouring old posts through the past several months and through tears and laughs finding great comfort in knowing I'm...
Thanks everyone! And Connie, mom's already been through 4 TACE treatments and 1 RFA for her tumors, the goal being to shrink them so that she could get extra points on her MELD score for having...
hi all, I'm new to this board, but have found great encouragement and advice reading through the posts the past several months. I'm the primary caretaker for my mother, 58, who has HCC, Hep C,...