They said his liver numbers are too good for him to qualify at this time. He sees his transplant dr on the 14th. I'll ask again! It seems crazy that his liver is in too good of shape to treat for hep...
My Dean had his transplant at Tampa General August, 2010. His new liver is still doing great! He was at Tampa General 3 weeks ago for a colon resection and a fistula repair in his bladder due to...
MamaLama, have they done a viral load on Mike recently? Dean hasn't had a viral load done in over two years. I don't know why they haven't done one in so long....
Thank you. I'll be following this thread and Dean will ask his doctor about it....
Thank you. I hope there will be something that works. He went through treatment twice and it came back....
Yes, he's golfing but the Hep C is still a concern. I looked up the link for the new meds but it didn't look like any trials are started yet in our Tampa area. He still gets blood work once a month...
I haven't been on this site in a while and just found out about Connie. I'm so very sorry to hear this after all she went through. Just doesn't seem fair after helping so many. I first found this...
Hi, haven't been on here in ages. Glad to see so many have received transplants! Dean is doing great and celebrated his 3 yr. re-birthday in August. The only problem is fatigue and his doctor says...
Just wanted to give an update on Dean's progress on this two year re-birthday. He is doing great! Blood counts are still a little low due to the meds but other than that, he has had no problems. I...
Great to hear everything is going well! Dean's transplant was August, 2010 and he has always had blood work done at Quest between appointments. It only takes a day or two for his doctor to get the...
Just checking in to see how Connie is doing. Our transplant pharmasist gave us the link to Mymedlist.com and that was very useful for keeping track of all the mads and changes in the early weeks....
Wonderful news! Great news! So very happy to know everything went well! Dean's process would have been so much harder had it not been for Connie and this board. Now it's her turn to get a new lease...
They are treating it as muscle strain after the ultrasound and x-ray didn't show anything unusual. It was a concern because the pain was in the area of the biopsy. He has to go back to the doctor...
No swelling but it's hard for him to take a deep breath or bend over. We just had another argument about going to the ER. He says he's not going to sit there all night. The pain is on the inside like...
Hi everybody! Dean has been doing well but they insisted on doing a one year post transplant biopsy. (It was actually a year in August) He had the procedure done two weeks ago today and everything...
Debbie, just wondering why you are going to Pa. when you have Tampa General right here? TGH has some of the best surgeons and one of the fastest transplant times in the country. Linda...
Great, great news on his transplant! /community/emoticons/yeah.gif Dean had his one year post transplant biopsy and scan today. It was a year in August but they finally got it scheduled. Walking...
Ella, Just wanted to say you and your husband are in my thoughts and prayers. Linda...
I'm so very sorry for your loss. Prayers sent for strength to get through this difficult time. Linda...
They switched Dean from Prograf to Rapamune three months ago and added Celcept at that time. The Celcept was supposed to be for only three months but they decided to keep him on for a while longer....
Hi Carol, Is he taking Nystatin? Dean was on Nystatin after every meal for a while after his transplant. I don't remember how long exactly. It's a liquid and used to treat/prevent fungal infections....
Just checking in to see how you are doing. After the second chemoembolization, Dean's scan was postponed a bit just in case the tumors started growing back so there wouldn't be any delays. His...
Hi Sylvia, Dean had quite a bit of fluid after the chemoembolization. They kept switching between Lasix and Spirolactone but finally put him on a combo of the two. The shorts he wore to the hospital...
Hang on Connie, I'm writing now! Linda...
Happy Re-Birth-Day David! Wishing you many years of good health! Dean's one year is coming up August 8th and sometimes I still have to pinch myself to believe everything that has happened. I can...
Connie, I'm so sorry to hear you are having a rough time after the procedure. Dean had chemoembolization two months in a row. He was also going though Hep-C treatment at the time and I think the...
Congratulations! We never got a letter from anyone. Our coordinator left a message on our anwsering machine saying Dean got his MELD exception and was #3 on the list. The MELD exception was because...
This is the link for Road to Recovery, the transportation assistance from the American Cancer Society. http://www.cancer.org/Treatment/SupportProgramsServices/Programs/road-to-recovery The toll free...
Keep your thoughts positive. You can do this! One test at a time, you've already finished day one at the hospital. We are thinking of you and praying every day. Dean and Linda...
Great news, I haven't been checking in here much but I am so happy to find out he got his liver and is doing well! Linda...
Connie, Please check out the Road to Recovery program from the American Cancer Society to see if there are volunteers in your area. They provide transportation for cancer treatment at little or no...
Connie, you are in our thoughts and prayers. Sincerely, Linda and Dean...
Dean was going through his second course of Hep C treatment when his doctor noticed something in his bloodwork. A scan showed three tumors and at our hospital, the limit for transplant is up to 3...
Hubby had his 6 month post transplant check-up today and he's doing great! The fact that his actual 6 month transplant anniversary was last week and we didn't even think about it means our lives are...
Dean was on anti-anxiety meds for a few years after he quit drinking. Initially,he didn't quit by choice. I had to drag him to the ER in July, 2006. He was dying and didn't think he was sick. The...
Two months ago tonight, I was sitting in the waiting room praying that Dean's transplant would go well. Two months later, he is back on the golf course at least twice a week and looking great! His...
I'll find out more tomorrow but the nurse just talked to the doctor and he said for Dean not to eat anything after midnight. I guess they're doing more tests in the morning. They didn't do the stent...
He's still in recovery and the last update I got said they didn't do the stent for some reason and I have no information as to why. I was hoping they would find the problem and fix it. He can't keep...
Dean had his transplant two weeks ago and was still having problems with ascites. The scan yesterday showed a narrowing of the portal vein. They are planning on putting in a stent today or tomorrow....
We went home Sunday night but after his doctor appointment on Thursday, they decided to put him back in the hospital. His liver is working good but his kidney functions were off and he had a lot of...
He might get to go home this weekend. He's having some pain at the incision site but he'll deal with it. I would like to ask that everyone say a prayer for our donor's family. As we are celebrating...
Thanks everybody for the kind thoughts and prayers. He was moved out of ICU this evening and is still doing well. He was awake for most of the day so he's sleeping now. He has a pump for pain meds...
The breathing tube is out, the incision looks great and physical therapy is coming soon to get him on his feet! Everything is as good as it can be! Prayers are being answered Linda...
Thank you for posting the updates for me David. I would get something typed and then lose the connection. He's doing better now that the shift changed. The last team wanted to take him off the...
Everything went great and his new liver is working. He'll be sedated for a day or two and they said they are going to try to take out the breathing tube this afternoon after his blood work. More...
Internet access is spotty here at the hospital so I'll make this quick. We're at the hospital, hubby's transplant will be tonight or tomorrow. Everything going well. Please keep him in your prayers....
He's sleeping better now that the fluid is gone. On Saturday night, he bent over and got a pain in his upper right side that wouldn't go away. The pain then moved around to his back. I finally called...
It's been a week and a day since the paracentisis and he went from 188 lbs last week to 163 lbs today. Most of the fluid is gone and he looks and feels much better. He played 18 holes of golf on...
Congratulations! Can you post pics of him on here? If you lived closer, I would do his newborn pics for you. The best time for newborn photos is during the first two weeks. I am so excited for you!...
He came home from golf yesterday with a much better attitude. He said he's not going to think about the transplant and he's going to try and go back to doing his usual routine including the gym. When...