Thank you - I feel him everyday - sometimes that's wonderful and other times - it hurts deep in my heart. I took care of him through everything and in the end, I couldn't fix him.....that's hard for...
August 29th @ 12:35pm I lost the love of my life. After diabetes, chronic kidney disease, Hep C, liver cancer, liver transplant, bile duct surgery, mucormycosis, heart attack, open heart surgery,...
Both Ron and I are to be cremated - most of our ashes will go in the ocean off Tybee Island - at the south point where we've watched many sunsets while on our summer vacation - the rest will go with...
Hey David - no Ron doesn't play golf - but he loves working in the yard. TheMiz - I'm glad the blog was helpful - I wrote 'real' on my blog - and when I read it back - it all comes flooding back;...
It's good to know that the VA is providing this medication; although we've been fighting with the VA for YEARS, we'll hope my insurance (BCBS) and Medicare will pay......we'll see....
Prayers for you and your family - I am so terribly sorry for your loss. Pam...
At Ron's 4 year post transplant check up - it was mentioned - they would like him to start Harvoni - they started the insurance paperwork - hopefully we'll hear in a month or so. He does go to the VA...
Hi everyone, Just a quick catch up to those who don't know our story: Married for 23 years My husband, Ron, is a Vietnam Vet (helicopter gunner) Diagnosed with Hep C in the early 1990's...
My husband, Ron, received a liver transplant 4 years ago. He was diagnosed with Hep C in 1993, and developed liver cancer in 2010. He was placed on the transplant list, the summer of 2010 and...
Hoping for THE REAL CALL soon! Pam...
I remember when my husband's MELD score was 9; he was tired, slept alot and not much of an appetite. I did manage to get him to ask his general physician for an anti-depressant; which really helped....
She was an amazing person!...
Hello, My husband, Ron, had liver cancer (Hep C) and was diagnosed in the summer of 2010 - he had one tumor under 5cm, he was placed on TP list in August and was transplanted February 2011. Although...
I'm so sorry about your mom; she's very lucky to have such a loving daughter. If she wants to come home, try and make that possible. My advice - spend time - spill your heart to her; it will only...
We are so terribly sorry for your loss....
My husband is 3 years post-transplant and we have 3 Boxers. Also, I completely understand the micro-managing; it took me almost a year to stop checking everything he did, he ate, and his medications....
Does a Masters Degree in Remote Control count as exercise.........because pre TP.........Ron was a weak as a kitten and the remote was his best friend. Ron had some trouble with several health issues...
Sometimes as a caregiver no matter how much we do - we just feel like a failure because our loved ones choose not to fight or are unable to get better. Many times I felt like my husband and I were...
I know what a rollercoaster ride this illness can be. I am my husband's caregiver - we are on the other side of transplant (February 3, 2011) - your post - brought me back to very dark days at my...
We are so terribly sorry for your loss - take care of yourself - and breathe. Pam and Ron...
Rest dear Connie, rest in knowing that you meant so much to people you never met; you were there for us through it all. God grant you safe passage to a place where you are whole and all knowing. We...
Same thing happened with my husband, Ron, before his transplant. He had a spot - we were told they would watch it - it grew - they did a biopsy - it was cancerous. The tumor wasn't large enough to...
We are from Georgia as well - Atlanta area - my husband has Hep C - he had a MELD score of 8 before it was bumped to 22 after liver cancer was found; we went several years (prior to the cancer) - him...
Ron has had several bouts of this mysterious left side pain - just a couple of months ago - he drove himself to the ER - after every test in the book - CT/ultrasound/xray - they found nothing - they...
So happy to hear about Connie - it's a long road - lots of bumps - but if you're willing to take the ride - everyday - every breath - it's all worth it....
Well - how do I begin? My husband is 65 - has various serious health issues (Diabetes, Hep C, liver cancer, liver transplant, rare lung fungus-mucormycosis, heart attack, triple bypass surgery, high...
Well - let's see. Ron has had a pain in his side for 6 weeks or so - after an entire day in the ER - they decided it was because his potassium was sky high - sure enough - I found information online....
Of course after Googling - I find pancreatic cancer - now my mind is a whirl. Ron is at the hospital waiting to see his cardiologist - due to his high BP. I'm trying not to go to that dark place....
Hi everyone, Looking for some ideas! Ron received his new liver February 3, 2011; he's diabetic, November 2012 had triple bypass surgery, he's losing weight again. He goes for his blood work weekly....
Carol - I've been on an antidepressant (Wellbutrin) for years - and I have back up Xanex - but try not to take it - makes me so groogy. What are you prescribed - as your "Don't bite Mike" pills? Pam...
Thanks everyone. It's difficult sometimes to be really honest. People are always telling me - how strong I am - how brave I am - how much I love my husband to go through this with him.....they ask me...
After the 'steroid nightmare', my husband began regaining his strength; that's when the power struggle began. This is what I think it was for us. Because of his illness, I was in charge of...
Can I vent? Can I feel a little sorry for myself as a caregiver? Most probably know 'our' story - I feel like everything I do is about 'us and our and we'.....all the way down to 'we had a...
My husband went back to work 8 weeks after his transplant. He was 63. He was in sales (since retired) - spent his entire day on the phone - we live 7 miles from his office - at first he worked half...
Is Sundowners Alzheimers? What type tests are performed to confirm vascular? My husband had 2 CAT scans and an MRI of the brain - the neurologist said he only saw normal aging....
I'm not sure where to begin. This is my first post to this forum. We are regulars on the Hep C forum. My husband is a liver transplant patient February 3, 2011, had a triple bypass in November 2012...
Renee I'm so sorry I haven't been able to respond to your last email. My husband was in the hospital for several days - we're home now and he's doing much better. How are things going? Pam...
Here's an entry from the blog following my husbands journey to transplant. I hope it's helpful....
Hello, My name is Pam - my husband, Ron, received a liver transplant February 3, 2011. I journaled throughout the entire journey. I hope it's helpful to you. [email protected] Best wishes. Pam...
My husband, Ron, had some of the same emotions you're talking about; we both did. I was so mad at the disease and the circumstances, that sometimes I was mad at him. Ron was mad and felt cheated of...
Angie, Ron and I have followed your story - prayed for both you and your husband. We are so sorry for your loss. Please take care of yourself. Pam and Ron...
Ongoing, We were dealing with ESLD with my husband for many years before his transplant in 2011. As a caregiver, after years of caring for my husband, as he was nearing the end (many nights I watched...
Congratulations to you both!...
I spoke to Ron's transplant coordinator and sure enough his Prograf level is high (usually runs 2-3) it's 13. It's an absortion issue - he's been at a perfect level since November - when it spiked...
From one Pam to another Pam - HELLO!...
Hey everyone - thank you for the well wishes. For those who don't know us - besides the liver transplant February 3, 2011, then bile duct repair surgery 10 days later, then diagnosed with a very rare...
Hello My husband, Ron, received his transplant - almost 2 years - ago (February 3, 2011). Ron is very sensitive to medication. The Prograf and then Cyclosporine caused all types of neurological...
The first few years after Ron was diagnosed - I was tested every 6 months - (1990's) - now - not tested....
No pain meds for Ron - he had very little pain from the transplant surgery.....now the open heart surgery - he's in lots of pain....
His hobbies include a TV remote control.......no golf - but he will be 'walking' soon.....me, too. He'll begin cardiac rehab 1 month post op....