Hi everyone, I just recently got diagnosed with hypersensitive pneumonitis. After many years of being in and out of the hospital with what they thought was pneumonia and fighting for my life. Was...
Hey everyone, just wanted to let you know I have been thinking about you all. I finally feel like I can come back after losing Anna and check in. It was really hard and busy until now. I think about...
I will continue to come on here and yes I will go to the caregivers thread. It just took me a while to be able to come back on here. Reading everything just brought me down again thinking about...
I wanted to stop by and say hi to everyone. I have been checking in and I am so happy for you Connie that you got your transplant! Hopefully you will start feeling much better soon. It has been hard...
Hi everyone, to say the least we have been hanging in, barely. I would love to tell you all how the funeral went, but I cant, I wasnt there. Wish I was. I got very sick that morning, thought it was...
I think this is a good idea, and with so many of us losing our loved ones in the past few days, I am sure it will be used. Thanks Connie Natalie...
Elle, you are in our thoughts and prayers. God Bless You and your husband! Natalie...
Krista, I am really sorry for your loss. I know how you are feeling and will keep you in my prayers. Natalie...
Thanks everyone, visitation is tomorrow and funeral is Monday. It really seems empty without her here. I know she is much better off though....
After a long hard fight, Anna finally went to her mansion in the sky today. Please keep us in your prayers. We know she is better off, but it is still heartbreaking for us all. Just grateful that we...
Thanks everyone. Havent been on because really not a lot has changed. She is still barely hanging on and her nurse didnt think she would last through yesterday and was very surprised when she came...
Sadwife, I am so sorry. I am going through it now and hope that I can be as strong as you seem to be. Prayers are going up for you and your family now. Natalie...
Her urine is almost a red color now, and she is losing a little blood through her bottom as well. I called hospice and they said this is it, it wont be long. Nothing else can be done. The raised her...
I got as much sleep last night as I could. I sleep better when I know Mark is awake and watching her. I slept in til about 9 this morning but didnt really get good sleep til about 5 or 6, before that...
Connie, She is on Atavan. It seems to help, but we were told to wait for the liquid because she is having difficulty swallowing and they weren't here until 8. Anna is refusing food right now so we...
Hi guys. Another rough day, and I know its not going to get any easier from here. Connie, yes I have talked to the kids and told them that when they come home, Anna probably wont be with us anymore....
The nurse came this morning to put in her cath and told me she is beginning the process of dying. It depends on her willpower how long she lasts. She has prescribed liquid morphine and liquid ativan...
No so great news to report. She is now bedridden. The nurse said to keep her there and will be putting a cath in her hopefully tomorrow. She is weak and cant stand on her legs. She is falling asleep...
Connie and Blonde, I completely understand what you are saying. I have talked to Mark about it and he still wants to move because of how excited she is. We dont close for 30 days and Hospice isnt...
Krista, My mother in law had those pains a couple of months ago. SHe would double over and cry like a child. We took her into the e.r. and she had a slight blockage in her bowels. How I will never...
Sadwife, my mother in law is about in the same boat as your husband. She too has been thanking us a lot lately and telling me and the kids how much she loves us. A couple of months ago, she was still...
In a way I agree Connie, but she is so excited about it, I almost dont want to disappoint her. The only thing she would have to do in the move, would be to just get in the van and go. We still try to...
Hi everyone. Yes, Hospice is wonderful and sadwife , you are right, it relieves so much stress almost instantly. We are really having a rough time with accepting all the news being thrown at us. Her...
Thanks Connie, I am coping as good as possible and trying to take care of everyone, although I am still weak. One day at a time, for all of us right now...
Hi everyone. I hope everyone is doing ok, or as well to be expected. I had to take a break from here for a while, I got so caught up in liver disease that it became my life. I was living, eating,...
The nurse gave us some anti fungal cream. I hope that with bathing and that it will help. Thanks Mandy :) Natalie...
She has to wear depends because she can longer control her bowels. I think that adds to it....
Hey Connie, no it is intertrigo. The hospice nurse is going to bring her a cream and recommended a daily bath until it heals and at least every other day after it heals. If not, like you said make...
Thanks Emma, now along with it she is having a HE spell today. Always something I am going to call her hospice nurse and let her know what is going on. Natalie...
Something new, always! lol!! I have been having trouble getting Anna to take a bath, sometimes she will go as much as a month. She just doesnt care anymore, I dont guess. Well today, the main lady...
Debbie, unfortunately we dont have an inpatient hospice center here, the closest is 3 hours away They wont take her there, because we dont live there. I have been trained to notice this stuff, I...
I will definitely take them up on the offer to come about once a week. I miss my friends and family and so do the kids. It will help out a lot. They go back to school on the 10th so that will give...
Hospice came today and I think it was the best thing we could have ever done for Anna! I am very relieved and excited about all of it. I was told today, that a nurse will come once a week to do...
Just got off the phone with Hospice, they are coming at 2:30 tomorrow to get all the paper work done and to get vitals on her and monitor her to see if she needs O2 as her breathing can be really...
You are in the right place! This forum has been a life saver for me and my husband. I really dont go to anywhere else for info, because someone here has already been through it. Good luck! Natalie...
Hi Ken, I don't know much about it, but want to welcome you and tell you that you have came to the right place! There are plenty of people here that will help you and support you. Natalie...
Connie, still praying for you and sending lots of get well soons your way!!! Nat...
Hey everyone. Connie, I am glad to see you on here. I hope you are feeling good! He is referring her to hospice and they also referred me to another agency that can help me while Mark works if she is...
Well, I am going, so he wont have a chance to sugar coat, lol. I want to know upfront what I am dealing with. I called and talked to hospice today and another home care agency. Going to have the...
I have a question hoping someone has experienced this before. Anna has been having a lot of bright red blood in her stool. She has no sores on her bottom and doesnt complain of it hurting. There is a...
Connie, I am really praying for you. I know the good Lord will come through for you again! Natalie...
LOL, some of the things they do is so funny. I am glad she doesnt remember, because I am sure she would get mad as much as we giggle!...
Hi guys, once again my MIL had a spell. Very unlike the others, but slept 23 out of 24 hours yesterday. We didnt realize she was in a spell until she woke to go to the bathroom. I asked her if she...
Connie, They said she was too sick for dialysis, she wouldn't be able to handle it. She also couldn't survive a surgery so we are in bad shape when it comes to options. I hate it, but at least for...
Thank you Sandia, that was beautiful!...
Last time she was in the hospital they checked it and there was quite a bit in it. One doc said her kidneys were just dry and bleeding another said kidney failure. Her liver doc said that she does...
Her doctor told us to give her powerade for the electrolytes. Her swelling hasnt been bad and it has some of the other nutrients her body is lacking. I will try the lemon water though. She likes...
Mama Lama She stays almost brown because her billirubin is up so high. The doctors have said there is nothing else they can do anymore and that everything will take its place and happen when it...
Connie I am praying that all goes well for you! Remember God heals and he guides the hands of the doctors! You have a big family who will be waiting here patiently for you to feel better and return!...
It is red, but we never had a problem with it before. I think it is just part of the disease, because the last time she was in the coma, it did abut the same and she had no kool aide then. Nat...