Does he have any lines that could be infected ? I hope they find something else also , the first treatment was a super scare . But the second wasn't bad but I do remember reading somewhere that they...
Connie your such a big help for everyone on here :) thanks ! Al now has private insurance through cobra and now Medicare A and B ! We haven't had much luck with help during liver transplant process...
Thanks great David , al was taking it for over three months and they suspected the bactrim for his out of wack blood counts . Al also had something called hemolytic anemia which I'm sure wasn't...
Welcome to the forum ...the evaluation process seems long while your waiting , just be patient and choose the best hospital available even if they haven't called back ...the squeeky wheel gets the...
Al to had to coughing spells and oxygen stats drop and was on oxygen for a bit to he starting feeling better . Honestly this med should be last resort ......
Al had to quit taking bactrim due to it lowering blood count . We have to do pentamidine treatments also ..his first one landed us in the emerency room with al actually having trouble breathing , we...
Thanks Emma ..how is dougie doing ....carol thanks , sorry to hear of mikes current issues , unfortunately this can occur at anytime with any of us , scary ....just when you think your out of the...
Amy , my husband had a liver transplant ..but while waiting his kidneys went out .....I've tried to talk him into pertinoneal but he wants nothing to do with it ...he does dialysis three times a week...
Jules ...my husband got his transplant at oshsner in new Orleans Sept of 2011, have you tried there , all the specialist and transplant team are great , after transplant they set you up in apartments...
Sorry to hear this news about mike ....... Danelle...
Connie things are going great , I made a post on updates ...I had trouble sleeping and was thinking I haven't been on here in sometime....how are you doing ....Danelle...
It's been a while since my last post .....seems like forever ......al had his liver transplant Sept of 2011 , is doing good , yes we have hit few minor bumps in the road but life has gotten back to...
Hello Connie , Emma , carol and angie ......gosh its been so long since I've been here .......hope all is well ......danelle...
After transplant all al can have for cold is robotussin or sudifed...
Happy birthday Ron...
Hope it happens soon deb...
Angie ..sorry to hear hubby is in pain :(...
That's great news . You both are in my thoughts and prayers...
Too cute angie ......
The breathing treatment is called pandaimen ....I know I spell that wrong but it the samw as taking bactrim to some extent .valcyte was only for three months for viral . Yes we have to be extra clean...
Nope ...he was having issues with bactrim ..so off ..he gets a monthly breathing treatment in its place and he's off of valcyte now .....so no antibodic unless he starts running fever ......
I have finally cut the umbilical cord ...lol ....al drove for the first time today ..its been 9 months ......he did great .....and made his day !...
Connie it actually was a abcess and it drained on its on ..we saw liver doc yesterday ..has al cleaning and packing it and will see us back next week ....hopefully no more issues with it ...he's...
Deb ..al was 42 meld when we got it ...your close ..I pray for no infection ..tomorrow and he will be listed ....that liver will come soon ...get ready...
Well things have calmed down ..but now that they have ...al' s left leg where he had a port in while sick got infected months back ..they had to do surgery ..he was lucky to not loose it ..has healed...
Geez I missed the whole pet convo .. lol .....everything seems calm here ...besides for als left leg ......ugh...
Yikes Debbie ..sorry to hear ....everything will be ok ..take it day by day ..that's all we can do...
Thanks guys ..... He seems a little better today and my mom is home from hospital and I survived .......hope all is well with everyone else...
Well my son started throwing up last night ..it never ends...
I'm making crafts ..and my stress level is actually ok. My mom said doc said she could come home today ..but I'm gonna make her take it easy ....one more thing and I might crack ....lol...
Thanks Carol...I'm going to look into options ....Medicare will pay for 100 days of nursing home if she goes to hospital and they place her there ....last night changing my grandmother she had blood...
Oh man ....my mom wasn't feeling well yesterday and had to go to er......really high blood pressure and high heart rate ....they kept her ..gave her list of meds and have in somewhat under control...
Keep us posted ...prayers sent your way...
Deb ..they had to put tube down al before transplant to get meds and feed .....it was the only way to get his h.e down as he was bad around august 15 ..he thought in the middle of the night I was his...
I haven't posted my own thread in a while .....everything is going good today ..we borrowed the brace from pt and all isn't needing to use wheelchair...( me ..jumping up and down ) or days and appt...
Emma ..al had banding done ..but in a emergency setting when he bleeding out badly ..so I guess doing it ahead of time will prevent that from ever happening . Al almost completely bled out and lost...
Hope all gets better deb ...al' s meld was a 42, at transplant....he's still doing dialysis ....still having issues but he's doing a lot better ...my thoughts and prayers go your way I was in your...
Varise are no fun ...my hubby had his first major issue with this ..I found him and bathroom in a pool of blood ..barely breathing..he was rushed to hospital his hemogobin was 3 .....I can't even...
Hi too u also ...hope u have a great weekend !...
It is a long process ..but so worth it .my husbands meld was a 39 when he finally got put on transplant list ..he had been hospitalized since A pril of 2011 and had trouble getting evaluation done...
Yep its good to stay positiv..even when your world is turned upside down ....I have to everything ....but my parents help out with the kids when I need it ..so I'm fortunate for that :)...
Mike is there anything that you are eating or taking that could make that ggt level look.high ..like a false positive ...I would research that to see if there are other cause it can show up high ???...
Oh roll tide my husband was 220 before transplant ..he is now 150 ..he is very weak and does ot/pt three times. A week also ...Mon wed Fri are appt all day long ....ugh...
Roll tide ..our kidney and liver doc said give it 6 months after transplant...sometimes they come back ...my husband does urinate every so often ....the dialysis treatments and the running of appt...
Yes ... Well 60 miles in driving are no fun ....the transplant hospital is 45 miles one way from home ..which I know other people drive way further ..but it was a challenge with the kids as I had to...
Our hospital does multi organs ...but one must be on dialysis for 6 weeks or more to get combo ..my husband was only on dialysis for 3 weeks ...he couldn't wait the 6 weeks or liver surgeon told us...
Mike ...how is your red blood count ?? My husband gets bad cramps and spasmums and charlie horses which usually makes it hard to sleep ...when his blood count is low !! They are very painful to him...
My husbands kidneys failed a few weeks before transplant . When someone gets really bad they don't really want to take the risk of a transplant not being sucessfull and their track record looking bad...
I had problems at the LTAC where al was at ..but they weren't giving him anti rejection meds ..which is just as bad ..I was so pissed ....eventually I got him transferred to another hospital ...now...
Connie I'm like you ..a tad compulsive ....I almost made myself crazy. Charting al,'s inr ..creatine and bili before transplant ....and obsessing over every lab ...I got so use to speaking for al I...