I lost my husband to this disease on April 20, 2012. I also cannot believe it has been almost a year. Lots of changes, lots of challenges I am lucky i have 5 wonderful supportive kids that help me...
I will adjust my thinking cap a lil better! Your story was one of the first that caught my attention when I started visiting this forum and it gave me and Oscar lots of hope and a look at what he was...
Congratulations Ziffle! For a moment I got a little worried not knowing what you would post. But it's great news keep up the good work! Monica...
Good Morning Everyone All these "first" are so terribly hard. Oscar would of celebrated his 49th birthday on August 31. I had the day off and I went and ordered the marker for his grave, my oldest...
Charlie and Marie I can relate to what both of you are going threw, Oscar, my husband passed away 4 months ago and it took me 3 months to go thru his things and give some away to his son and daughter...
Charlie I would log on just to see how Janie was doing! I am so sorry for your loss. I know she fought a good fight she tried so hard but she is resting now. My deepest condolences to you and your...
Charlie I read your post everyday and I can totally relate to what you are going thru I was in your shoes 4 months ago. Unfortunately my husband did not make it but do not give up hope. Lots of us...
I wish the best for you and Janie! I have been reading your post daily and I will keep you both in my prayers. Monica...
Hi Emma, I also said over and over I would not watch my husband die from this disease and unfortunately he did die on April 20, 2012. I know he tried to quit drinking for about a year he finally did...
Iluvhimsomuch Hi I tried looking for you on facebook but I could not. Is everything ok? Monica...
Thanks so much Carol it is honestly the hardest thing I have had to deal with. I had high hopes he could make it. I know he gave it his all and we were both scared but never gave up hope. I do not...
Good Morning Sorry I had not post since Oscar's death. It has just been chaotic. On top of it my uncle, moms brother, passed away this weekend. So now I am also worried for my mom and grandma. It's...
Good Morning Oscar passed away yesterday at 11am. They did a CT scan on Friday of his head and he had massive bleeding. They took him off the respirator at 9pm and his sister and I were with him all...
Oscar has a huge family he is one of 13 children. His mom is in her late 80's and has gone to see him but because of her age and him being so sick they have not taken her again. He has one sister...
He does not have a living will. I did ask the Dr's to please let me know when we get to the point where nothing can be done. It's just so hard to see him with the tube once again and not responsive....
Oscar is still in the hospital he now is back on ventilator he contracted E coli in his lungs. Honestly I do not know what I can do. I want to keep faith and keep strong. Some members of my family...
Wow yes Connie you are right I spoke to them today, he is inactivated and want to do further testing. Don't get me wrong he is really out of it. They are giving him dialysis and it beats the crap out...
Thanks guys for your responses. Yes, Connie the bleeding has stopped since Sunday thank God. He went back on dialysis yesterday for the first time since then. They said they were letting his body...
Good Morning Oscar has been pretty bad this past week he is still in the hospital. The breathing tube is removed but he is very confused and sometimes just looks at you and does not respond. He wont...
Just got back from the hospital and those two ports are still bleeding I have a feeling I will get a call later tonight. Liver doctor told me today his meld score is 36 and it had been up to 40, very...
He is on dialysis and the site where they put the central line and the line for the dialysis will not stop bleeding. They did some sort of angio and put in a stint yesterday to stop the bleeding but...
Hi Everyone I have not been on for a few days I started a new post. Oscar has been in hospital for over a week now. So many things have happened. He is on dialysis since Tuesday, he has 2 ports, not...
Oscar is back in the hospital when i got home from work on Wednesday he was very confused and had a dazed look. Took him in and they think it might be peritonitis but they are not sure. They up'd his...
I understand you now Connie the difference is you have Medicare primary and Medicaid is secondary that is why you do not have to out of pocket anything. But they told him he would have to out of...
He is not eligible for Medicare yet, there is a 2year wait. I'm going to put him on my Blue Shield plan. Medicaid said he would have a share of cost of $2000 before they kicked in, maybe I...
Hello everyone It has been days since I posted but now Oscar is at home and he has been attending AA meetings they want him to go as often as he can. He started taking Xifaxan, oh my that stuff is...
Oh wow Carol It's so nice to hear a good outcome. It is incredible how I can relate with so many of you here at this website. Sometimes I feel no one else understands. My daughter today said that if...
Thanks Pam and Susie for your responses. I am at work trying to respond during my lunch break and yes the reason I would not qualify right now for FMLA is because I just started with this company in...
Good Morning Everyone I have not posted in a few days they have been chaotic! Oscar is still in the hospital. They had to band some varicies in his esophogus that were bleeding. He does good for a...
Thanks Emma Well Oscar stayed at the hospital..he just got out on Saturday!! He has bronchitis and they want to give him IV antibiotics and observe him. They do not think the blood he threw up a...
Hi Emma Yes sometimes coming to work is less stressful! Right now Oscar is still in ER they are going to do a chest Xray and go on from there. He says he is still coughing up some blood but not alot....
Well yesterday was a good day although Oscar did keep coughing and i noticed it was getting worse last night. This morning he text me saying he threw up some blood with phlegm and he felt he was...
Thanks for the advise Ziffie I will make sure he eats before he takes it. He has put on about 10 lbs but I dont know if its water retention his stomach is getting a lil big and he is concerned with...
Hi Koel: Yes please post and let us know what the doctor says about the severe abdomen pain. Oscar has always had tenderness in the liver area of his abdomen but lately he has had severe stomach pain...
Thanks Carol and Emma for responding. I agree there is days where he just seems tired, but not really any pain and those are good days. I told him we are learning as we go and he needs to take his...
Hi Koel Your husband story sounds just like my boyfriends he stopped drinking 6 months ago, but he was already feeling bad for about a year but just ignored the symptoms until his abdomen needed to...
Good luck Connie!! I wish you a speedy recovery! God Bless you!...
Hello Everyone I am not sure whether to start a new subject or continue here. But anyway thank you all for your responses like I said everything has happened so fast. I never thought Oscar could be...
Thank you Carol I'm sure you know that your words give me so much hope. I just do not want him to give up and yes I will be driving and waiting or going back to pick him up. This is definitely a race...
I know that Connie and I will take your advice to heart. Oscar is suppose to go to a meeting tonight and will try to make 3 meetings a week. I'm at work right now and I'm suppose to drive him to the...
That is exactly what Oscar said that he hopes he can make it the six months. They did give him a form that he can have filled out he has attended them before in the past but did not do it in a...
Hello Everyone Well Oscar was released from hospital today. I wish he was doing better but he still gets nauseated and when he got home he threw up, which he had not been doing in the hospital. The...
Thanks Carol All your words are so familiar! I have read Connie's blog and I do not know how she made it back in forth to all her appointments on a medic van. Oscar should be released tomorrow but he...
Hello Oscar is still in the hospital undergoing test. Whenever I feel he is getting better it seems he is getting weaker. He had a colonoscopy done today because he had very bad rectal bleeding...
Ok yesterday the counselor told him she needed to meet with his caregivers and I really did not understand why. This is happening way faster than what i thought I had no clue the caregivers would...
Hi Everyone So many things are happening way too fast, but i think its a good thing. Oscar had to go back to the hospital on Saturday due to his cough. I was sure the fluid was back in the lung...
Yes Connie I believe it was portal hypertension there is so many things I am learning as this disease continues! It is overwhelming and it's very hard to keep composure although it seems that every...
Thank you for your responses. Have any of you had to have draining from the lung cavity? I think the dr is worried it might go into the lung. So of course I'm worried and keeping an eye on his...
Hello Everyone I did not know whether to start a new subject or continue here. I'm still kinda new at this. But today Oscar went to see his doctor and told him it seems the fluid is back in his right...
They did call him from UCSD and took his information and said they would be calling him back for an appointment. Well my older daughter helps me out alot, she helps with doctor appts and such. He...