So sorry for your loss....
P.S. Yes, I still lurk around....I could not have made it through without all of you, so I stop back, check in and post if I think I can help. Thanks you all of you!...
Someone way more tech savy than me please.....there is an article in the Pittsburgh Post Gazette regarding NASH and transplants....interesting. My mom had NASH and ultimimately was transplanted but...
Over the moon!! Keeping my thoughts and prayers with you!...
Hang in there - it was 7 calls for my mom. It will happen!...
When we were in the hospital with my mom going through her transplant, there was a couple there waiting for their second. The husband had the 1st about 20 years before - then was in a very tramatic...
Not sure where you are in PA, but Giant Eagle - in Western Pa - does discounts on diabeties medication. would be worth the call!...
LadyLinda My mom was diagnosed with fatty liver - never drank in her life - 18 months after the diagnosis and transplant - she passed away - not because the liver wasn't working, she could not fight...
Fabulous news!! So happy about the kidneys!...
Be at peace....
Congratulations! I still say that Pittsburgh has the best care anywhere (so I'm from there....so what!!) the TICU people are great...I cannot say enough. Get some rest - if you can - we are all here...
Don't forget to tell him it's okay to go ahead without you. I will be saying prayers for you both....
My mom was dianosed with NASH - she never drank. She was on the "list" within 2 months, and was hopitalized with in 4 and stayed there until she received her liver. Her scarring was minimal. No...
You just never know - got to keep your chin (or in my case "chins") up!! Don't want anyone to be discouraged!...
It took seven times before we got one....hang in there!...
Mom was transplanted in PA - would love to know the dr and nurses you have. they were all wonderful!...
great News Sarah! Tell us which center. I contacted the donor family through the transplant coordinator. Gave her a card and asked if she would pass it along. I never did hear from the family, but I...
What you just wrote was perfect! Please, feel free to steal! I will be thinking of you. I had a couple of nephews who promised to come and back me up if needed....but my mom always said we could do...
I did my mom's eulogy - hardest thing ever - but I am the most proud of that. There really are no words - the person who loved you the best and loved you first and loved you the longest....is gone. I...
it was explained to us that the kidneys fail because they are trying to do what the liver does....we were told that the kidney fuctions sometimes improve after transplant.....and there is no need for...
Sara - just want to be sure that you don't get frustrated waiting...it will come!!...
Mom was called 7 times and she was at the top the last 4.....each time was a little harder, but we knew we were close! Thinking you you and your road ahead!!...
I am sorry for your loss. May you find peace....
My mom received her transplant in PGH - I firmly believe it was the best care anywhere! You will find a great support system and very kind caring people from top to bottom - my mom was there 6...
No No No !! No feeling down - it is just a bump in the road - remember the journey here was not smooth sailing!! You fall into that "we have the transplant everything is good" and you can't!...
Best care anywhere! Speedy recovery!...
Welcome to Pittsburgh!! Hoping your stay will be sucessful!...
Abby - My mom received great care in Pittsburgh. What have you been told is the next step for your brother as far as follow up care?...
When my mom went through the transplant evaluation, the hospital sent us a packet of what to expect and what to do. It was 2 days plus she had an endoscope and colonoscpy on a separate date. They...
I don't think it gets better, it gets different. Some days you have to struggle to put one foot in front of the other....
Mary - Here's my mantra - grief is like falling in love - it's deep, unexpected and personal and you never know how or when it will hit you. Really, are they so different? When you fall in love, it's...
Whoops - didn't finish my thoughts. My family is still in touch with the transplant doctor, a year later. He became such a part of our lives, as did the nurses and the other doctors involved. I think...
David - my mom was 74 when she received her transplant, maybe it was the hospital. Mom was otherwise healthy, very strong heart and clear lungs. We lost her 15 weeks after the transplant due to an...
My mom was put on the list in October, MELD was 13. Hospitalized in June, MELD was 18....week before transplant in August, Meld was 22. Transplant week - 28. It changes very fast and my mom was in...
PG - I get it. This is the second Christmas without my mom. Last year, it was only 3 weeks after she had passed, and I just don't remember anything. This year, it was in my face. All I could do was...
Hello everyone. It's been a year since I lost my mom - and I still come back to the forum to see if I can help anyone as much as I was helped here. I miss her everyday - but I am so thankful for the...
I would give anything to still be caring for my mom. It was exhausting and tough and all of that, but I miss her every day, and I would have given up every hour of every day if she would have stayed...
Hello - just want you to know that my mom was 74 and was transplanted. Unfortunaley, she could not fight an infection. The liver functioned perfectly. My mom never drank, so that is not an issue....
My mom passed because of septic shock as well. We were in great hands, they did explain all of the infection risks to us. They made us wear gowns and all of that to try and keep it as clean as...
I am so sorry to hear of your loss. I lost my mom in December - all I can tell you is that greif is alot like falling in love - it's different for everyone and hits you at unexpected times. I still...
I am so sorry for your loss. Having lost my mom in December, I can only tell you that is doesn't get better, it gets different. I don't cry everyday anymore, but i miss her every moment. Take a deep...
Taz - so sorry - it's only been a few weeks since i lost my mom and I wish I could offer some great advise about getting through, but I cannot. i wish you peace....
My mom passed away on Friday - 26 weeks in the hopital, 15 post transplant (transplanted after 11 weeks there). Wasn't the liver - it was functioning. Just could not fight off the infections. I am...
MYLANTA!!! I am going to ask, the nurses already think I am crazy. Amee - I want nothing more than to have to ask for [i]home [/u] health care !! Since mom has been moved to the step down (but still...
Hi Connie - Wound care AND plastic surgery have looked at the bed sore. They also upped her nutrician which the drs say will help in the care. I think it is going to be LONG time until that heals,...
Hi Amee - I am so glad to hear from you. I have been thinking of you and your family. You aren't kidding about the tough road. It is 19 weeks mom has been in the hospital, 8 post transplant. Since...
Amee I know that I have said this before, but I truly felt we were on this journey together. You helped me tremendously. We sit and wonder why these things happen to the people we love, I think in...
Thanks Connie! You guys are always there for me good and bad! Hopefully, much much more good now!!!...
Just a quick update - physically mom is great. mentally, she seems to be coming back, tqalking a bit, understanding a bit...so she is moving to a step down, we think next week. Good news, but scary...