Yes it was crazy. Words can't explain what I felt. They air lifted him to CHOP from down the shore two hours away. It was scary but thankfully all is good. My mom is still doing well. Her doctor was...
Thanks Connie. In the beginning of June my son broke his neck diving into a swimming pool at my mother's house. Thankfully he has made a full recovery after 6 weeks in a brace. I had to take FML to...
Just wanted to give a update on my mom. She is doing so much better. The medicine is really making a different for her. So far so good. Thank you for all your advice. I knew what questions to ask...
My prayers to you. I have had this fight with my mother in the past. You have to take care of yourself before you are able to care for others. Best of luck with Al-Anon and I hope it does help....
Thank you!...
I have bigger things to worry about than grammar at the moment, if it offends someone so be it. In the grand scheme of things...this is nothing. Be happy and let things that really affect (is that...
The doctor (hep) said she isn't well enough for a biopsy yet. I can only assume they are waiting for things to calm down. I have asked all these questions. I have read, read and read some more here...
Your welcome Connie. This is very frustrating....
I have to comment on this because I know I am an offender of grammar errors. I went to Catholic grade school with Nuns that would hit you with yard sticks and tell you to correct your grammar. Maybe...
My mom couldn't make it to the doctors on Thursday because she was so sick. My step-dad is going to get her blood work with the Creatinine included. Another thing I noticed on her discharge papers...
Mr. X, I am not good at giving encouragement but felt the need to respond. As a person who is caring for someone with this disease I cannot begin to imagine what you are going through. Sometimes...
Hi Cathy, I have seen the confusion first hand from ammonia levels can cause. She should be fine once they get them down. I hope they take her out of the mental ward soon. I imagine they are keeping...
Thanks Connie! I wish I could go but I want to save my time in case she doesn't feel good or if she goes back in the hospital....
Jedajo I am glad things are looking good....
Hi ladies, no I don't have her creatinine results. I was looking over the papers yesterday and did not see it. I am going to have my stepfather ask the doctor about that on Thursday when my mom goes...
My mother falls into that category. She contracted Hep C from a blood transfusion when she had an emergency C-Section with my brother 37 years ago....
Thank you. I didn't have something to compare it to. I am going to suggest a biopsy....
That is what I got from those results. She goes back in on Thursday for a follow up and I will make sure these results are discussed. From what you know about the test results how bad does her...
I was reading my mother's discharge papers over the weekend and something didn't look right to me. Now remember they told us her liver looked find last week. Listed under tests was RUQ Ultra Sound...
They have taken her off a few of her meds also. We are just waiting now....
Moms ammonia levels are down. They are doing a DaTSCAN on her today. I'm pretty sure they have no clue what is going on with her. They are saying after having the MRI of her liver done that it looks...
sara you have described my sister to a tee! I feel for you! I can tell you with my sister anything that takes away from her being the center of attention, know matter what it is, makes her pissed....
sel0409 my prayers for you and your mother. She does sound like an angel. You seemed have been blessed with a very special lady that you call mom. hugs...
After talking to her doctor my mom is heading back to the hospital today. They are doing another round of test to try and determine what is going on....
Mom got her MRI of her Liver back and they said it is fine. No scaring, smooth and no problems. She is going to go back into the hospital tomorrow for another round of test to see if they can find...
The only news right now is that she is vitamin A deficient. Still waiting for the MRI results. I'm praying that her liver is okay but that thinking what hell would cause her HE levels. I don't know...
Sarah that is wonderful news! I am so happy for your mom and your family. My prayers that all goes well. Congratulations on your mom's new liver! So nice to hear that news!...
Thank you Connie. She is having the MRI tomorrow. Not sure when the results will be in. Thank you for checking in....
Thanks Connie, me too. I have never prayed so much in my life....
Thanks for the laugh. I needed it. :smilewinkgrin: Not sure if it's a PET scan but I don't think so. She is getting her MRI on Wednesday....
Went to see the live doctor and she thinks my mom has Wernicke's encephalopathy. She will know more after they do an MRI of her liver. They are also going to do some type of brain scan which will...
Thank you. My mom mentioned bleeding from the frequent bathroom trips and was wondering if that is something I should worry about....
Thank you Carol. My mom is about two hours away from the hospital so I will ask about those also. You mentioned bleeding, from where?...
Carol thank you for that question. That is what I forgot to ask yesterday. I have had two arguments with my step-dad about my mom needing to go to the hospital. I will ask that for sure!!...
Hector, Reading your post gave me chills. Thank you for your knowledgeable questions. I need to ask and don't want to be side tracked during the visit. I am hoping I really like her. I told my mom...
Ashleyba...my prayers for you and your sister....
My mom has already received an appointment for tomorrow! I am so relieved! If anyone has questions I should ask the doctor I would appreciate it. I am sure after the appointment I will have a ton...
I am so sorry for your loss. That is too young. It's a shame medicine doesn't move as quick as some of these diseases. Thank you so much! You do understand. I sometimes think nobody knows just how...
It's a she and yes she is! She works on the liver transplant team. I am so relieved! It's like a weight has been lifted off my chest....
Yeah! She is going to be seeing a great doctor at Jefferson. He is going to get her in ASAP! He is going to go over all the test they did in the hospital with the new doctor. I am beyond thrilled!...
We are getting her one. I am looking at two major hospitals here in the city. I won't even go on about the GI doctor. What an a$$ he was....
He actually did know it was HE but the GI doctor said it wasn't. The neuro guy was pissed. She is going back just for a follow up for the stroke I think. I am going so I will find out....
Connie when she first went into the hospital they thought she had a stroke and the neurologist that my father saw was there and took care of my mom along with a GI doctor. They weren't sure what was...
Carol this forum has helped me already. I appreciate the people here that have gone through hell to still be here helping others. I will keep all of you in my prayers. Susie my mom lives in NJ. She...
She is good right now with her level that high. Last week she made me a little nervous but hopefully starting the new medicine it will help. She is going to her neurologist on Tuesday and I am...
That gives me hope. I will never give up on my mom. Thank you!...
I have been reading here non-stop today. I am trying to gather as much information so that I can ask the right questions on her next doctor visit. Yes, her ammonia level was 170. She has forget...
Yes Connie, she has the most difficult to treat. Not sure if it's 1a or 1b. I hope her levels go down. Her blood work that she had done of Monday came back at 170. When she was in the hospital it was...
I found out more. My mom is in stage 2 of hepatic encephalopathy. It's like pulling teeth to get answers. She has another appointment on May 3rd which I am going to and will be asking a lot of...
Thank you Sara, I pray that it helps her. The worst is seeing her get upset when she is confused and scared. Connie congrats on your transplant! I am glad it saved your life!...