We are so grateful to finally get "the call". They say you'll get it when you least expect it and nothing could be further from the truth. I had actually decided to wait until the next day to wash my...
Thanks mama. Will try to start a new thread....
Didn't know where to post this but we got 'the call' Monday night about 11pm. they had a donor liver for Harry. Had the surgery tues. about noon and he's doing well except as of last night they...
We have a Yorkie and actually got him because they don't shed. We keep him in a manageable cut. We tried to keep him in show cut when he was really young but it's way too much work and he was very...
One of the things I've read is no kitty litter and no bird cage cleaning....
You guys are all so helpful and informative. This is great. Even though it's not been idyllic these last few years with a year of hep C treatment (for a while they had him injecting interferon daily...
Your friend must be high on the list too. My husband is 0 pos I think. I did check with the med flight and they said I could take a couple good size suitcases. I'm planning to take 3 pieces of...
great suggestions. I didn't know they'd want me so much after transplant. I hadn't thought of that part. I hope they give you written instructions too. Terri...
We just got back from Vanderbilt in TN to our home in FL after my husband's 6 month checkup since being listed for tranplant. His meld has gone from 21 in Dec. to 22 in Feb, back to 21 in April and...
Hi Lisa, My husband is currently listed for a transplant through the VA with a meld of 22. There is a VA transplant coordinator in Orlando. It takes a while to get through the process to get listed....
Hi Sunflower, Sometimes my husband gets pains like that and it's his gall bladder. They tell him he has gallstones but they won't do anything about it until he gets his transplant. The doctor said...
I hear ya. With the HE hubby still gets quite upset even though we don't enable....
This was a little more than the petty 'who did what to who'. This was more like the 'I'm in jail' call. Should have raised puppies....
Thank for the link - This site seems a bit easier for me and I like that I get email notifications. Today was kind of a rough day for hubby. He woke up around 10am and by noon he was back "resting"...
Angie - My heart hurts for you. If it weren't for my hubby being on the list I don't know what I'd do. At least we have some hope. Otherwise I feel like I know what alzheimer's caregivers feel...
I love seeing the notifications in my email. Is there a particuar forum(within the Hepatitis community) that seems to get more activity than others...
Thanks everyone for the warm welcome....
(((((((((mamalama))))))))) Your post made me feel so understood. The team at Vandy said physical recovery can take as long as 18 mos. post TP. My husband hasn't driven since about Oct. last year...
I'm not sure what ESLD is. My hubby still knows who I am - his confusion is more subtle than that - such as getting the news just a little mixed up or being a bit inappropriate. He used to be able to...
Vanderbilt IS in TN. We're in FL. VA only offers Liver TP in 5 places and we had our choice of those and chose Vandy. The VA TP team there is the absolute BEST!!! Just wish we were closer. :(...
Good to know about the Xifaxin. Will look into it. They explained the size/blood type thing to us when they listed him. In Feb. he was told he was in the top 5 for his blood type and he's pretty...
I did know he could be listed at more than one place IF we had private insurance for him. He does take the lactulose for his confusion. It helps somewhat. He's better during the early hours of the...
I don't know that my husband's ever had an ammonia level test. Is that something they do routinely? He just gets his meld tests monthly. He's listed for Txplnt at Vanderbilt and coming up to his 6...
Hi - I just found this website and forum and am so grateful you all are here. I am the caregiver for a husband who's been listed for a TP at Vanderbilt through VA since Dec. 2011. He's had hep C...