I haven't posted in awhile because the idea was just too painful but I thought I should update you. I haven't read the latest posts on my other string because my father passed away on 8/11 due to an...
Docs think dad had a rxn to platelets yesterday since his blood #s are better today. They took him off bp meds. They were going in this eve to put in the chest tube to drain lung fluid. The doc wants...
Before I give today's update, I want to say thank you. I needed a little reality check. We are so incredibly grateful for this precious miracle and will not waste it feeling sorry for ourselves. That...
I just have to wonder...is it all worth it? If recovering from transplant takes 6 mos to a year, or longer, what is life like during that time period? What sort of life will he lead, and when? To...
Blerg. Doing good again today, things moving forward. Except they had to put vent tube back in :( We're all pretty bummed. Especially dad....
Dad had the vent tube pulled out this morning! He smiled for me 3x and is following commands regularly (wriggle toes, squeeze hands etc.). His blood pressure is high today, but they are hoping its...
Pulling for you Charlie!...
Hello, Thank you all for your kind wishes on the "new member my dad's story" thread. I thought I would start a new thread now that we are post-transplant. Immediately after transplant yesterday, as I...
We got the call yesterday afternoon. Came to hospital and signed consents. It was an extended criteria donor but surgeon called me at 1:30am today to confirm proceeding. Dad started surgery at 7am....
Meld over 40 now. But no positive cultures for a week so they re-activated him on the list! Head of GI said the call could come tonight or next week. No way of knowing....
Thanks for your support everyone! Dad's still in icu. Meld up to 39 yesterday. Still on breathing tube. He has a bad infection and started in on septic shock. They did a bronchoscopy and sunctioned...
A lot has happened since my last post. They botched a paracentesis and dad started bleeding. A lot. He received 12 units of blood over 2-3 days. They put him on the transplant list at meld 30. They...
Go Amy! Where are you? My dad went up to 29 yesterday. He's in icu. Praying they put him on the list....
Angie good luck! I too refuse to bring dad back to the nursing home after their fluid restriction nearly killed him. They stopped their therapy. I sure as shit can feed him and take care of him at...
Friday I met dad at his gastro for his checkup. He was wheeled out of the transport van and looked like he could die at any minute. His gastro saw him, said he should be admitted to the transplant...
yeah his gastro always told us that we had to go thru him for transplant and i just found out that i could call up the transplant ctr myself so i did that. the ctr is the U of MN. i just got off the...
thank you so much mamalama! dad has a gastro appt on friday (just his regular gastro) and i will ask about the xifaxan. the He is subtle but def. noticeable at this point. i also want to ask about...
My aunt turned me on to this forum. I've checked it out recently and now I read it every day. Here's our story... My parents met when my mom was 15 and my dad was 16. They got into iv drug use. My...