Hello fellow survivors and everyone else who reads this thread. It is now over two months since my husband passed from ESLD. So much has changed. It's funny how the world keeps spinning and how the...
Thank you all for your thoughts and prayers, and candle lightings! I really appreciate all your support. It's been two and a half days since my husbands passing. I feel like I'm in a fog. Everything...
Hello fellow posters: My husband passed this morning at 11:00 am. I am so glad he is out of pain and is at peace. This past week was extremely difficult, seeing him in so much pain. After taking...
Just received this via email, and wanted to post here, via her request. "Tried to POST on Hubby Update...nearing end. Near end of post, I could not correct nor type anymore. I have hep issues,...
Hi everyone. Thanks so much for your prayers and concern. I appreciate all the information, comments and sharing. We had a pretty good night. The hospice nurse who came at 4:00, basically swept into...
Thank you every one for being supportive and being here for me. My husband is still with us, although his condition is worsening. We had an extremely difficult Sunday night, he was having extreme...
I noticed my above email did not include my "signature" for reference. I'm adding this post with signature for all to see my husband's conditions. Thanks!...
I'm sitting here on my bed, next to my husband as he breathes with a deep gurgle in and out. He had a bad "health episode" last Friday evening and has not been the same since. He now only sleeps,...
Alisa, I am also so sorry to hear this news. Your perseverance in the face of ongoing adversity was inspiring and admirable. Please be at peace and know that our thoughts and prayers are with you and...
Yes, he was taking Lasix and Aldactone at the same time, but smaller than usual doses. He still ended up in the ER with an IV in his arm. His stomach is swollen some, but I wouldn't say it's too bad....
My heart is so sad to hear about Angie's husband passing. I know you hard a long hard road, Angie, and this must be so difficult. My heart breaks for you and I pray for strength for you in the coming...
Angie, I am so sorry to read of your husband's passing. It has been a long hard road, and you have been an inspiration for me with your patience and insight. You have fought the good fight, and now...
Hi Angie! Hospice has been an exercise in coordination and patience. Also, when we started Hospice, I think I did not know what to expect and may have had unreasonable expectations as to what...
Nope. We live one floor up from street level in a condo. Only one door in and several windows one floor up. And I'm not exactly athletic....
Hi NEH, We had a bad case of HE crazy several weeks ago. My husband was also screaming at me, yelling odd things standing on our porch where the neighborhood could hear him, accusing me of hitting...
When I see that ad, I always think of Ziffle, too!...
This whole thread is very disturbing. I'm hoping that Normann is just the kind of guy that likes to push people's buttons and is getting a chuckle at all of our expenses. If not??? The alternative is...
Sandia: thank you so much for your words and prayers. I'm so sorry your Mike has passed on and how hard this time of year is for you and your daughter. Your experiences are helpful to those of us who...
I appreciate this honest, open, respectful and transparent thread. It has given me a lot of food for thought and has allowed me to get to know some of you better. I want to let you know that I am...
Hi Angie, Thanks for sharing the explanation of "process of dying" and "actively dying". It does make a lot more sence. I also have heard that some people are released from hospice if they stabilize...
Hi a. ziffle, Please forgive me for being inconsiderate to all of you brave souls who are fighting and who have fought this terrible disease successfully or not so successfully. I forget that not...
Dear Angie, I know EXACTLY how you feel. My husband is also terminal, in a lot of pain and recently was admitted into at home hospice. He also has made his peace a long time ago about passing on. But...
Praying in Calif. get some rest and stay in touch hope all turns out well....
Thank you for your above post, A. Ziffle. Nice to think about that different perspective. Don't think about being in those shoes too often when all hell is breaking loose around you. Actually had a...
Wow, I don't know how those of you who are ill manage to do it all yourself. Even my husband says if it weren't for me, he doesn't know how he would get along. Kudos to you, you have my respect. My...
Gosh, I really feel for you Angie, and all you other caretakers going through this. I can relate to everything that's been said lately. Especially when you said how you felt like you were just...
Thanks for all the support and your experiences. @mama - the procedure sounds interesting and worth brining up. I, however, have a sinking feeling that my husband's general overall health precludes...
Hi folks, I posted here about a year or so ago, and all of you were such a big help getting me through my husbands HE symptoms. A quick recap: my husband was diagnosed with ESLD, cirrhosis and HE...
Thank you so much Carol, Angie and A Ziffle. It helps to know that I am not alone. I do have the same feelings of "not putting up with anyone's crap", and it is not easy to just let these things...
Hi Angie and everyone else! I'm interrested in the conversation regarding how to deal with spouse's being non-appreciative, saying rude things, and being down-right negative and mean. Angie, I know...
Hi A. Ziffle: Yes, we do have cell phones. He did call me from his cell and I was trying to guide him via phone to the office that day.... "yes, that is the '700' block, you need to walk one more...
Hi Connie: I would consider him borderline drug abusive at this point. His GI dr says that the narcotics he takes would put out a horse. And yet, they only give him mild pain relief. Yesterday he...
Hi Connie: Well, it is a bit convoluted and complex, but the liver transplant specialist won't even schedule another appointment with my husband until he has been tobacco free for one month. My...
Hi guys! I hope you all had wonderful Thanksgivings. I just read through the last several posts and was actually laughing out loud. A nice thing to do, as I don't do that very much any more. Its nice...
Hi Mama and A-Ziff: Thanks for your responses. My husband is already taking lactulose, Xifaxan and zinc sulfate for the HE. Sometimes the meds seem to be working fine, other times, not so much. When...
Hi Pat and Emma: Thank you both for writing. I'm so happy that I found this site, everyone on it is so supportive and understanding. Yes, there are days when I think I'm going crazy. I thank my lucky...
(originally posted under "Caregivers", was told more people might see it here) Hi everyone. I am new here, just joined today. But I have checked the site out on and off for the past 6 months or so. I...
Hi everyone. I am new here, just joined today. But I have checked the site out on and off for the past 6 months or so. I decided to join, as I am just about at the end.of.my.rope and my children have...