I remember about Mike, he was transplanted in Miami FL about 6 months before my husband. It brought me hope. The VA in Pittsburgh is amazing! My husband is great! Of course this has changed our lives...
Hi everyone, it's been 5 1\2 years since my husband's successful transplant at Pittsburgh VA medical center. He is doing great, and his only issue is now he is highly diabetic. I now have e a very...
Being a Care Giver for a Patient with many different diseases. is a TOUGH job. Most people think about the Patient . ."Oh Poor Joe" "He has Alz. and doesn't know whats going on". Let me tell ya, it's...
Carole, the VA Medical Hospital or Clinic nearest to you should be able to get you the paperwork you will need to apply for help from them. If the patient is not "Service Connected" it's based on...
HE side affects and severity is different in every person. For some patients, Ammonia in the low 100's, and they are fine. When my husband got to 90 . .he would get arguementative. over 150 and he...
My heart goes out to you as I admire your strength and dedication! You are so right about it being horrible . . everything to do with Liver Failure is horrible!! I'm sure Hospice is doing all they...
I thank God every day for the VA . .at least we don't get bills from them!! I am still fighting for service connected and back pay. plus the $ I was supposed to get for taking care of him during his...
My husband got he virus from the gun, and the VA paid for and continue to pay for all of his medical and medications. but will not consider him service connected for disability!! Debbie...
Angie, your strength and love shines through!! Thankful that your husband went peacefully. We all will continue to be here for you as you have been here for all of us!! A celebration of life is a...
Went to PA for the one year anniversary Feb 8!! There are some concerns about sugar/diabetes and kidneys. He never had a sugar problem before the surgery and for about 6 months after. He took...
Claudia, I've called you a few times and got Robert . .then he butt dialed me a few times. I'm sorry things are not going as good as they could. My husband is one year post transplant and is on 5mg...
Angie, Do you by chance know a David Mendez . . he was with Ringling Brothers for quite some time. I'll check the spelling of last name, but I'm pretty sure thats it....
With a heavy heart, I wish you continued bravery, patience and love! Prayers being said for you both! Debbie...
I cried a river of tears because Phils MELD was so low for as sick and bad off as he was!! It got high real fast once it was in the high teens. Getting all the things done to get on the list takes...
Tomorrow we get on the plane and head to PA for Phils 1 year check up on Friday!! Feb 8th is our day to thank God and all of the people near and far that helped us through the good and bad!! I won't...
Glad to hear more great news!! It truely is a blessed day!! Congrats Ziffle and family . . Debbie...
Its already been said by many who have already replied . . go to Al-Anon, the counselors there will listen and advise, and you will also meet people there in the same situation. People you can talk...
Densgirl, the emmotional roller coaster is a tough ride, and it sounds like your positive attitude will always win. it's hard . . . I remember well. I was at the VA sooo much, I would run into Phils...
My husband got a call today from a guy he was in Alcohol counseling with. He called to see how he was doing. My husbands Dr. couldn't tell him anything, so he made many attempts while we were in PA...
Amy, you are sure right about the holidays . . . . 2011, Phil was in such bad shape from HE and dehydration, we really did not think he would make it. We actually celebrated what "could be" his last...
Wow Carol!! I sure hope things get better for Mike! Can't they do anything about the heart? The news about a new HepC drug is good. Phil is going to have to have the treatment too. So far things are...
my husband went thru stages . . . couldn't eat enough mangos for snacks, and shrimp any way they were cooked he loved them, he ate so much chicken he got tired of it. Post transplant . . no tomatoes,...
My husband was only weeks from death when he got his transplant.It was a tough time for all of us. He was 240lbs of muscle, 6'4", a communications lineman, that climbed utility poles, worked 12 hrs a...
The TIPS procedure saved a good friends life 9 years ago! Her and her husband moved from FL to TN, and although we have stayed in contact, its not like when we were all in the same town. When Phil,...
Best of luck to you both Lisa!! let me know if there is anything I can do for ya!! Debbie...
Lisa, If I remember correctly, you husband was already recieving benefits from the VA. He should have a VA card. Take it in to eligability and tell them you need to update it, because you no longer...
The TP team told my husband (tested positive for THC from smoking pot 6 months after he quit smoking) that smoking of any kind is toxic to the liver. He almost was not listed due to the positive...
The healthier a person is before transplant makes a difference on the recovery of course. I was at the TP facility w/my husband for 3 months, and saw alot of people come and go. My husband was on...
God Bless her and know that she is in a better place now. With her in your heart, she will forever be with you!! Debbie...
Hi 87, Welcome. One of the moderators will be along soon. I am truely sorry about your Mother and that you are going through all of this. It sounds like she knows if she drinks she is going to die....
I have soo much to be thankful for . . . last year Christmas was depressing due to my husbands health. Even with a positive and hopefull attitude, it was hard to be in a celebratory state of mind!!...
Ongoing, There are many VA Facilities in FL. Connie is right, Miami has a big one and they are building one down by Ft myers, right now its just a clinic facililty. Bay pines is in St pete, Tampa has...
I have numbness and tingling in my right shoulder, arm and hand due to 3 herniated discs in my neck . . its also very painful in my right shoulder . . when I went to the ER about it, they gave me a...
My computer is not working properly . . . there was a message before those 4 letters!! Lisa, if I remember correctly your husband is military. I encourage you to go to the VA in Atlanta and try to...
ouou...
We are getting close to my husbands 1 year celebration of transplant, and life!! We will be taking our last trip to Pittsburgh, and if its anything like the 4 month/ drain tube removal, it will be...
OMG!! 366 is really high!! Is he coherent? My husband slipped in and out of "coma like states" when his Ammonia was out of control. Towards what would have been the end, the last 3 - 4 months before...
Tampa General Hospital is the transplant hospital in the St petersburg FL area. Claudias husband had a transplant there. . if FL is your choice and your family is in st pete, its 30 minutes to TGH...
Thanks all for the support, and didn't know that about the thigh David . . thanks for that info!! Me and Dad are going to file the charges tomorrow afternoon!! The guy is scrambling like a rat when...
Phil had been opened back up @ 3 weeks post transplant, so he was on pain meds longer than most, but since he left the TP hospital he was given Tramadol, and doesn't take them either. Hope the pain...
Hi claudia . . i'm up in CedarKey . . some crackhead has been scamming my Dad out of thousands of $'s and I'm up here taking care of that and making sure he goes to jail. Great news that Robert is...
I got tested, mainly because I was interested in blood donation @ the VA, as a way to give back for all they did for my husband, and was negative, and now donate blood every 2 -3 months, alongwith...
Wow!! I'm sorry I missed all this. I was working @ the Supervisor of Elections Office, 13 to 16 hrs a day. It was supposed to be every other day, but they figured out I could count and asked me to...
Wiil do Connie and good luck!! Debbie...
Calypsa, His sodium level being 120 means he is severely dehydrated . . the doctors should have him on a saline drip . . . a very slow drip. so it hydrates instead all going to the belly!! iWhen your...
Angie, I feel your pain . . about the job/cash flow. After returning from PA, I went back to work @ the restaurant, and I must have been in my own little world before I left ,because the people I had...
Amy, So much could change very quickly. . .hopefully it will all be for the good, but the journey you have had for the last year, a very bumpy road . . if you can afford it, step back and breathe....
I was responding to someone elses post about my husbands health 8 months post transplant, and thought I might as well share it as a new topic. Most of you know he was on deaths door and in a "coma...