Hello to all, I would be happy to share our journey with Sovaldi/ribiviran.. We went to New Orleans Tulane Univ. for a transplant follow up. This had just come across his desk for geno type 2...
Hello My husband and I are at Tulane university clinic. They are starting him on this medication. What do you know about it? Is it true that it can cure him ?...
Thanks to you both, It does seem odd to us that we get a call from the doctor about this and not the nurse. He never calls... Well we will see what is the issue feb 10th.. I do know that on his right...
hi Deb, My hubby uses this RX and we have blue cross blue shield.. does this apply to us...
Hi its Caregiver Butterfly422, Hubby was seen at least 3 weeks ago for upper abd pain and had blood work and ultrasound done. We were told by the doc nurse all seem ok nothing unusual that needed...
Thank you for your thoughts, Yes he has GB... I bet that is it!! As I was looking online and they kept saying that as well.....
Hi butterfly422 Hubby was up half the night with major pain In upper Rt abd. We were headed to ER When the pain begins to Ease up so he wanted to return home. Any idea what it could be with ESLD? HE...
hello to all, Well some of you may remember me and some will get to know me..My Hubby is now on the stronger Med for ammonia (that expensive one).. He is just so tired all the time.. He has gained so...
Got it.. thank you will keep you posted....
yes, he is clean and sober for 15 yrs. Its not cramps but piercing pain... its like he is being stabbed he said. His legs are also burning......
Hi, Butterfly422 here, Hi guys. It's been awhile because things seem to just be going as usual. He sleeps so much and lives in the potty room.. My poor hubby. He is still working but we are trying to...
ok this is good information as always...I will keep you posted on his condition. This morning he is up and going but moving slow. I love this forum.. such a blessing to all of us.....
Hi Mae, Just curious.. what causes pain there......
Hi Themiz, The appt went well, we changed doctors during that process as well. The pain is his whole upper abdominal area. This has been going on for about 4 weeks now but its becoming unbareable. He...
Hi to all I havent had much to add lately until today. Hubby is in much pain in the upper part of his tummy... Its very sensative and he is so sleepy. I am currently trying to get in for an MRI so...
Themiz, You describe them as if you are looking at my husband legs... Now if we can just figure out what exactly is causing this... He is going crazy scratching them,.. We have a doc appt on June...
Hi Denverdoni, That is exactly what I am describing....do you have any idea what it is??? Thanks...
Sandia, I issue credentials to drug counselors for Louisiana, what state are you in...? Butterfly422...
yeah.. I have seen those but this is different.. its just odd how they popped up all of a sudden.. a bunch of them...and itching so bad. Well I am sure the toxins are doing this of course......
hi to all, Have you ever had places on your legs that were small like mosquito bites except they were flat with a light tan color? Hubby has a bunch of them from the knee down and is itching like...
GOT AN ATTORNEY MEET HIM NEXT TUESDAY....see I listen to yall.... lol. I will post what information I get. BTW...this process is very expensive too... dang Thanks so much......
I must say Ziff, you got my attention with your post.. I guess that is why i get an attorney now to make sure things like this do not slip through the cracks....... Thanks...
Such great information... thank you so very much for that insight....
you all are simply wonderful. This morning he gets up and is back to "normal" getting me up at 5am ready to go..LOL after I stayed up half the night doing house chores. He is simply wonderful. Yes he...
Not sure what happened but I am digging into it . We weren't married when the house was bought so I am thinking he assumed it was a part of the actual morgage insurance . I know he thought he would...
thank you.... i am a simple lady... this is simply not simple. I just found out our home will not be paid off in the event of death. I got him a hem doct appt on 24th... hopefully i can learn more...
ok... nevermind.. its obvious he is stage 4 and grade 4...He is still working just with challenges now.. I think I just cant except where he is at. I keep looking at whats being said and I want to...
ok family, I am a real simply young lady and I think the same way too... I am confused again... What do i ask the doctor.? What grade is the Hep C? When they did the biopsy he said Stage 4 Hep C with...
The reason why i needed clarity is because he is definately ESLD.. but gosh after reading so much of what is happening here my husband doesnt seem like he is that sick... I hate to imagine it getting...
ok Is there four stages in both... or when they say stage 4 they mean both? I really understood him to say he is in stage 4 of his hep C... now I am confused about Cirrosis... Can you help me to...
Thank you so much for the tip... I am all over it....
Thank you Themiz, I just called the doctor and I am waiting for them to call me back so that I can understand where exactly he is after the information you gave me.... That was great info and thank...
yes you did give me a great response and made me feel so happy because I could tell you completely understand my position. :) We went to Tulane a year ago and was waiting to hear back on the Meld...
Just wanted everyone to know where I am in case you have any suggestions on where to go for help or recommendations for doctors....
Themiz, how is your husband now?...
Hello to all.. I am certainly going to check into all the options you have mentioned about the blood. They didn't do a colonoscopy because they said he just had one about a year ago and that was...
the email is correct.... not sure what happened...
Hi Connie, I can relate to so much of what you say. You even chat about what its like after. We have been married for 3 yrs and were simply friends/coworkers for 7yrs.I cant imagine what life could...
Connie, I am interested at the stay at home work... any ideas on bringing in income?...
This was great... I cant tell you how much all this information is bringing some comfort to me. I am VERY interested in the at home work online... Please help me with this. I am looking at ways to...
Wow to all of you Thank you so much. For the first time I have others who understand what I am going through. My husband understands but doesn't know how to help me with the feelings this presents to...
he has been clean for 10 years and is 57. how long does someone live at this stage...
I thank you for your input. I am definitely going to take your advice on the record keeping. We have basically excepted the end result of this because the doctors aren't offering much instead. We...
yes we have insurance for now. Once his job gets wind of this disease he wont for long. I know about Cobra but you have to be able to afford it. We have seen specialists and it seems as though they...
Thank you for the warm welcome.. My husband used intravenously for almost 20 plus years. He was dx years ago before we met. He did the treatments for 4 mths and thought he could stop and never got...
Hello to all.. my husband is in stage 4 and things are beginning to happen. He is not able to receive a transplant and I am struggling day to day wondering what to expect and when. I am just openin...