PPM & ZIFF ... I love your wit in the face of uncertainty. PPM - I'm so sorry your brother is struggling with HCC & that TP is no longer an option. I'm always impressed with the caregivers who post...
I'm checking in after a long absence. HE was bad, better controlled now. My marriage ended, he couldn't deal with me being ill - I've been able to heal from that considerably. So sorry to hear about...
Hi Susan - used to follow your posts a few years back. Very happy to hear you're doing well. Your post is very encouraging....
So glad I checked in and saw your post. WOW It must have been pretty traumatic and I'm sure a long, exhausting and difficult road for both of you to get here ... but wonderful news. Hope you have a...
Hi guys. Haven't been on a while ... encephalopathy was getting rough. Wanted to share the latest to see if anyone else has had a similar experience. Maybe could shed some light, give advice? The...
Barry thank you for that ... it's what I need to hear!!! Themiz ... I think the certificate is for medical emergencies or perhaps for situations when working with the public. (If I could go back to...
I finally got the good news this week that the Hep C treatment (Harvoni Ribavirin) worked and I'm undetectable. They explained it to me that unless I was to get re-infected, I should never have a...
Just wanted to clarify ... decompensation issues refer to me having advanced cirrhosis called decompensated cirrhosis. It's easier for the liver to recover from compensated cirrhosis than...
I'll try and answer some of the questions. .. I'm happy to be close to the end of treatment. .. it's been so easy compared to earlier treatments. My hepatoligist says there isn't enough data to know...
I needed to hear this SO MUCH!! Thanks for sharing....
Your story is similar to mine. One and a half weeks of Harvoni treatment left. Won't know results until October (they don't test for viral load until 3 months after treatment here). On disability, 58...
Amazing! Congratulations....
Worrydaughter ... I just read through your posts to have an idea where your mom is at health wise (I'm not on the forum as much these days). You did ask why they're doing Harvoni and Ribavirin ......
Yes I am overwhelmed with gratitude these days. This is truly life changing. The timing of it was right down to the wire for getting coverage before the blue cross decision. Even with government...
Worried daughter. My hepatologist's clinic put my name forward in February....
I have found that my liver disease triggers night sweats for me, too. Eating the wrong food or not getting enough sleep ... there are lots of "triggers" ... for some women menopause just goes on and...
Well, right on the heels of Alberta's Blue Cross adding Harvoni to the Alberta Drug Benefit List ... I got approved through a compassionate care program offered by the manufacturer. I start 12 week...
I recently put up a post that coverage for Harvoni was added to the Alberta Drug Benefit List in early April of this year (approved for cost coverage). This means anyone on Blue Cross can now get...
Please give note to edits I made to this post....
Thought I should clarify ... this post means MOST drug companies will now cover the COST of Harvoni treatment in Alberta. It has been approved as a treatment for a long time but most drug companies...
Finally! So happy to hear things are improving, ML....
just waiting for final confirmation but I've been approved for Harvoni with Ribavirin for 12 weeks. My funding came from elsewhere ... but thanks for the info....
ML ... you have such strength. It's incredible how you stay focused and positive. Mike is a very fortunate man to have you by his side. You're both in my thoughts and prayers. Specifically that...
Thanks for this post. Hope they find out the cause of your pain soon. Congratulations on undetectable. ... I'm starting Harvoni soon so this is good info for me. Keep it coming. ;)...
Yes that's the study. Thanks for the link. Many questions to be answered before going ahead but it could be a very good thing ... less invasive....
Sorry for the yucky subject but I need to know more about this if anyone has experience with it. My episodes of HE are not well controlled ... so the liver clinic is suggesting a fecal transplant. It...
Can relate ... you get a double whammy from the HE ... it can bring manic up ... I don't have bipolar but have experienced similar symptoms after HE. Try putting lactulose in herbal tea or smoothie....
I can't even begin to imagine the stress or disappointment you and themister are experiencing. It sounds unusually cruel. You are both in my prayers, for rest, peace ... and favour with the decision...
Hello ... it's been a while since I posted. Just wanted to give an update. Currently ordered "no driving for 3 months" ... had an HE episode while en route to hepatologist appointment ... during rush...
I'm in the same boat in Alberta - Edmonton area. My coverage is Alberta Works which is the lowest of the low for coverage ... it's for folks with very fixed income. So my wait may be long. I think we...
lostson ... crying tears of joy for you and your family. So glad he got his second chance. From what others have said things should calm down as they adjust his meds and like David said, he recovers...
ML I am so sorry to hear about Mike's symptoms. It's mind boggling all the hurdles you've crossed and then this. Absolutely ridiculous how those Medicaid changes affect Mike's situation. I hope...
I've read that to truly test for HE, they should be doing cognitive tests too. But they don't ... ... I've also read articles that indicate seizures are part of HE, although uncommon. I never had...
Just had my usual 3 month checkup ... doc says Sovaldi and ledispravir is the next step for me and in Canada it should be approved within the year. Maybe even by January. He says they will help me...
When my get coverage for Xifaxan was cut, they tried me on Flagyl. It worked better for me anyway. I don't stay on it continually like I did with Xifaxan. I do stay on Lactulose continually though....
Tracey ... thankful for you that it was peaceful and that you made her last days somewhat bearable. Sorry for your loss....
"Recovery groups, AA, etc., are fine, but they will not make me stop drinking." It takes a new way of thinking to overcome addiction. It takes humility and courage to admit alcohol has too much...
Waiting ... I am so sorry for you and your sister. It is absolutely heart breaking. I think it was ML who said we should have an "opt out" instead of an "opt in" system for organ donation. Wish you...
I thought because I've been on treatment 4 times for Hep C in drug study trials that I'd done about all I could for research. One of the drugs they put me on years ago was Interleukin ... which they...
Alantra - I just want to say Bless Your Heart for taking care of your cousin. You must be quite close to take that on ... and it can be extremely exhausting and challenging to be the caregiver. Thank...
"I think the biggest hurdle thus far has been the mood swings. He goes from Happy, to sad, to mad to positive, to depressed. All in one week! I think that is a big thing for people to know as a...
Very happy for you Allen. Have been avoiding the forum myself, trying to stay healthy and not think about treatment ... bouncing between HE and none. Yours is very good news indeed. I'm with you on...
Thanks for sharing this interesting info. It appears to be an attempt to level the playing field. It won't solve the problem of too few livers. I don't know the donor stats in the U.S. but in Canada...
I also want to say well done!! For myself, they put me on Flagyl which my plan covers. I was on it for about 2 months ... and it worked way better than Xifaxin. I feel better than I have in years....
Sandia, in my case I can't go back to work part time without losing all my benefits. It's just the way it works (doesn't). Silverlinings ... I've done a ton of volunteer work since I went on...
I've been on disability since 2000, after interferon ribavirin treatment for a year that I never really recovered from. It wasn't until a few years ago that I became decompensated, but now my levels...
Sleeping with my head elevated helps with me coughing at night ... big time. I have about 4 pillows so I'm elevated from the waist up. My coughing is from the blood pressure meds for varisces but I...
music - I love the signature "hanging on the rope" thing. Fitting. Wishing you the BEST possible outcome and am very happy for you for such good results. All the best, Deb...
lost son ... I've lost my patience with folks judging. I'd like to say it doesn't matter and that it rolls off my back. I wish I had Ziffle's sense of humour ... humour sure can diffuse things!!!...
gypsy .. my bleed was from the esophagus. Portal hypertension in my case is from backed up blood flow (made worse from the clot). Susie ... we're all so different ... but if you had LESS HE after...