He will be dancing at your wedding and he will be dancing in the maternity ward whilst holding your first child and with a little luck, dancing when YOUR child gets married :yeah: :turn: :yeah:...
My brother had that psoriasis but it went away after transplant, so there is hope once you get treatment, I believe. Welcome to the forum where there are so many folks who have been in your shoes....
OMG I'm so thrilled for you! ALex, my brother had the episodes of confusion, and they think it was the combo that included seroquel (for sleeping) prednisone and prograf. After they tweaked the meds...
Have the transplant...it will increase your chances of walking your daughter down the aisle in 20 yrs or so. We waited 2 months for my brother's TP when we moved to Jacksonville, but most of that was...
thanks, she just gets more darling every day!...
So glad things are moving along, Alex :)...
Listen Alex, Promise them ANYTHING, you won't have to stay out there a year. They aren't going to take the liver back. You will probably want to stay for a month afterwards, but do whatever they want...
Thank you folks, I love the name myself. What a coincidence, schimbare :) I am living here for now with the proud parents and baby, and yes David, I'm the only babysitter they will trust right now...
Thanks HF :)...
It's a girl! My first grandchild, Emma Katherine, came into the world on Friday night by C-section (she was breech), weighing in at a whopping 5 lbs, 5 ounces and 17 1/2 in. tall. She's such a gift!...
Try making those changes to your diet that **David** talked about. I would quit the iron pills as ML suggested, and I would also quit the hemp oil, so you can rule it out as a potential instigator....
I responded to your email Alex, sorry I didn't see it til now, was so busy these last couple of days. Hang in there :) Mae...
melissa, I am soooo tickled to hear the good news! Bittersweet for hubby but like you said, his brother had to earn his wings in order to save his brother. Wow, such a story...glad things are going...
It's a balancing act, you don't want to be too pushy with they staff...they are fallible humans and may not take too kindly to that. You also want to make sure your Dad is well taken care of, so...
Hmm.. I don't see anything wrong with postponing your appointment. After all, things DO come up sometimes. But if they ask you that AFTER your diagnosis (should it be cirrhosis), you have to tell the...
Let me be the first to do the dragon-slaying happy dance Hip Hip Hooray!! :yeah: :turn: :yeah:...
My ex has had sepsis 3 times and bounced back from all. Vancomycin and some other stuff, broad spectrum antibiotics. Alex, it's another bump in the rocky road to transplant....I'm sure he will be...
Alex Ziff nailed it. You have to build a relationship with them. The more they get to know you, the more they want to help...human nature. Kinda goes along with why we used Mayo's ER instead of the...
Yes **David** you were doubly lucky! Correct me if I'm wrong, didn't you have your phone shut off and when they finally reached you, you managed to get a flight to the mainland at the "eleventh...
Alex, There is a lot to be said for being in the general area of the TP center. The transplant team would be in charge if dad had to go to the ER (made numerous trips while we waited to be listed),...
Susan, there are a shortage of livers, so they are transplanting at an average MELD of 35, give or take, in his current TP Center. That is why we went to Jax, FL for my brother's TP. Not everyone can...
Hi Hep 97, Glad you didn't have anything dire happen. Unbelievable that they didn't tell you about the infection. You need to lop off a few heads over that! Hope you get some answers Thursday, take...
Alex, Some suggestions: Get the family together if you get the okay to dual list with Iowa or Indiana. See if anyone has relatives or friends that you could stay with for a while, preferably halfway...
Well I think it's safe to say that 90 percent or more of your symptoms WILL disappear after successful treatment. At least they did for my brother and for many of the other folks who have treated....
Hard to say, depends on the infection and any peripheral issues. If it's a simple infection like a urinary tract infection, they may just start an IV antibiotic and/or send him home with a script. My...
Sure you can ask about it Wednesday, not sure if it will be a moot point by then but by all means, ask. They have taken more than five litres so it's a legitimate question....
Good point David, I think that's why it takes so long for SSD...hoping folks give up....
FEPBLUE? So you're a federal employee....there should be no reason why they would deny your claim in my opinion. But BCBS often relents with an appeal, so I've heard. Worth a try. Much depends on how...
Except for the light sensitivity and headaches, I have to say that my brother, hep C genotype 1, had every other one of those symptoms (before his transplant). Then after transplant his new liver...
I'm a little worried about Hep97....been a couple of days. Sounds like she lives alone. Hope she checks in soon....
Geez Alex, I don't like the sound of this. It's bad enough when a "well" person has a high white count...in your dad's case, I wouldn't waste any time in getting treatment for it, especially as he...
Have someone take his blood pressure. If he is dizzy you should get him to the ER to be safe, Alex....
MamaLama, I am truly glad I was able to make that caregiver commitment and relocate to Jax. He was so sick just before his liver offer. I was sure I would be flying back home, but with Richard in the...
Touche Splash! Hold your head high, Jodi, I don't think there is a single person that wouldn't want you for their end-of-life caregiver. You couldn't change the outcome, no one could. You need time...
Richard just left...he came to show me his brand-new Honda Accord, with rear AND side cameras, and collision avoidance, or something like that. I guess business is coming back now that Dad is in the...
That's okay, folks here have a ton of collective knowledge, and they all WANT to share it in the hopes that others may benefit. Jodi, you just can't get a lot of this hands-on experience from the...
Alex, Carol was spot-on and see? You had a spontaneous and wonderful day with Dad...take your own advice and stop ruining good moments with the future unknowns. If we all did that there would never...
Now's the time to get that diabetes under control....I never heard of 770 cholesterol, is that total cholesterol including triglycerides? Best of luck with your treatment. It's so exciting to see...
LS, can you come up with a pseudonym so we can stop calling you 'lost'? It has a sad connotation. I just would rather call you by first name, even if it's fake....after all, we are almost family now...
Both my enemies if I eat after 5 p.m. Susan, I'm glad to hear you have gas.....er, I think :smhair:...
Oh jeez, first a pig and then a couple of donkeys, now a race horse...we got ourselves a regular zoo here :yeah: Times like this when I miss our A. Ziffle. themiz, I will post an update on my...
Simply amazing David, no doubt about it. I would say that the Kahlil Gibran quote is apropos....
You are woman! I hear you roar.... :)...
Hi LS, The dual listing is explained here on the UNOS site: Unos Multiple Listing It is a bit complicated but check it out if you ever find the time. Everything depends on the length of time it takes...
Melissa, Is hubby still an inpatient at MGH? Is the plan to keep him there as he awaits "the call"? Don't despair, things have a way of working out. I was sure I was going to fly home from Jax with...
So glad to hear you're not experiencing any side fx, let us know how it went at the doctor's office. Best,...
I'd like to order a pepperoni pizza with....oh wait......
No you shouldn't have, and that's why you didn't. You have a purpose here, just in case you forgot :)...
LS, Maybe bblbt's doc knows something your dad's doc doesn't. When you get a chance, ask about the bumetanide vs furosemide situation. Maybe it will help dad, you never know. So glad you checked in...
Way to go, Plant...you have a great attitude, onward and upward :) Thanks for sharing. Mae...