Oh mama, so very sorry ...they turned me down too, all slots gone in Uk hospital where I am. So much more important for you than me, but the disappointment is crushing. I had a good howl....and...
You are quite right Connie, of course. It is just so frustrating that it is so near and yet so far, and it seems so short sighted to wait until I am really sick when they have the means now. I wish...
Update...saw my lovely consultant today, and of course things are complicated. Seems that he, along with other top docs worldwide are trying to force Gilead to allow them to prescribe to people like...
Think this is the one I might be put forward for , will find out tomorrow...so excited for you! I am trying to stay calm, but there is so much at stake! Everything crossed for us ..... Feeling the...
Wow Connie, as you were welcoming me as a new member and giving me support, I had no idea you were going through all this - to take the time to reply to me when you are having so many troubles makes...
yes, I was taking triple that, but they have reduced me to the same dose as you, but doesn't seem to have helped, but maybe it takes time. do you take Azathioprine too? I am wondering how much I can...
thank you for your warm welcomes! And I am a girl, it is Michaela! Yes, Hep C is chomping away on my new liver too, but as I have geno 3 it has also kindly layered it with a load of fat too. Hmph. By...
I don't think they have tested the drugs yet on HCC this is all cutting edge stuff, but I believe I read a trial they did worked on those few who were cirrhotic, or at least they had nearly as high...
thanks so much, I had such a rough time on Interferon, I can't believe I might not have to suffer again that way. Can't believe also that after 35 years it might be possible to shift it - seems like...
Thank you, glad to be here and will keep you posted for sure. I am due to hear something on Monday when I go to see new consultant. I only got the hint that I might be up for trial because Cardiology...
Oh god this is such wonderful news, I THINK my consultant is going to try to get me on the Gilead Sofubuvir and ledipasvir trial here in the UK in January, I am waiting to hear maybe monday, I am...
Hello from the UK, just to introduce myself briefly - married 60 year old with 2 sons one granddaughter, diagnosed 1989, two attempts at treatment, two relapses, transplant in 2009. Moderate fibrosis...