Hello again ! They have taken him off the oxy thank God ! Still dealing with HE and today is not a good day around here. His Dr. Will not let him meet the transplant team. Maybe because he is on...
Hello again ! Haven't posted in quite a while. This past May his Tips stint was clogged. So interventional Dr went in and placed a stint at each end of 1st stint to try to keep it open and flowing....
Xxer, next time you see Dr go to medical records and get copy of all your file including Dr notes. I am having to do this also for my significant other. I hope you get your answers and feel better....
Thanks A Ziff and Themiz :-) He has been seen by a hepatologist all this time. I don't like what his Dr is doing definitely. He has been calling for three days trying to see his hep Dr with no return...
Hello Angels ! It has been a long while since I have been on here. He has been pretty good post Tips. He had his Tips procedure done in July. The procedure went well. He only needed paracentesis one...
Ziff, a stint clogging would be just more ascites right ? I sure hope this thing works....
Themiz he is not on transplant list.....interventional Dr. Said he should talk to liver Dr about it.....his liver Dr has too many patients and doesn't keep up. When you call there it is always...
Also, he just now mentioned to me that he thinks that he is still putting on water.....did anybody else do that after tips ?? He just got drained before the procedure on Thursday....
A.ziff.... Looked briefly at xifaxan site and it says it is not recommended for child-Pugh scores of c or d. He is a C . So is anybody else taking this a C or D and doing o.k. With it ?...
Thank you Themiz, Mama lama and A Ziff : ) He takes Furosemide, spironolactone, Baraclude, magnesium, probiotic, lactulose. Working on xinafaxen. And I have gotten over the "dentist issue" only to...
Update-he had Tips procedure done Thursday. He was going to get paracentesis done once a week(refractory ascites). Finally got into see liver Dr. Ordered tips consult. Meld score was 14. Do not know...
Arneeb thanks for the reply and the laugh :-) him walking out of the bathroom wearing your bra.....that's hysterical ! Lol love it :-) My guy has been acting so HE for two days. He acts like I'm...
Arneeb thanks for replying : ) it is nice to hear from other caregivers ! I feel like I'm on an Island most of the time....... And the only time we dock is at the Dr office. I agree on the self image...
So within 7 days he looked distended again so we went and he got drained and only had 3 lieters. So his intestines are swollen. I don't know why they are swollen and he is also experiencing arthritis...
Ziff, thanks for the reply :-) I thought about what you said about the blisters and I knew in the back of my mind that it was a possibility. A new possible level of annoying torture that he is...
Thanks for the reply Ziff :-) he had his paracentesis today and they drained 6,150 ml and gave him 37.5 of albumen. He is using a Tegaderm patch 4x4 3/25ths and 4x4 gauze folded in half and putting...
Dear bike guy, a piece of advice on taking Baraclude...... Don't eat anything two hours before taking it or two hours afterward. My bf takes his early in the morning and then goes back to sleep so...
A. Ziff, thanks for replying :-) it's good to know about the potential transplant instructions. I think he will heed this advice. I'm hoping that he does. And the albumen...... Is the liver just not...
Mama Lama....... You are a treasure trove of information : ) thank you so very much for all you do to help everybody on here ! I hope your husbands new treatment is helping. Praying for us all !...
Thanks for the reply David and A Ziff : ) I will do a formal complaint...... Thank you for the idea : ) people deserve better treatment than that. Update on my bf..... He is lately getting drained...
Thanks Mamalama, David and Themiz : ) I appreciate each one of you ! Thank you all for your time and information and Courage. Where we live has aids awareness but that's about it. It would be less...
Dear Maebehere, we both have it. I got tested after we found out about him. My viral load isn't real high,I haven't had this a whole year yet. While he must have had it for years or so the Dr says. I...
Arneeb thanks for the reply ! It did feel good to rant. I have nobody to talk about this with except this forum. He chooses to not let his family know what is really going on. He is embarrassed by...
Hello again to my Angels who all gather here and lift each other up :smile: I found out he is decompensated. A Child's class B and concomitant with hep b and alcoholic cirrhosis. And I found that out...
Mae be here.....Thanks for the reply ! He is seeing a hep Dr. He had a scope done a few days ago and the scope Dr. thought he looked like he had candida in his esophagus(mis-spelled sorry)....she is...
Thanks for all the replies ! A.ziff ,WTN, David, MBH, All of you are angels to me and I appreciate every single reply very much....Thank you ! We got his new lab results and his viral load went from...
Hello friends ! He had a apt with Hep Dr. this week and his viral load went from168,000,000 to 1,020 ! How amazing that is to me. He had a fibro-scan and do not have results back yet. And isn't...
Thanks Mama, David, K. and Ziff : ) You are Angels !...
Its o.k. to combine the two posts I have into one. They (Doctors) told him it was Hep B. He did drink hard liquor before. How doe's that have a bearing on his survival or not with Hep B ? He is...
Thanks worried daughter2. I get another blood test in January to see if I still have it or what not. His hepatologist wasn't concerned with me and will not treat me until I have it past six months....
Thanks David. He hasn't touched alcohol since the viral news in June. And I haven't had a drink in over a year because of a d.u.i. Your news of your Hep C being undetectable for 2 years is very...
Thanks for the replies-David, ppmguy, mama lama, A ziffle. Im not from the U.K...... I am from the U.S.A. a total country girl. If my English stinks it would be cause this is how I speak and write so...
Thank you David ! I much appreciate your advice and will start counting the mg's and keep under 1000. Another question.......why doe's the liver not like salt ? Do you know ? I am just curious and...
He has Hep B. Just found out in June this year and they said it was chronic. I guess we need to be stricter on the salt content. Dr at I.U. Med said keep sodium under 2g's and he doe's that so I...
I mean't for my member name to be devastated not devasted lol !...
Hello all members : ) I am new to this forum and was diagnosed with acute hep B in july this year after I found out my boyfriend has chronic hep B. We are blown away and in shock of course like...
My boyfriend was doing well for a couple months on Baraclude and taking 2 kinds of water pills(low dose). Now he is blowing up with water and got 6 lieters drained 8 days ago-they doubled up on water...