i hope that you can find comfort in your memories...
Well here it is in a nut shell..On the 28th of last month i went to california to marry my youngest boy to his girl of over 10 yrs in Yosemite park ..breathtaking to say the least..I was only allowed...
hi everyone what a long strange trip its been after 5 dry runs call 6 came less then 10 hrs later it was a go im out of the hospital 1 week now and am feeling pretty well ,my surgery was amazing just...
no ignoring just been super busy writing nuptials for my youngest boys wedding ,coming up he will be getting married in Yosemite valley.I told my doc and he insisted i go.So i will be sneaking in on...
be thinking GOOD THINGS for themister..Glad hes doing well with H.E. BE WELL MARK...
Again got the call,got to the hospital.prepped ..liver not viable ..so third time is not a charm lol going for #4 have to laugh maybe ill set a new record feeling ok acieties is being a pain,and...
got my viral load test i received today march load=1,900,000 today april 21 <1.06 now all we need it a good liver to come my way then i can get back to my life of trying to figure out life lol mark...
we create our own suffering and i refuse to have my peace bubble shaken........I am a practicing Buddhist minister and try for the most part to be in the moment..thats not to say i dont get depressed...
Hi all got "THE CALL" yesterday went to the hospital waited for 8 hrs .to hear ..We are sorry the surgeon does not like the liver....My reply was ..im not leaving till you feed me .lol.....This is...
ive past my eval last year no alcohol 28 yrs..t/p center is at 22 my problem is im a big man 6'4" 237-40 lbs , so i wait.as far as being sick other then 4-5 liter taps 2 times a week im good..im...
found out my meld went from 22 to 26 kinda weird ,but i keep all my test results and i saw it going up then today it was 26 thing is i feel pretty good ,and i know meld can go up and down all the...
hi and welcome... I too lost a tremendous amount of weight 247 --193 in a matter of months and yes its scary as all heck. i too have esld and have my belly tapped 2 times a week..make sure you get...
here is a good website for t/p centers very good info here hope it helps im sorry i sent the wrong link ml can you make this hot...thanks mark http://optn.transplant.hrsa.gov/members/regions.asp and...
i have blue cross also and i didnt have any problems .call the t/p center you think will be good for you ,i still live in califonia but am stranded in kansas in a holding pattern lol.. i believe my...
themizter,,HI you and seem to be in same canoe i am esld,HE,tipps,acieties,plural infusion,been in coma or deep sleep 4-5 times am now waiting for t/p with a meld 22..can i ask you what your diet...
hi,, i am dual listed at UCLA and KUMED just to give you an idea about my experience at ucla..Dr .Saab is a wonderful Dr. and got me an meld exception because of HE, coma, yet my meld was still low...
i had HE so bad ,i was receiving ,enemas not a lot of success then an older dr.said to give me Sodium benzote also .well that did the trick for now anyway also i am being tapped 2 times a week 5 -6...
zinc yes im on it now,amino acids as well as sodium benzote,yo go with my xifraxin and lactalose waitin...
we are all on the itch boat lol if it doesn't get worse then this it should be ok...right now im using Miracle foot repair and goat lotion.. thanx everyone....i get my test for my viral load in 2...
well im not discouraged yet... but i was woke up last night by an itchy feeling all over my belly ,damn it, i know with the pegsys/riba i tried in 06 was not fun..all the lotions baths ect. didnt...
thanks mae we are very familiar with the lactalose..i cant tell you what my ammonia level was but i was givin lactalose enimas every three hours..i dont remember a lot just what im told..I too have...
THANKS.....that to is my motto ..it will turn out the way its suppose to.....last year i got the call for my t/p..but i was battling an infection in my belly..so we had to pass..Someone needed it...
hi......blood type a+ you hubby and i are twins i could have been reading my own story.i was in a coma for 5 days at ucla and three days in kansas i cannot tolerate any pain meds either this was a...
no need be sorry I see it as a teaching tool ,no need to wonder why it is .it just is.....cant wait to view the world through post t/p eyes sorry i get a bit cosmic..lol im on the 12 week tx how are...
love me some lactalose...not lol xifraxin yep kumed t/p at 22 also but my problem is im a big man 6'4" 230 lbs which makes it a challenge ,I have to say kumed is a wonderful place the dr. and nurses...
hi and thanks for the welcome I am listed in 2 t/p centers ucla and kumed ku being where i am now ive been listed since06 with ucla and since 2012 with kumed my meld as of today is 22 .para twice...
hi all, I am a 58 yr old who has been in a tough fight since 2006 esld,encepalopathy,plural infusion acieties kidney damage...now am waiting for t/p. I keep on keeping on.Tried treatment in 06 got so...