Themiz, I am so glad to hear your good report, and happy for you and Themister. Sadly, my husband Dave passed away on 4/27 from multiple organ failure after a successful bowel resection. His liver...
Hi DD, I just wanted to let you know that you have value, and you are deserving of all the loving care, compassion and understanding the world has to offer. I don't believe there is judgement here....
Oh, it does work. the link just doesn't look "hot" until after you hit submit....
Um, Ok. Thanks. Here's a good spot for low sodium recipes. Try the fried chicken! http://www.sodiumgirl.com Not sure this is working, arneeb....
What,What!?! SOoooo happy for you and Mike! :yeah:...
Iplaycarvin, Mae, Steve, AllenM, Music, ML, David, Themiz, etc, etc ad infinitum: I am so very grateful that you all are so willing to share your stories and experiences with the rest of us! It is so...
Themiz, what an angel you must be. You have no idea how much I appreciate your kind words and experience. Do you ever go to the caregiver support group at Mayo? I have not yet, but maybe when Dave...
Update. Colorectal surgeon spoke with Hep doc. Hep doc does not recommend TIPS, but does recommend bowel resection be done at a transplant center. We know that Aetna will not cover this surgery at...
I take depakote....
You know, 5.5 fl oz of prune juice works wonders. get it good & cold (tastes better) and chug it. Results usually in 2 hours. No lab synthesized ingredients to interact with your meds, it's gentler...
ML and Themiz, Mayo are the ones who sent me to needy meds, salix gives a 50% discount to patients who have no prescription drug coverage, same amount as our insurance. On PCIP it was $100.00/month,...
Ok, thanks Themiz, I'll try to remember that when he's eligible for Medicare. 1000.00 per year for meds sounds like a dream come true! If he has the TIPS procedure, he'll be on Xifaxan indefinitely,...
Hello- My husband 64yo has end stage liver disease, and a colovesical fistula. He met with a colorectal surgeon yesterday, who told him that prior to dealing with the fistula, he would have to have a...
ML, this is so exciting! I am amazed by how quickly these numbers drop! PTL!...
Themiz, Dave was also on PCIP(LOVED IT!!!!) until in ended Jan 1, and we had to buy Marketplace insurance (FYI, for anybody who has need of this information, Mayo Clinic does NOT work with ANY...
David, I approached the care team at Mayo regarding neomycin when we fist encountered the real cost of Xifaxin when we bought our marketplace insurance (GRRRR). They answered immediately and without...
Themiz, Do you mean themister had constant bad HE for OVER A YEAR after TIPS? I have not found your thread about SEIZURE yet, but now I'm scared. There IS an option, which of course, we don't want:...
Thanks or the TIPS tips! I am so glad to hear of the success of Mike's procedure, Sandia, and yours too, Ziff. And so we thought. If it is successful, I am sure Dave will improve greatly, and of...
So, my husband who has Hep C, gen1a, previously treated in 2005 with Int/Rib sustained viral breakthrough at 40 wks, now has decompensated cirrhosis with HE, Ascites, edema, esophageal varicies, MELD...
Pam (rcmoonpie), I spent some time reading your blog this morning, and though you were rather vague about it, there are a few references to "dark days",and seeing the gradual improvement after...
Hi Kick, I can well imagine your frustration. I don't know about Gilead, but you should most definitely appeal the decision of your insurance company! And don't be quiet about it, this is a life...
Wow, thanks so much for all the kind concern! I value each and every suggestion and response. This is a path I pray not many more will have to travel, since we now have Sovaldi! We will be discussing...
Hi Everybody, thanks for your input. I expected to hear the things you all said about patience. I know these things. Unfortunately, this is a struggle for me daily, as I battle my own illness and...
Hi All. My husband has decompensated cirrhosis secondary to hepatitis C. He is currently working through his "punch list" for Mayo Clinic's liver transplant program. His MELD score was 14 in January....