Thanks, Ziff! I am going to print this when I get home. I appreciate your effort and time in posting these guidelines. Now that I have read this all I have to do now is just don't shop for any of the...
Using tablet.Just posted reply and it disappeared. I need coffee. Will post in a bit....
Thanks, Ziff, David, and tblount. Here I was this morning, thinking I was eating a healthy breakfast...yep, made a bowl of oatmeal with nuts and craisins. Wrong. I am house sitting until Sunday.When...
That's funny, David....when he stood up and reached for the bottom of his scrub top, a fleeting thought went through my head...OMG, I am 63 and this doctor is going to pull his winky-dink out. No, he...
Oh,Ziff...You do love me! It's good to hear from you. I am not to the point of appointment with the transplant team but I want to give my body the best chance. Just at a loss for the specifics. I...
Warm hello to everyone here on Healing Well... I have a continuous thread on my journey with Liver Disease. I didn't want this topic to blend in with on going journey as I have tried to find answers...
Barry, thank you so much for the input and advice. My hep Dr stated I most likely have mild portal hypertension as my spleen is enlarged. He ordered an endoscopy and a colonoscopy. The soonest I...
David, it shows you I have a good memory...it's just short. David!!! That's right, Ziff is the one that retired from the show, Green Acres! LOL. Does Mike and Karen still stop by? I promise I won't...
I will be thinking of you on the 7th, Barry. I know you may be nervous. I was. It was wonderful seeing undetectable after three months. Please let us know as soon as you can. We will be here for you....
Okay, then!!! I knew I could count on my HW team to give sound advice and their objective opinions. Just curious, Barry. Why would you be furious with my set of circumstances? You know, at times, we...
oops....posted twice. Sorry. Mitzi...
Thank you so much, themiz!! I knew I had calculated it correctly when converting the dg/l to umol/L. You have given me relief and certainty that I am on point. To answer your question about what he...
Thanks for the good wishes, Rose. I wanted to post and let you know that I am one of the many who have completed treatment. I had read the horror stories about interferon so I was a little...
Hey, Barry, Thanks for the input. My platelets are 91,000, still low. According to the reference range, the PT is 9.0 to 11.5. Mine is 11.8. Not much above the norm. What I was asking, was for...
Thanks Barry. I appreciate the input and I agree. Themiz posted that she would do my meld score and child Pugh if I posted my bloodmarkers, which I have done in post prior to yours. How do I get a...
Hi themiz, Happy New Year to you, too! Sorry it has taken this long to reply. I was in Naples for the holidays and just flew home last night. I don't have any definitive proof about the grade or...
Merry Christmas and Happy New Year, everyone! I have been going through major changes since going to Shands in Gainesville. I messaged my hepatologist after seeing my lab results. I asked him to...
Thanks to both David and ppm guy. I have both kidneys, fully functioning. The hep Dr stated I am decompensated because I have trace of iscities. The Dr called me this morning, did a complete turn...
Greetings from Gainesville, Florida. I wanted to post to let those of you who are familiar with my plight, what has transpired. It has taken me this long to get an appointment with the hepatologist...
Hey Mama Lama and all, Unfortunately, I have not had the opportunity to post too often. I manage a couples' home while they travel, and it is a lot. I stay an average of fourteen days a month at...
The battle continues... My hematologist has had me taking very high dose of predisone to see if he can get my platelets elevated to 100,000 to get this tumor out of my kidney. I amt taking 80mg a...
Thanks, themiz, I think that is the plan for the surgery this time around. I see my hematologist Tuesday and will know more. But he mentioned them giving me platelets before, possibly during, and...
Thanks, MamaLama, What you didn't mention concerning Mike, does he have cirrhosis? I have been told that my platelets will never go up again having cirrhosis. Now that the virus is gone, they may...
DaisyTrixie, LOL, you sound just like I did before starting the Harvoni. I feel your angst. I am the Queen of the Worryation Club and I was petrified of starting for just about the same reasons you...
LyndaJoy, Welcome to a great group of people. Bless your heart, you have been through it. I can share with you what I did. I could not safely get a liver biopsy because of low platelets and a...
Sorry Y'all, I am coming down from total anxiety. post note to above post 11:24 pm CT Scan of chest is clear of masses in lungs and bone. Bilateral Hypoechoic nodules on Thyroid Small amount of...
I can't believe it has been this long since I have posted. I am a bad HW member these days. I will jump in with my newest obstacle.... After treatment with Harvoni that was completed in May, it was...
Thanks ppm guy for the info. I have 6 more days of Harvoni. I have had a few side effects with the medication. Severe constipation; non stop tired and/or sleepy; several nightmares, vivid, in...
Okay, David, please explain, 'blip' to me. Are you talking about a lesion being a blip? I have found several discrepancies in my diagnostic tests. My ct scan said nothing about the polyp in my gall...
Thanks, David.....you and Ziff have gotten me through some rough days. Thank you. I do want to post some information so that others may not have to wait as long as I did to get treatment. A bit of my...
Updating the ups and downs. I have 28 more days on the Harvoni. I am very tired and sleepy. I have only had 3 or 4 slight headaches. I have had an ongoing problem with constipation and Mirolax helps....
Thanks for the advice on constipation. Update...I am still having pain in lower right groin. MRI showed no problems with hip but it showed mild ascites of unknown etiology. I am having the CT done...
Thought I would update everyone on what has transpired in the past week. My gastro had me get Magnesium Citrate. I drank the entire bottle and had a bowel movement 6 hours later. No cramps, gas, it...
Okay, it's been awhile. I have had some issues and just couldn't post. I started Harvoni on February 9th of 2015. I didn't get headaches, insomnia, or nausea. I have always been regular with going to...
Thanks, ppm guy. I addressed that today. I had the prilosec changed to the 20mg. The Nexium dioes work much better though. The bottom line is my insurance pays for the Prilosec, not the Nexium. Day...
Thanks themiz! You are quick on your feet. I wanted to post what I found out concerning taking Prilosec or Nexium. Normally, I take 40mg and have switched back and forth through the years. I...
Thanks y'all, and you are so right, David. It has been a long battle getting here. I am going to try and keep an on going journal for those who come after me. I have had some anxiety over starting...
Finally, after three years I am starting Harvoni tomorrow. It has been a rough road with lots of speed bumps. I saw a hematologist this past week and my Gastro, who is treating the Hep C. I am being...
Thanks, Barry. I am seeing a gastro that treats 200 patients with Hep C. I have an appointment with a hematologist this week, and appointment with the Gastro on February 2. My medication is being...
Okay, you two....y'all are the ones that I cut up with in the past. And I thought I had been broken in!! Mitzi aka ZelDDa...
Thanks, David. The Fibrosure test showed Stage F-4. advanced scarring. I was told that F-4 indicates Cirrhosis. Just got the phone call from the pharmacy. I have been approved for 12 weeks. They are...
Okay Ziff...... I am ready to be broken in. :turn: Mitzi...
Greetings to all of you.... I have an update and would welcome any advice, as I am frustrated and full of fear. I have been going to a Gastro since February of 2014. I have never had treatment. The...
Thanks, David. I am writing that down right now to discuss with my doctor. Yeah, after seeing the Rainmaker, I know the insurance companies deny, deny, deny. I am worried that too much time is going...
Thanks David. I will try to find out what the procedure is called. Maybe someone on HW will know. I am so frustrated because I am unable to get any definitive answers, even from the specialist. I...
Okay, I have more information. The test my gastro dr. used was Fibrosure not Fibroscan. It is bloodwork. I got the results today and I don't think it is good. It showed a result of F-4 Cirrhosis. I...
Wow, I was getting out of my car today, returning from a Dr.'s visit and thoughts about Connie ran through my mind. She was always there with guidance and good sound advice. Her presence is greatly...
I am back again with an update. I have spent 7 months trying to get approved for treatment. First, I had United Healthcare through medicaid. They denied. The Gastro assistant told me to switch to...
Thanks for the input, themiz! I am in complete agreement with you on the viral load testing. The Gastro stated this was not normal, to be undetectable from the very beginning and then 15 years later,...
That is great news for Mick and Karen. One of the many things I like about HW is the humor the established members have. The bantering is so entertaining....at a time when I needed it most. I read...