So sorry for your loss you and your family are in my thoughts and prayers....
One of the things that helped me with me was getting involved with al anon.. the program has been a godsend in helping me find me while dealing with these issues. Make sure you are taking care of you...
Laurie's transition went very quickly, she was brought home Sunday evening via ambulance to hospice and with her family waiting for her. I believe she started her transition as early as Saturday...
It is with great sadness that I am typing this.. Laurie peacefully left this earth today about 3:30 pm this afternoon.. It was a peaceful passing for her. Her boys are doing as well as expected and...
Well as I knew would happen after I took a break and took care of myself I find myself back as a caregiver for Laurie, however in a different capacity. Last monday she was admitted into the hospital...
hello to all another quick check in Well it seems that she will not be getting the transplant due to her demise. Not being honest with herself and the pre-transplant team is not a good mix. When she...
Thanks all for the encouraging words. Not a road I wanted to travel but it is what it is and I am honestly content with the decisions I have made towards all this. Nice to hear from others that it is...
MamaLama I can take the verbal side of things but she is getting aggressive enough to get in my face and going back to old ways. I dealt with that for 8 year or so before finding on her death bed...
Unfortunately her attitude is still the same as it was a year ago, and just as overbearing as it was before. Her attitude that she should be everyone's priority to be fixed with out her fixing what...
Hi everyone, sorry it has been so long since I have posted has been a busy summer. Update on Laurie She is still hanging in there and has her good days and bad days. Still pre-transplant due to...
Doctors aren't very concerned with her edema, local doctor seems a bit miffed about me calling him on the weekend. Had to bite my tongue with him a bit yesterday. Just making her stay down the past 2...
I have 3 grown children and 10 grand kids.. ranging in age from a month old to 14....
MamaLama You are both in my thoughts and prayers, Hope you are getting the much needed answers today that you both deserve Sharon...
Brought her home yesterday with a diagnosis of hyponatremia, Last night she ended with with major edema involving her feet and legs, had to call the doctors to see how to handle it, was able to get...
I wish hubby could but his work schedule does not allow for this, he works out of town most weeks and is working 50-60 hours a week..She behaves with him and does what she needs to do when he is...
I am looking into a respite group to help give me a break, as I agree I need to get away from all this for a few days. What the transplant center needs is for her to be completely honest with them,...
We go see the infection control hepatitis Dr I believe in 2 weeks concerning her hep C so should know more about what they are going to do with that part of her problem. With the way she was with...
HI all just a check in to update about SIL. She had an oblation done on her hcc last week and seems to be doing pretty good with that procedure. We started this week the pre-transplant appointments....
latest update on how things are going with sister in law Last week we went to the oncologist that she was referred to from the Cleveland clinic, his response is there is nothing we can do systemic...
Laurie was in the hospital until the 19th and after fighting with the doctors I was finally able to bring her home late that night. She had a great christmas and built memories for the boys that were...
Glad all went so well, and nice to hear he is bossing everyone around always a good sign...
Mama so sorry you are having a rough holiday time right now.. Know you and Mike are in my prayers, Just got back from the hospital a little while ago and she is still there, they were finally able to...
Pallative care did come in on Monday and unfortunately we haven't been able to use those resources to much as she is currently back in the hospital and has been since about noon on Tuesday. We went...
Pallative care is scheduled to be here Dec 8th at 4:30 for initial appointment. That is the soonest they are able to come out to the house. All the docs we have talked to agree that this is a good...
Again life has been so busy some days I dont know if I am coming or going. We went to the surgeon on the 19th and the scheduled the hemorrhoid surgery for the 25th and added 2 more appointments to...
thanks for the edit themiz..lol I tried to do the url ..:)...
Her endoscope revealed she has what is called watermelon stomach,or medically known as Gaves with some adhesion's that could potentially cause some bleeds, but currently aren't bleeding, but have to...
I have to say that you all inspire me. Reading all these stories of how you all work through all this is amazing. I am fairly new with this caregiving lifestyle but have learned a lot with your...
CT scan is scheduled for next week, so hope to hear something soon after she has it. Today we start the process of getting ready to have these scopes done again but this time with general...
The sad thing is the hospital she is affiliated with is a Transplant Hospital. This Doctor she is seeing is a hematologist/GI doctor. But I will say I am not impressed with him or his residents at...
Pain meds right now are to control the undiagnosed issues she is currently having with her abdomen. They are narcotics but very low doses at this point that are not even really touching her pain...
Wow just realized it has been a while since I updated on how Laurie is doing. I have finally gotten her in with a gi/hematologist at the University of Toledo Hospital, and they are running all kinds...
The family dynamics are a complicated mess to begin with, and it is my side of the family that is having a rough time with all this. They are afraid I am gonna get hurt in this and I can understand...
I called the doctor last night with her symptons of being dizzy and lightheaded and after questioning about her bathroom behaviors for the last couple of days, of not voiding a whole lot. He had me...
I have to give all the caregivers credit as this is a much harder job that I had anticipated being. From being nursemaid to mother with Laurie it is more than a full time job. Trying to get her to...
Well avoided an ER visit last night but not sure how today is going to go, SIL is dealing with some dehydration issues now, was able to get her juiced up with liquids last night but now this morning...
Tracey You and your family are in my prayers, God Bless you for what you have done for her in her finals days, dealing with somewhat the same situation my heart goes out to you.. Sharon...
Update on SIL Sorry it has been a while since I have updated, lots of appointments and running around trying to get things all local with her doctors and such. We are at a record at this point for...
Update on SIL She is not a candidate for liver transplant due to all the other issues she has with her health. Cirrhosis, esld and hepatitis c and now HE are just a few of the issues she has, and the...
Sorry About the additional string here was very tired when I posted yesterday. Just returned from hospital and SIL is doing better ammonia levels are down to 89 today. I was finally able to meet with...
Using my gut instinct with what I was observing notified her physician and was instructed to take to ER. Her ammonia level was 92 and all other labs were major off. She was transported back to...
Evening all Having some concerns with SIL this evening. She had a rough morning as her past caught up with her here and the local sheriff came out to arrest her, do to an outstanding warrant she has...
Mama Lama Not sure if you are aware of the fact that lifeline has a program to put in the home to remind them to take meds at a specific time each day. I was a home health care taker before all this...
The kids haven't had a relationship with her in over 8 years and they have the memory of the drunk mom, with the broken promises and disappointments, so they are keeping their distance yet as they...
Morning all So we had our first visit yesterday with new doctor with SIL and I have to say I was very impressed with him. They were very thorough with taking her history, and her med and asking her...
Thanks all for the positive posts and here are some answers to some of the questions that were posed. I do understand what the advanced directives and medical power attorney are used for, reasons for...
Hello to all I am very new to this issue and in the past 10 days have become caregiver to my sister-in-law who has end stage liver disease stage 3 but progressing to stage 4 quickly, hepatitis c...