Hi Bhdj, Welcome to healing well. I just had a liver biopsy this past week, and my Drs chose to have interventional radiology do a transjugular liver biopsy. The Doctor inserted a small tube into my...
I am so happy to read your wonderful news! I know that you two made a lot of sacrifices to get to this place. I hope that his recovery continues on a good path. I hope that you are also doing well,...
I'm thinking about you ML. Feel better soon!...
Depending on how far south you are in FL, Broward County has 2 hospitals with liver transplant programs. Cleveland Clinic in Weston, and Broward Health (used to be know as Broward General) in east...
Here are a couple of things that I got out of the wrap up from the webinar. Link's at the bottom. If I understand correctly, they are going to look into concentric circles from the donor location (by...
Hi Linda, Thanks for giving us an update on Kim. How are you doing? I think that Imbb brought up Al-Anon - have you ever thought of checking it out? I don't really know too much about them, but I...
Hi Linda, I read your post and am reminded of how I felt almost 3 years ago. Except, I was in your daughter's shoes. I'm got in "over my head" with alcohol. Apparently, I am one of those ones...
Good links/stuff to look through. I'm doing alright - thanks for asking. Just finished up all of my annual testing for year two. All is good. MELDs a little higher - been out of the teens for a few...
Yes! next time I will give more notice. I had registered awhile back and had forgotten about it until it popped up on my calendar. Missed most of it as I was doing one more thing with Dad - an...
Good morning, In case you're interested, there is a webinar today from 9am-5:30pm discussing the new rules for future distribution among liver transplant candidates in the different regions. You can...
Hello smd, I am sorry that you are in the position that you are in right now. I just wanted to chime in since I was in a situation, similar to your boyfriends, about 2.5 years ago. I am recovering...
- I came home from the hospital, 3 years ago in about the same state as your parents. I also refused, at times, to take the medication that seemed like it only made me sick. Even though it was...
Great to hear, ML!...
Thanks. Yes, TM, we are on a similar path number wise, but I have been extremely lucky with the HE. Much more so than the Mister. My heart always aches for the caretakers who have to go through that....
Thanks Miz for the breakdown. With mild HE, I can function pretty well on a lot of levels - but not at math/numbers! I'm just hanging out on the wait list like the Mister and many others here. I...
Hi everyone, I know that some of you have gone through this already. Hopefully you can offer some of your knowledge. I started medicare Feb 1, 2015. I believe the coverage gap is quickly approaching...
S, I have experience with acupuncture as recently as a month ago. I committed to going once a week for 5 months. For me, it helped with the nausea, to calm my anxiety, and made a serious dent in that...
The Mister went from your good hands, into the hands of his awesome transplant team. Sending lots of good thoughts and prayers your way....
TM! I am so happy to hear how close he is!! I'll be thinking about you both....
Ziff, To me, you have been the ultimate inspiration. You gave me so much hope when I found this site. Two years ago, I had come out of a similar situation - fuzzy headed, an ALD/cirrhosis dx on my...
ML - Glad you and Mike are in Miami with the right drs. I'm in that area so if I can ever help you out, let me know. Sometimes even just knowing that you know someone nearby when you're so far away...
Hi LS, I have been following you and your Dad's journey and cried tears of joy when I read the news! How wonderful, and I am so happy for you all! Thank you so much for sharing your journey with us....
Glad to hear your home. What a great feeling that must be....
Susan, So hard to be there day after day. At least you can talk to your HW fam when wifi cooperates ;) I just wanted to say thanks. I have the oral thing and never thought it had a name or was...
Hi Gary, I am glad that your wife is home and not drinking. I am forever grateful that my husband stood by me (and held me up!) through a similar situation. I was dx with cirrhosis the first time I...
I believe you can find out info and register for a webinar about it through UNOS. I did about a week back. It's called: Public Forum on Redesigning Liver Distribution Sept 16, 2014 from 10am-6pm...
Thanks David and Carol! That's kind of what I thought. Just wanted to double check. It makes sense what you said , Carol. It's almost like it's their liver that we get to "borrow". :) Eyes...
Hello all, I am not clear on this and need some help with clarification please. I went to my GP last week and he wants me to see a cardiologist for the murmur that I have. I knew I have had one since...
I'm so sorry Cg. I have admired your strength through this entire situation. My prayers are with you and your loved ones. Eyes...
Wonderful news!...
I called the clinic to check and make sure that they got the bloodwork from Tuesday, and if there was anything else that I needed to do. My coordinators assistant told me that I was listed yesterday....
Thank you Mae!...
Thanks David - that was probably why the last two were so slow -had to do a lot of hand squeezing/wiggling. Never had my arm be all tingly before....
Ok. Thank you. I had just the 5 which is what has been the norm anytime but the first clinic visit. I also was asking because if they were taking more than that, I was going to have to arrange a ride...
I just heard a saying - the best way to be misunderstood is to text someone. I think this applies to my post in the same way. I have already gone this morning for labs - first thing! I was trying to...
Hi Everyone, This seems like such a slow and long journey up to this point. I have been so so fortunate to have had time on my side so far. Because of various reasons, it has taken a long time to get...
Hi all, I was thinking about sleeping, while I was lying wide awake again last night, and wondered if your sleep cycle (i think it's called your circadian rhythm?) returns to "normal" nights and days...
Hi JM, I am sorry to hear that you are going through all of this. I was in a similar position as your wife a little over a year ago. My hemoglobin kept dropping - even after I left the hospital (I...
I didn’t know if I should continue posting here or begin a new thread? I had my 3 month check up last Friday. This is the beginning of try #2 at getting evaluated. Liver enzymes are up some in my...
nice to meet you and welcome, themister eyes...
My condolences to you and your family. I'm so sorry. E...
Thanks for your responses. I just got the news on the MRI from last week. No masses or abnormalities and the dark nodule that they were watching has shrunk. Dr’s office said no cancer! The change in...
Hello and Happy New Year to everyone! I thought that I would give an update. It’s not real exciting which I guess could be good. I feel pretty good most of the time. I get tired and/or spacey easily,...
I am saddened to hear this news. I've only been on for a few months, but it seems that Connie was very knowledgeable and was respected and loved by all. My thoughts and prayers go out to her family...
I also wanted to say how great that is! What an inspiration you are to me through all of this (and by the looks of it, many others too)! Thanks so much for sharing your news. Eyes...
Hi Mum, Congratulations on your sobriety! I too started having problems similar to yours about a year ago. I had seen a GI Dr who told me to quit drinking, but I didn't and ended up in ICU for a...
You know, reading this reminded me of my first appt with the hepatologist and the first thing he said after looking over all of my paperwork from the GI and hospital visits was – I can tell you...
Hi again. Thank you thank you thank you for all of your responses. I have never posted on a forum before. In fact, didn’t even really know what they were until I stumbled across this one! I was...
Hi everyone, I was diagnosed with alcoholic cirrhosis about a year ago (they performed a biopsy). I didn’t take it seriously (if I ignore it, it will go away) and didn’t take the time to find out...