Hi everyone, I've had a moderate flare since early January, and last week I saw my GI and I was put on a 40 mg taper (5mg each week). I have been on the Prednisone for 1 week, and I'm not sure if the...
All too familiar! I'm sure like many others, I know all the routes with available bathrooms every 5-10 minutes along the road. Some good precautions 1) Baby wipes in the car, a small bucket of sorts,...
Oh my goodness. This reply is off topic from the question, but I want to quickly respond to the comment above. Thank you so much for bringing up Lichen Sclerosus. If only I had read a comment like...
I am not in a pre-transplant program yet. I have compensated cirrhosis and I only have a MELD score of 6. I'm still learning about the entire process and trying to understand more fully the road...
Hi everyone, I have PSC, not hepatitis, so I am not sure if you will all have any insight into this, but figured i'd try! I was hoping to hear people's experiences between the decision to have a...
Hello, I have been on 6mp for over 6 years now. I have found that I catch illnesses far more than I ever used to in the past. For example, if a coworker has a cold, I am very likely to catch it. I...
k-del- Do you know what stage you were in when you were diagnosed with PSC? Did your stage of cirrhosis last 14 years? NothingL- I was diagnosed through a liver biopsy. Thank you for the links with...
Hello, I'm a bit late here but Brigham has a great department that has been very, very good in my care. I have Dr. Friedman and I hear many others in the department are just as good. If MGH doesn't...
Hello, I am currently in Boston, but did not grow up here and do not own a car. I do not know how far out of range Boston is from you since I do not drive, and I know this may not be helpful to you,...
Hi everyone, I was diagnosed with UC in 2008 when I was 16 y.o. and at that time my doctor tested me for and diagnosed me with PSC as well. I just had a liver biopsy and it showed that my PSC has...
Wow, I am so touched by all of the in depth answers and support coming from this forum! In such a difficult time, during which I am away from all my family, it makes things easier knowing some people...
Thank you so much for your thoughtful reply. I was diagnosed at 16 in 2008, and now at 23 years old it has progressed to the last stage of the disease (cirrhosis). Being so young with such a serious...
Hi everyone, There is no forum that I know of for general liver diseases or for my specific liver disease, so I am posting here since it seems to be the best place to do so. I have a liver disease...
Hello, I was diagnosed with PSC in conjunction with UC at 16yo (currently 23yo). I am currently having a moderate flare, though I am on UCERIS to get it under control. My GI doctor ordered routine...
I was on the same meds at the same dosage as I am on now, but the UCERIS is new to help the moderate flare. After experimenting with all sorts of foods, I only eat the ones that tend to not make my...
Water almost exclusively. I will sometimes treat myself to tea or coffee, but try to avoid coffee as it worsens my symptoms...
Hello everyone, 23yo female here! UC and PSC diagnosis a 7 years ago. Over the past 4 weeks I have started to flare again--I would say it is a moderate flare, not nearly as severe as I have had in...
Hi everyone, I am looking for any advice or words of encouragement. I am heading to a new city for a job and I am very nervous, anxious, and scared to share a bathroom again. I have had UC since I...
thank you for the article!...
Hello again, I just wanted to re-post this topic in case any new, fresh eyes would see it! Does anyone have any info on PSC (primary schlerosing cholangitis)? I was diagnosed with it at the age of 16...
Hi everyone, I was diagnosed with Ulcerative Colitis and Primary Sclerosing Cholangitis (PSC) when I was 16 (I am now 21). On top of my UC meds, I am taking Ursodiol for my liver. I'm starting to...
Thank you for all of the help everyone. I really appreciate it!...
Does anyone feel joint pain from their UC? I've been told it's a symptom but I don't know how common it is. How severe is yours? Do you have any suggestions on how to minimize the pain--heat pack,...
About 7 weeks ago I fell out of remission and I am currently within a flare up of my UC. I had waiting 5 weeks to see my doctor, and after the appointment I was put on Asacol, Ursodiol, and 6mp...