I had a transplant in 2009 and was told that I could die, have a stroke, become paralyzed and a number of other negative outcomes, due to the surgery. Were you informed of these possible scenarios...
Welcome back. Sorry about the tough times....
stay tough...
Neomycin is one and flagyl is another antibiotic that may help with HE....
A transplant, no matter how successful is still going going to leave you with side effects. You are so right, we hit the lottery. I'd have died in 2009, without a transplant....
Your husband needs to cease drinking alcohol and listen to his doctor. He's only fooling himself and by the time he crashes, it may be too late. If his liver is inflamed that means damage is already...
My docs took me off prograf a few months back, as it was messing up my kidneys. Now I'm doing 1,000 mg. cellcept twice daily, with 10 mg. of prednisone per day. No problems so far. My transplant was...
ML, Good to see you back. Take it easy and pace yourself....
A good rule of thumb; no frozen food, no canned food, no fried food, no processed food, less sugar. In other words, if it tastes good, stay away. Actually I found plenty of tasty stuff. Used a lot of...
My hepatologist said it's okay to take milk thistle, but said he doesn't think it helps or hurts. A lot of people think it's not a good thing, as it isn't regulated. I have never taken it and...
ZelDDa, Ziffs UNC advice is right on the nose. 100 mg. does sound high....
I was told to stay hydrated at all times, even though I had huge water retention problems. Right before my transplant, I'd added 29 pounds of water in my legs. I was hospitalized,given IV diuretics...
RoseAnn, Sounds like you're dealing with fatigue pretty well. As you mentioned, 59 is going to cause some tired feelings. Ice cream is a good way to keep up the need for calories, unless you are...
I know how to kiss a tush, when needed......
Arnold, you're already halfway there......
I'm around and I gave you a name based on your physical attributes. It's ZelDDa. Stay strong!...
You've had setbacks, but sound as if things are basically all right. Be well....
Susan, You survived a major operation. Most transplant recipients take months, if not years to recover from the trauma. I think the hernia is giving you most of your problems. Once that gets...
Your wife should probably stop drinking any alcohol....
ML, That's the Samson effect... Take it easy and get well soon....
How are you doing, Susan?...
Sounds good! I'm happy to hear your doc had a change of heart. Stay strong....
I would get some more opinions at this point. Maybe try another hospital. You need to find a doc that is willing to try treatment for both your liver and kidney problems. Don't give in to bad news...
It sounds as if the treatment is going well. You'll be fine. Stay well....
I knew there was something missing......
I read your post, twice. If a therapist didn't work out, get another one. OCD is a psychological problem and you need treatment for it. This is not solely physical. Sorry I was so direct and to the...
Ziff, you took the words right out of my mouth. I've had too many uncontrolled eruptions and overflows over the past 15 years. Your story of "back on your head" reminds of "your turn in the barrel,"...
Just remember, your first job is to get well!...
Fantastic news!...
Liver problems often affect the kidneys and vice versa. It's all interrelated. Other organs may also be involved, such as lungs and heart, though livers and kidneys are most common....
"It is hard to believe that one can get used to pooping themselves in their own bed, but trust me, one can." Anyone who used lactulose has experienced this. It's one the worst feelings I ever had....
Yes, I was already over both viruses by the time of my transplant. A transplant doesn't fix everything and there are almost always complications, but it beats the alternative. I have had over 6 years...
I had CMV and FBV, which were discovered after I got into the transplant program. Got a new liver 4 years later. Both were dormant/gone by then. What anti rejection meds is he taking? I have a bunch...
I'm so sorry for your loss....
No good deed goes unpunished......
You're wasting your time, Ziff....
About a month before my transplant, I spent a week in my local hospital with infected fluid in my abdomen. A week of vancomycin along with diuretics and I was feeling better. You never know what will...
I don't know about you, but when my body isn't working right, a hospital is where I want to be....
Great advice, Ziff!...
Susan, They need to do something about your pain. Besides constipation, you're at risk for addiction, not to mention they're not fixing the cause of the pain. The hernia needs fixing. I have found...
Sorry to hear of your loss. None of us get out of here alive......
This isn't the first time a nurse or tech hasn't put patients in jeopardy and it won't be the last. At least the hospital is handling it the right way....
You're posting the same basic theme on 2 threads. Stick to one. Again, stop self diagnosing....
You ask if your mystery illness is a liver problem. A couple of us suggest you see a hepatologist and find out. Then you come back and say you think it's anxiety. My advice; go see a shrink and a...
I couldn't taste anything for over a month post transplant. I was told that some people have taste problems for much longer....
There are lots of people with Hep C, and Hep B with no known reasons for getting it. And there's auto immune hepatitis. Go see a hepatologist, if nothing else to rule it out....
Susan, you must remember that you went through about as major a surgery as is possible. And, you don't have a transplant until you're almost terminal. This is a huge shock to your system. I didn't...
I'm so sorry to hear this....
I never needed any pain meds, but have been told, I'm the exception to the rule. My incision and the area around it is/was numb. The feeling has returned in most places after 6 years. I wish they...
Are they going to repair the second hernia? I was worried there might be an infection....