Just an update after being away from HW for a long time after the passing of my hubby in Feb 2013 from Hep C liver disease. First of All, A BIG thank you for all of you who shared and supported us...
Ziff and David... Good to see you are both still here, giving the words of wisdom that so often was helpful to me as a caregiver. Thanks for all the support for I and hubby as we traveled the Hep C...
David.. Wonderful that you are so able to do so much...hope that everything will even out...I can imagine that is hard to limit one's self when you feel so normal. Wishing you the best. Angie53 Widow...
Pam...so sorry about Ron's passing. You two helped I and hubby through this journey in 2013...and I was sad to read about his passing. Thinking of you and I so relate to the feeling of thinking you...
Pam, Thanks so much for the update. So glad to hear you were able travel, spend time with family, play with grandkids and let others take care of you. So sorry that the last days were so hard on you...
David, Wow, loved reading about your anniversary. What an inspiration for all on here. Congratulations. Angie1953...
Oh yea!! Good deal...Such good news this morning upon opening up HW. Nice to hear. Angie1953...
Suzi.. Also watching your posts and eagerly waiting to hear that you got the "real deal" call. Thinking of you alot and wishing you the best "liver ever". Angie1953...
Congratulations for being listed. Hope Themister doesn't have to wait long. Used to live in AZ, I do miss those really warm summer nights. Thinking of you both. Angie1953...
Oh Robin, What a horrible couple of weeks. Wow, everything went wrong all at the same time. Really am sorry to hear that...and Mark...what was he thinking? That has to be really discouraging. But...
Welcome Ang, So sorry you had to find us, but coming and posting here will help...gather info, vent, share. We care, and we have all been through it or are going through it. It's really a roller...
Connie, I will be lighting a special firecracker tonight in your honor, as you (and all those on HW forum over the last 2 years) have been such a life saver for me over the last 2 years. It is called...
Christianne, Oh my god. I am so so sorry for your loss. What a horrible shock for you. My heart goes out to you. Can't imagine what it feels like to lose him in such a way. Oh, Christianne, am...
Connie, Barbie is a loner. He was raised with a duck lady. Dolly, and fell in love with her in a BIG way. She rejected the male duck, Daffy. Barbie courted her and they paired up for 4 years. He...
Marie, Will be thinking of you and sending strength. I find I am not yet ready to part with my hubby's ashes. Brings me comfort, I guess to have them home with me...for now. Today was a good day,...
Just wanted to stop in this thread and share a good day, eventhough my hubby has only been gone 4 1/2 months. The weather is great..my roses are blooming, my rooster (Barbie) crows every morning, we...
PB2000 Hey, glad to see you are continuing to post. We all have/had a lot to learn ... and we all just kept/keep asking questions and someone will chime in with their experience or knowledge....and...
My late hubby's pain was pretty much controlled with morphine and then Fentynal patches. We tried oxycodone at first, but the oxycodone created problems, hearing things that weren't there, seeing...
Welcome PB2000, Glad you found this forum. Keep posting. Folks here are very knowledgeable, compassionate and a source of support. You will learn so much here, if you just keep reading and asking...
Oh Arlene!! I am so sorry you feel guilty for having to work and not being able to be with your hubby while he is so sick. I totally understand that feeling and it really tears one apart, I know. I...
Butterfly and Denverdoni, My husband had what you describe and we went to a dermatologist who diagnosed it immediately and gave him meds for it. This was about 10 years ago, before he was in ESLD,...
Congratulations Sandia,,,,wow, that is wonderful. It helps to read about someone who was able to move on after losing their spouse. It has only been 4 months since my hubby died, and I still feel...
Splashdancer, The best advise I received about going through this whole ordeal was, "There will be good days and bad days, don't make a good one into a bad one." Hope I was able to that that....
Splashdancer, Sorry things look so down for you. This disease is just so unpredictable...ups downs etc. Thinking of you a lot. I know that feeling of just being down .... and it takes awhile to get...
Alysmom, So sorry that your brother in law had such a rough time and struggled so with ESLD. It is so hard on a family. Thinking of you and your family...regards to your sister. So sorry. Angie1953...
Thinking so much of you caregivers as you struggle through these times and wonder, "do I let him sleep, wake him up, feed him more, feed him different." And am so sorry that you have to experience...
I also though we were set for retirement. Had our own place, vehicles money saved to travel and enjoy our retirement together. Two years of hubby living with end state liver disease and 6 months of...
Bebo, I know my hubby felt guilty about sitting alot...actually laying down a lot, but was the best way to deal with the swelling. Thinking of you, take care of yourself. It is a constant balancing...
/community/emoticons/smile.gif "*itches get stuff done." Quote from Tina Fey Angie1953...
Butterfly 422 So sorry your hubby is so ill...been there with my late hubby. I will try to answer some questions you asked, but it is only my experience...and everyone with liver disease seems to be...
My good friend, retired, just lost her hubby a month ago of an unexpected massive heart attack at age 63, and she is in the process of packing to move to another state...she wants me to consider...
Yes, very nice to hear good news. Thanks for sharing. What's baby's name. Best to you both. Angie1953...
When my hubby's legs would swell, we would up the lasix (double it) for a few days, until swelling went back down. Balancing kidneys vs swelling. We found that if he slept on his left side, his left...
Point well taken. Sometimes just don't feel like doing any cooking. Angie1953...
Connie, Good of you to share your pictures with his family. I still need to do that. The last year I have some photos that I need to make duplicates of for his family. Glad it's the weekend and I can...
Wow...best to him. My late husband and I LOVE his music, listened to it all the time. Angie1953...
T2 There were lots of times over the 2 years that my husband was in the shape (mentally) that you describe, and then after sleeping a lot (22 hrs sometimes) and taking the lactulose and using the...
Thanks for all the support and for the candle lighting. Today at my office, in the midde of a busy day while I was talking with a co-worker, the receptionist called out, "your husband is on line...
Just wanted to post this morning, as for some unknown reason I am having a rough week. Guess it is sinking in that my hubby is not just away on another adventure and will not show up at the door with...
Hang in there. Glad to hear you have wound vac off. Keep on keeping on, Warrior Woman! You are a guiding force for many of us as we all battle with our own demons. Angie1953...
T2L, So sorry about your cats...that makes things extra difficult. Being a big cat lover, I know how hard that has to be for you. Again so sorry, that is the hard thing about animal friends...they...
So sorry to hear that your Mom is so ill. That has got to be really really hard. Can't imagine going through this at the college graduate age, but sounds like there it is..... staring you in the...
Jazzdame, There were many times the HE confused my hubby .... and he would say, "I think the Dr's are wrong...I'm not even sick!" (Even when he was in the nursing home because of the ESLD). Denial!!...
CreativeSoul, Thinking of you this morning and hoping that you are finding peace with what has occurred in your life. I recall how tired...just physically tired I was after my hubby passed away, but...
Dr gave my hubby anti-depressants for awhile and that helped a lot. You indicated your Dad crys all the time, he is probably depressed....which is understandable. Eventually my husband dealt with the...
The trade off of having a loved one thinking sanely vs diarrhea was worth the trade off for us. But hubby wouldn't wear "Depends" (adult briefs), so we had to just quit going places because of the...
Arlene, Sorry you are feeling down this morning, but certainly understandable. Bummer about losing you pointer. Always hurts when one of our animals move on to their future journey ... and leave us...
CreativeSoul, Thinking of you this morning after reading about your husband passing. So so sorry things were so difficult and hope you have a peaceful day today knowing that he is on his way to the...
Thanks...doing better today. Circus is in town and my hubby's best friend and his wife are here with their elephants, and they are so kind. My Mom is also back from Ariz and glad to see her. So am...
Thanks Connie, Hope you are feeling a little better and healing quickly. Angie1953...