Hi Connie, What a great time you had. I'm so glad you enjoyed it. Good luck with the hernia op. You'll be OK. As you say, you always are!! Take care. I don't visit the site as often these days but...
Hi everyone. I have not posted for quite a while. I have been well throughout this time. For those i haven't met i have had AIH for four years. Originally on Pred and imuran but now 8mg Pred and...
Hi Connie and all other friends at HealingWEll, I have also been MIA for a while, though my reasons are not as exciting as yours Connie. Enjoy your trip in April. You sound so positive that I'm sure...
Hi Jerry and Lucy, Just read the Prednisone "weaning" posts. I'm down to 8mg now with the help of CellCept (I have had no side effects from CellCept - or at least none that I'm aware of. Blood tests...
Welcome SJS, and okielady, Sorry to hear about you husbands. It is a scary time for you both and I hope and pray everything works out well for you both. I had platelet transfusions for the thin...
Thanks for the welcome back. I'll really try to be more regular in future. What a pity Trish is no longer posting. You must miss her. Take care. Marg...
The liver cleansing diet suggests carrot and celery juice every morning. I started having this regime but over time husband has taken over the juicing (he's retired) and we now have much less carrots...
Hi everyone, Just thought I'd let the regulars know I'm doing well. My last blood tests were good; almost everything normal or close to normal. Both GP and heptologist are pleased with everything. My...
Hi Connie, I too am sorry you are suffering unexpected complications after the surgery which is delaying firther treatment. Keep up the positive thoughts if you can. My thoughts and prayers are with...
Okielady, I welcome you to the Forum and offer my prayers and thoughts that your husband will be on the list ASAP and a liver comes available quickly. Take care of yourself during this time. Remember...
I also would like to welcome you but cannot help with an answer to your question. I think I have seen this treatment in posts and hopefully someone with the answer will reply soon. I have AIH and...
My thoughts and prayers are with you and your dad also. I hope he gets the new liver and kidney soon! Marg...
Trish, So sorry to miss your post. It's now close to a month since you posted about your decision to leave. I hope you return to read posts once you are settled and with a computer again. thanks for...
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Thanks Trish. Hope you are enjoying your much deserved break. Chat again soon Marg....
Hi Shirley, I too am on the "down" slope of my Prednisone, or at least I hope that is the case. I'm on 8mg per day now. (Was on 15mg May last year and have been much higher like you). My heptologist...
Hi foxytobycat, I too take PRednisone and CellCept. I've had great success with this combination. Marg...
Hi mommanelda, Welcome to the Forum. One should assume that a heptologist would recommend the best treatment. If your liver enzymes are now OK and you are being monitored regularly, I suppose it...
I am thinking of you and your sad loss. My own sister doed early last year and I know how much I missed her, and still do. Think of the good times and talk about her often. Take care. Marg...
Hi Trish, I have not been around for several weeks. Sorry things have got so out of hand. Despite "feeling sorry" for Rick you have donr the right thing. You've done all you can and more. Don't feel...
God bless you and Gene. You are an inspiration to us all Barb. Take care. Marg...
Hi Dany, It's a good idea to get help if it's depression. I feel so much better after months of being miserable. Ask your doc next time you visit. My sister had Wegener's Granulamatosis (WG). She...
Thank you everyone. I always know I can count on you for support in good and bad times. Take care....
Hi Dany, To answer your questions, firstly I flared after about 14 months. It was the first time I reached 10mg Prednisone with Imuran. Back on the high dose Prednisone, (I think 25mg again), still...
Hi Connie, I have missed a lot of HealingWell news as a result of being busy at work. I'm glad things are going well. hope you continue to improve. The Sandra Cabot book "Liver Cleansing Diet"...
Hi Dany, I was amused by your posting. How true!! We actually miss the blood tests and doctors visits. I am now having bloods once a month and visiting my heptologist every three months. I visit my...
hi everyone, I have been very busy at work and have found very little time to post. I thought I'd let you know how things are going. Good news always cheers us up. My June blood tests were again good...
Hi Trish, Glad you'll have a little time for yourself after such a busy term. i know how you must feel. I'm still in the busy mode. Half year exams are on at schoool at present, followed by marking...
Hi Connie, Hope everything went well. I have been thinking of you all but haven't visited HealingWell for a couple of weeks. My prayers are with you for a speedy recovery. Take care. Marg...
Hi LilacLuv, Good luck with your Prednisone tapering. I too take PRednieone and CellCept. I'll try to answer your questions as best i can, from my experience. I am now on 9mg Prednisone and still...
And adding to my last post. I don't think all AIH sufferers get cirrhosis and my heptologist says cirrhosis does not always develop into cancer but the chance is greater if cirrhosis is present. Marg...
Hello itsme, I have AIH and when it was diagnosed three years ago, I already had cirrhosis. It depends on how much damage is caused to the liver before diagnosis and treatment commences. My...
Hi sparkydon. I too had a biopsy through the jugular. I was petrified but it wasn't as bad as I thought. I take CellCept for autoimmune hepatitis. I have been on it for more than twelve months now...
Pink Grandma, My prayers and thoughts are with you and your family at this very sad time. Remember and treasure the good times and I'm sure there were many of them. While you are greatly suffering...
Hi Connie, I've not read any posts for more than a week and logged on tonight to see how you were going. How disappointing for you. Stay positive and before you know it it'll be over. hope the...
Great news Samantha. I hope he continues to do well and you have many years together. Marg....
Hi Jeff, Can't answer your question about Interferon but I n congratulate you on getting this far and wish you succes to hang in there a bit longer. I'm sure if it's the meds causing the "weird"...
Hi Joanne, Sorry it took so long to reply. I have been very busy at work. I'm on the Easter break now and am looking forward to some restful time. I replied in the "treatment for AIH" 2nd page. I...
Hi Joanne. I have taken a few different herbs since commencing my visits with Dr. Chen. Currently I am taking (in pill form), peony, salvia, cardamon and isatis leaf (or root). The latter being for...
Hi Venita, Your prayers have been answered for jim. now it's your turn. Start that praying and get yourself well. Take care. Marg...
Hi Autumn. Just remember that your mom is your angel. And you are hers. Enjoy what time you have left together. Get the best advice from the medical people and pray that she will not be too...
Hi Itsme, Welcome to the Forum. There are about five people here, (I think) who have AIH. I am fortunate that the doctors seem to have found meds (9mg Prednisone now, and CellCept)that are keeping...
WElcome Pati, You already know how supportive the new friends you have made are. This is a life saving site. Hang in there. You and Trish sound like "peas in a pod". Take her advice and I'm sure...
What great news Venita. I'm so pleased he has improved so much. May he continue to improve and maintain this wellness for many years. Marg...
Hi Judy, So Sorry your Prednisone taper is causing such bad side effects. My advice about the housework is the same as everyone else. It can wait for another day when you feel better. Could you...
Hi Teresa, I am thrilled with your good news. Mark has made such a quick recovery. How very like you to think of the donor at this wonderful time in your life. you are right. It is such a sad time...
Hello all! I have not logged on for a few days and what great news awaited me when I logged on tonight. That is really exciting for Teresa and Mark. Thanks Donna for letting us know. Let them know I...
Hello Lucy, Welcome to the Forum. I'm sorry your mother is so ill. The doctor is correct. Her liver will continue to deteriorate if she continues to drink. You can prayer for her and be there for...