Butterflythree, My husband got Medicare after the transplant. There are some conditions where you can not be turned down. My husband has diabetes, they had to accept him. The best things to do is to...
Penny, My husband will have his 2 year post transplant March 16th and his annual check-up. With all the antibiotics your husband is on along with some of the other meds, his mouth could get sore...
Penny, This is great news!!! Prayers being said for the donor family! Prayers for you and Harvey as well! I remember when we got the call for my husbands liver transplant, the feeling is like no...
Penny, I know you are relieved he is on the list! Praying for a liver for your husband and a successful recovery! Teresa...
Glad to hear it went smoothly. Prayers continue that the pain be controlled and you get some rest! Teresa...
June, Xifaxan is different than the other antibiotics. Xifaxan doesn't go into the blood stream it breaks down in the stomach & intestines, it's main use is for "travelers diarrhea", but works...
Good luck with the procedure! Prayers being said for it to be a success! BTW, my husbands encephalopathy was no worse after the procedure. Teresa...
JoAnn, They will have to give him antibiotics, for cellulitis. They do often give oral ones for 2-3 weeks. The transplant center my husband went too would put my husband on the inactive list when he...
JoAnn, It really does sound like cellulitis. Red and Hot is usually the indicator. There doesn't have to be any visible sores. Antibiotic theraphy is normally 2-3 weeks. This concerned me when I was...
/community/emoticons/shakehead.gif I am keeping my fingers crossed, he can hold out til 2012. Because that makes his chances of clearance even lower, according to those stats. Ranger glad to see you...
Pink Grandma, I have missed you too!!! There is just so much to tell you! Guess I am going to have to e-mail you to catch up! I was glad to see that you were moderating here! Your doing a great job!...
Helen, your post caught my heart!! My husband had his transplant 03-07. Just know you and your family are in our prayers!! Joann, my husband had the same problem with the fluid. I can't even begin to...
John, Congratulations on your transplant! I have not posted here in a long time. But I have spent some time catching up on the post. My husband had his transplant March 16th, 2007 at UAMS in Little...
Hi Alan, I know of several people who have worked the whole time during treatment, not easy but was do able. They take one shot a week and take pills daily. They usually take the shot on Friday night...
Boulonman,I am glad to hear you are going to start the process of "Slaying the Dragon". I have seen many from another site I go to, that work while on treatment. The doctors do watch the blood counts...
Buolonman, welcome to HW. I could not agree more with Pinkgrandma. From what you are saying, about your viral load and your Genotype is it a 2 or 3? This would be the best time physically, before...
Connie you have stayed in my Prayers and positive healing power headed your way too!!! Love, Teresa...
Hello Marisa, I do know how cruel this disease is, it is just as hard on the family as it is the patient, from a emotional stand point. I know the decision's are not always easy, your feeling's are...
Pinkgrandma, I know it is baby steps right now, I am here if you need me. I am glad to see you here, you have been so supportive and been there for me. Take time for yourself, you have been through...
I know you will be glad to get it behind you! I am going to keep in touch with you! In fact before some bug gets my computer again I am going to write the numbers and addresses down you gave me so I...
Samantha, That is such great news!!! My computer has been sick for over a week now and I just got the news, about your father. How is he doing now? Mark keeps getting more energy everday, he was...
I know it is a relief to know the surgery will go on! Hopefully they will not postpone it this time and you can start recovering from it soon! Sorry I haven't replyed sooner my computer has been very...
Hello All, I have just spoke with Pinkgrandma, I am sorry to say her beloved husband, passed away Tuesday. I want her to know how very much we care and will continue to support her. Pinkgrandma, I am...
Hi Bobby, My husband was a heavy drinker for several years, he use intravenous drugs back in the 70's. He went into a coma for 3 weeks in 2001, he recovered after that and was living a very normal...
Welcome to HW Bevel2, Congratulations on your Precious gift of life!!! My husband recieved his gift on March 16th. So far he has lost just about all the fluid, he may have a few more pounds to go. He...
Ma, I am so sorry to hear this!! I am keeping you in my prayers!!! Love, Teresa...
Pinkgrandma, I am so happy your husband is getting a chance with this drug!!! Enjoyed talking to you the other day!!!! Hugs, Teresa...
Hello to All the new ones here and welcome to HW. I do know what you are all going through!!! My husband is post liver transplant, March 16th, 2007. My husband had refactory ascites, he had several...
Hi Shel, Sorry to hear your husband had a set back with the varices. ESLD, does cause diabetes in some, my husband developed diabetes from the ESLD. Since transplant, the blood sugars are going down,...
Hi Wizdel, Welcome to HW. It sounds like everyone is giving you good advice here. You asked the question can I recover from the damage,,,,It is important to know what the damage is before the...
MissLissa, I can relate to what you are feeling right now, My husband was on antibiotics and then off, then he started having Cardiac problems, put inactive on the list, then he was reactivated. I...
Hi Misslissa, Welcome to HW. My husband was recently transplanted, 3 weeks ago. There are several centers that do transplants at lower MELD scores. Pittsburgh would be a good place to also be listed...
Hi Connie, It was so nice to talk to you on the phone! Keeping you in my prayers and sending positive thoughts. Teresa...
Hi Pati, Mark continues to do well, he is home now. Taking short walks in the neighborhood. He is no longer cold, in fact he has not been seen in his house coat and warm-ups since he came home. Mark...
Hi Doug, I have learned so much from this forum, and the alcohol abuse I have no tolerance for either. The site did help me manage my husbands disease, I am also a member to another message board...
Hi Doug and welcome to HW!! My husband had ESLD and hepc, he was too sick to treat when it was discovered. He recently recieved his Precious gift of life on March 16th. He is doing well and came home...
Venita, I am so glad he continues to improve. How have you doing since the reconstruction surgery. I hope things are going well for you!! Teresa...
Well said, everyone!! Doug you are so right, the Transplant Center my husband goes to would have dropped him like a hot potatoe also. I personally just don't have time, to be stressed over alcohol or...
Connie, My fingers are crossed for you and saying prayers! Yes, the drug is offering shorter treatment and very good results!!! I was looking into it myself as I tested positive for HepC in January....
Hi Pati, My husband is doing great, looks great too!!! He had heart problems last month and had been listed inactive, the surgeon saw him and reactivated him and less than 2 weeks after the visit, we...
Connie, I ditto donna's post! I had my gallbladder out 7 years ago, now I have IBS. Marks was removed a few year's ago, no problems with the "D". I hope your Pet Scan went well. Sorry you have to go...
Patilee, Welcome to the forum. My husband was just recently transplanted Friday. I know what you are going through. My husband was in the hospital 15 times in the last year. You need to get a FMLA...
Mark had a small set back yesterday, he has been having Atrial Fibrillation heart was running way to fast 130-160's, they transfered him to CCU and put him on a drip. Today they started the oral...
I have been reading all the post, I am so glad that Donajean has share the wonderful news with you!!! I could not help but have tears reading them, what wonderful support you have given me!!! I know...
Sorry Connie, my head is so fuzzy lately, I don't know if we are coming or going! I will tell you about it soon. I would also be very careful of going into a clinical trial also, for the reasons...
Connie this drug is no longer in trial, they stopped the trial and gave the real McCoy to all the participants, because the results were positive. They are now looking for the FDA's approval, which...
Hi Pinkgrandma, Sorry to hear about the cancer and listing status at this time. I have been keeping up with the reading. We are also going through some very hard times. I was on another message board...
Hi Venita, hopefully Jim will continue to do better, it does make it easier when they are. Mark periodic episodes of encephalopathy just floor me at times. He will seem to be like his old self, then...
You are right about the protein. But it is in the boost, they make it with high protein. After drinking the boost for a few weeks I could tell a difference in him and his labs got a little better. He...
Hi Kelsey and welcome to HW. Sounds like everyone gave you some good advice. I would keep pushing for another opinion also. I would also ask questions point blank, and not let up til They gave clear...