Hi everyone! Its so good to be connected with you all again! Ive really missed you all...My girls are doing great...I spent 4 months with our youngest daughter in myrtle beach this past winter...i...
Hi Hodaya, Janie, Val, Rosemary, Karen, I havent been on here for a very long time and I thought I would check in to see how people are doing...Its good to see your familiar "posts"...so glad to hear...
It's so good to hear from so many of you; Thank you for your kind words and Prayers! Things are continuing to go well; they are still torturing me at hand therapy but that is to be expected for quite...
Hi Everyone! It's been month's since I've talked with you all and I've REALLY missed you!!!!! I just got out of the hospital last week after spending 3 months and a week there. I had double pneumonia...
Hi Diane, Sorry I didn't get back to you yesterday but we woke up to almost 2 feet of snow and my dr is 3 hours away! So by the time we got home and got our daughter home from work, got in the...
Some have had success with an over the counter bulking agent, they haven't worked for me. I've also tried Questran but this hasn't helped either. Am on entocort (steriod) for the gut to try to help...
I took 6 pills a day as well as a capful of imodium before every meal for about 5 weeks but didn't have any success with it. I don't have an ileo, just a subtotal; been having severe diarrhea issues...
Janie- It's so good to hear from you; like you I always keep up with the news but haven't had time to post until this past week. So glad the miralax has worked for you!!!! I know you were having such...
Boat-Great news about your surgery!!!! You will do wonderful; just take the time to heal and foloow the low residue diet!!!! Allie-Please tell Lizzie she is in my prayers and there isn't a day that...
Hi Beautiful, This is Judy, I posted a reply to you on Looking for advice for Total Colectomy that I think answers most of your questions. I will briefly answer these questions then if you want you...
Kaylin- JW about your state bc when you mentioned Rochester, that's the city where I had all my stuff done but it was in NY. I didn't know of any Mayo where I go though, just teaching hospitals. ...
Kaylin- What state do you live in? Judy...
Hi Beautiful & Welcome!!! Though many on here have an ileo, several like me don't and many more have had a very successful surgery and a now out living their life. Sometimes they may stop by to...
Kaylin, It doesn't really matter how much medicine he gives you if you have CI the colon just doesn't work and most meds make you feel worse. I was on 24mg of Amitiza 2xs a day as well as the miralax...
FYI-Once you've had c diff you have a great chance of getting it again so many drs are very cautious about putting one on antibiotics. Anyone is at risk of c diff but if you don't have a colon you...
Kaylin, Most drs take into acct all of the abdominal surgeries one has had; I had 4 bikini cut, 3 laps & 1 open before my colectomy so my surgeon wouldn't even try a lap surgery even though it is...
Hi Kaylin, I wasn't in a lot of pain from my surgery but like you I've had many abdominal surgeries and have a high tolerance for pain. My surgery was open due to all of my abdominal surgeries...
Foodnag, I suffer from migraines and chronic kidney stones and usually have to have them surgically removed and stents placed. Last year I had to have stents in for 10 months. Normally urologists...
Hi Everyone, I know I haven't been on here like I used to and it isn't because everything is all great and I've moved on. I stayed on here and supported many people for a long time but things have...
Hi Kaylin and Welcome! I didn't have the traditional sitz marker test like everyone on this site as my gi does a very in depth study of the whole gi track and the markers. I started with a barium...
Ring, Don't take antibiotic use lightly, everyone is different; I ended up with c diff while on an antibiotic and had a very difficult time getting it cleared up. You may want to take probiotics many...
Yay Boat!!!!! So happy for you! You will be amazed at how well you will feel! My insurance covered everything 100%. I have BCBS. I never paid for one test or any follow-up either. I always thought I...
Hi Everyone and Welcome Boat! It's been forever since I've been on but I continue to pray for you all each day. So sorry to see that many of you are having issues. I regret to say that is the case...
Hi Everyone! It's been forever since I've posted and even longer since I've gone through the old posts. There's been a lot going on and I can barely make it through the day with the class I've been...
Hi Sonny and welcome to the site! I haven't been on here much since school started in Sept. bc I'm usually there until 6 or 7 at night and that's after I have been there since 7 am. This is an...
Hi Everyone!!!! Wow, so much time has passed since I have been on that I haven't even had time to catch up on the posts. I tried to quickly skim through them but as always everyday is so different...
Hi Girls, Hope everyone is doing well; noticed not a lot of action on the site so hoping everyone is enjoying the last few days of summer:) Have been very busy getting my classroom ready and trying...
Hi Girls, So happy that you are home Lizzie and slowly beginning your new life; YOU are truly a MIRACLE LIZZIE! LOVE YOU!!!!! Hodaya-volunteering ia a wonderful idea, it's good for your heart and...
Hi Girls!!! I know it's been awhile since I've been on, I spent a month with my daughter in Myrtle Beach and have been extremely busy since I came home Aug. 1st. I passed yet another kidney stone...
Hi Ontoo, I haven't posted in a long time but thought I might be of some help to you if you haven't already gone for your scope. I had 12 of them this past year as well as surgeries to repair my...
val, praying that everything goes well and you will soon feel like a new person. Thoughts and prayers are with you in the coming weeks. peace and prayers judy...
Hey Jenise-Wishing you the very best tomorrow with your surgery; have been praying for you as well as your husband. hope he is doing well. Hope and pray your pain is minimal and you are back on your...
Janie-So good to hear from you and that you are doing well! Your bowel habits sound similar to mine; I usually go 3-10xs a day depending on what I eat. If I eat a lot of wheat products I get backed...
YAY Hodaya!!!!! So happy to hear you are feeling better! /community/emoticons/smilewinkgrin.gif Have been praying for healing and will continue to pray for healing and a successful surgery. Love and...
Hi Katie's Mom, You will be amazed at how accepting children are; it's usually the parents that are the ones that ask the "quiet" questions. I'm a teacher of young children currenty 2nd graders but...
Hodaya-so good to hear from you and that you are doing well!!!!!! Keeping you in my thoughts and prayers always; continue to heal and sending youhugs and much love:) Janie-Am enjoying a much needed...
Hi Val, My surgery was a subtotal also and my surgeon left about 2 in; I haven't had any "accidents" but I do know where every bathroom is everywhere I'm at LOL. It's such a relief to be able to go...
Hi Barb, To be honest I can't eat a lot of cooked veggies as I will have D but I try to eat at least one serving a day; this even causes problems after the 3rd or 4th day in a row. I usually eat a...
Hi girls, Had a nice post to everyone the other night the poof it was gone and I didn't really feel like starting over. Hodaya-Been praying for you sooooo much and will continue to pray for a...
Hi Carly and welcome! This is a wonderful site with very knowledgable people who will always be here for you to answer any questions and support you in any way that you need. So sorry that you have...
Hey Tracy, So happy to hear you are doing well! Praying that your healing will continue to progress and that you willsoon be home:) Will be out of town for a couple of days having some tests done...
Hi Girls, Had a super long post written the other night and lost it when I clicked on submit. Am only going to write to a couple of people as I went to bed at 1:30 am this morning bc I was finishing...
Hey Tracy, Don't know if you are still up but thinking you probably are due to the PREP UGGGGHHHHH!!!! Praying that everything goes as planned and your body heals quickly. I will be thinking of you...
Hey Girls, Sorry haven't been posting regularly but am extremely busy with end-of-the-year school stuff as well as many things going on. A very close friend is having triple bypass surgery tomorrow...
Hi All, So sorry I haven't been on lately but I'm getting close to the end of the school year and there's soooooo much to do; I didn't get home yesterday until 7:40pm & I usually arrive at school...
Hi Alice, So sorry that your husband is much discomfort. I have been given flomax for several stones and am currently taking it for the next 4 mos following a 14 mo ordeal with stones, nephostomy...
Don't have an ostomy, but thought I'd join this cheerful bunch:) Have a subtotal; live in Binghamton, NY & all of my work has been done in Rochester, NY....
Hey Girls, Don't have much time to post bc it's already 11 & I have to get up early. Got great news from my dr; even though I do have a stone, it's in an area where it's unreachable and shouldn't...
Hi Girls! So sorry it's been awhile since I've posted but have had some serious family issues and have been extremely busy with school work, haven't been going to bed much before 11:30 each night and...
Hi Girls! I typed an extremely long post on Sunday then poof it was gone!!! and it was like 11:00 and there was no way I could start over bc 4:30 arrives way too early!!!!! Anyway, I only have a few...