Just adding a few facts to the conversation. As to the LDN, I've wished in every post that it works for the OP. As to you, couldn't care less - post away....
[quote="Anthonyv" im seeing a doctor in a couple days in regards to getting LDN and i'm still unsure about wether or not i can continue taking my azathioprine or not? do you have any idea?[/quote]...
The rest of the 1.400.000 Americans with IBD (roughly half with UC) are treated with conventional medicine....
Welcome on board, lmrobich. What a ride you've experienced. I know nothing about the lymph nodes or Remicade, but would like to offer my 2 cents and support anyways. First off, you ought to have a...
If the above posts were not blatant belittling of the OPs post - and I guess mine too - and a violation of the forum rule # 4, nothing is: 4. No posts that attack, insult, "flame", defame, or abuse...
:tongue: Well, we all make 'mistakes.' I've always taken the VLS#3DS with yogurt, but I think it's a great idea to take it with water; we can never drink enough water. Welcome back, moderatorlady...
I'd not eat it although I'm a vegetarian. But, there are plenty of 'UCers' who eat anything starting from suppositories....
Deal with it....
gloworm, Welcome to HW. Sorry to hear about your problems. It really sucks if one does not get into remission ever. People's experiences with meds vary very much. There are plenty of mezavant posts...
UC is one of the cruelest diseases I know. What you do is to keep on fighting, as you've been doing all these years. The camp would most probably had lifted her spirits and energy, so it's really...
14 Foods to Avoid If You Have Ulcerative Colitis http://www.health.com/health/gallery/0,,20500615,00.html I avoid animals....
Any moderators working today?...
I feel kind of stupid to render advice to you. I'm always concerned when losing weight. 8 lbs from 138 sounds a lot, but is easily explained by the diarrhea. The rapid weight loss is what concerns...
MAYO definition: Collagenous (kuh-LAYJ-uh-nus) colitis and lymphocytic colitis are inflammatory conditions of the colon that cause persistent watery diarrhea. Some researchers believe that...
I never understood how people can gain 400 lbs. When I was younger, weight almost was a problem for me, not anymore. I've experienced two things that have helped gaining weight: prednisone and some...
It's a huge jump from proctitis to pancolitis. I'm sorry to hear that. I've lived most of my life with pancolitis, so it's normal for me to experience cramping. Also, when people enter this board,...
Good for you. We need time off from this UC life. One week's effect can last for a long time, hopefully the rest of the year. I'm eagerly waiting for my grandsons three-week visit starting the end...
Darn, no enemas? It's her life! :tongue: Seriously, this is unbelievable. It kind of puts you in a weird situation after 17 years. From the bottom of my heart I wish the Mayo got it right this time...
Hi carmen, As far as I know, yes. Google it. Take care....
HunniBee, If you posses a good insurance, get your doc to write you a script (many times require additional paperwork) for VSL#3DS instead of VSL#3. It's prescription only and contains...
How long have you been using the rectal meds? Many times giving them a bit longer to work does the trick. I'd not be overly concerned about the cramping that is rather normal with the UC, even if...
I've some experience of the issue and techniques you've brought up. Simply put, they work. Take care....
Hi Louiie, Welcome indeed on HW. The colonoscopies depend on the severity of your UC. Usually UCers undergo a scope once a year. I'm in the category of every 6 months at times. Good luck to you....
Hi PFC, I think you believe right. The flare is most probably sneaking back. I don't think it indicates that your UC is spreading, just a flare that can easily be taken care of with rectal meds -...
I've gone through the colonoscopy some 25 times, and I've taken enough pain pills in my life that versed (IV sedative) isn't working for me anymore. The Propofol is the only route to go. It's a...
Yup, I concur, when you kick out the usual meds that have worked for years, you're pretty much left with: - LDN - SCD - FT - Some special other strict diet. - Apple pectin or other herbs - Nicotine...
I did not read everything due to the one paragraph post ... That said, I've been dealing with this for four decades yet to die from cancer. Yes, the truth is that the risk of colon cancer increases...
I've never experienced such head aches in my life, but UCers are a diverse group. Some people do have bad headaches, especially associated with bigger decreases in tapering. From 10 mg to 5 it is a...
Nikki, I'm not sure whether to scream here of joy or suggest calling for an appointment for second opinion. It's The Mayo Clinic we're talking about. How could they ever have been wrong? You...
Sorry to hear about the bad news. Hopefully something -- prednisone, imuran or LDN -- bites soon. BTW, is this the same doc that wrote script for LDN for you? All the best....
Thanks, maybe they'll arrange a 'triage' RN for me too. I'll keep you updated, and I may have more questions later. Have a wonderful day :tongue:...
You do comprehend, don't ya, that criticizing enemas is a tabu subject on this board :tongue:...
You should get help. There is no need to suffer from unbearable pain, regardless what the diagnosis is. Then you need to get, what ever it is, fixed. Good luck to you....
Hi Loves-Pearls, I just wanted to congratulate you and offer my 2 cents. It's quite usual in the beginning, after the docs have found what works, to reach a remission that holds -- stays for a long...
I think studies have shown the opposite. "People diagnosed with ulcerative colitis after age 50 are more likely to achieve symptom relief than people diagnosed at a younger age, even when they...
Yup, you just needed a stronger dose of prednisone. Hopefully your remission stays forever....
cyn555, At times prednisone generates side effects, as well as other meds. Some people get nausea from drinking a glass of water. Weird side effects disappear and people do reach remission....
Smurfette26, Congratulations! Sorry to hear about your UC struggles. I can't even imagine getting this monster at the age of 10. How can anyone handle that? The best news is that you're now insured -...
I got a call yesterday from the Mayo. They'd gone through my file and last biopsy reports and I received only good news. They finally received all my paperwork and I've got an appointment with a UC...
Sorry for the late response, meredithf As to the prednisone, what used to be 60 mg is now 40 or even 30 mg. I've had my fights with my GI group and they finally gave up and I'll get the dose I...
The UC does tend to get worse as time goes by, but ... I've found some kind of balance and still reach long remissions. Every case is individual. Some go from healthy to colectomy in weeks, others...
Good going, tournevice. I wish that the enemas continue to bite. 80% is fine. I usually don't get much benefit from enemas due to my type of UC, but when I used them, I loved the enemas. All the best....
MNBeachgal, Thank you very much for your response. I've only been dealing with the Mayo people regarding with the paperwork, which, for some odd reason, have not been easy. I'll make sure my doc will...
You're most welcome. I've repeated this many times, years back the initial dose of prednisone for me was always 60 mg or even 80 mg. Now the GI docs have decided that 40 or 30 mgs is the new...
http://www.sciencedaily.com/releases/2010/02/100208145055.htm Blueberries Counteract Intestinal Diseases It is already known that blueberries are rich in antioxidants and vitamins. New research from...
You're entitled to your asinine opinion. Probiotics have helped me a lot. I'm pretty sure it's the thing that keeps the balance in my intestines. Since I started taking it, I was in remission within...
TMP123, Welcome on board. I think you have been prescribed the meds that usually bite with your diagnose. The next step usually is either to adjust the current meds, maybe change some or to go for...
All the preps are tough. There has been a few times, especially with the Miralax/Dulcolax combo that went well. Last prep was a disaster. Hang in there. If this is what you need to do one a year,...
Hi brettxw, And welcome to the forum. Yup, it's a tough life living with the UC. I can't even imagine what's it like without an insurance. You started very young, I was about 19 when someone decided...
meredithf, Yup, UC sucks! It's unfair. When the meds really quit working, there is only one medical option for you left. Prior to that, I'd try the prednisone again. Should you decide to try it,...