joint pain - all over muscle pain - upper back, hips leg cramps foot pain stiff neck joint cracking all over body rice krispy sounds in my skull when I turn my head dizzy spells blurred vision sound...
I will try my best to keep this short I was dx with fibro back in 2014. But because I was having issues with benzodiazepine and SSRI I thought I did not really have it I am off the ssri 2 yrs and...
My worse one is my head...I feel like I am having a stroke constantly Very weird strange. spaced out feeling...also woozy/dizzy/off balanced had EEG and MRI both "normal" my list of symptoms are so...
Peteza, thank you for the links...I have taken the Horowitzs test...read his book...it was overwhelming the host of symptoms I have So I already do Epsom salt baths but not everyday will Google Dry...
well I am not sure if I am herxing because I have had bad days when not on ABX lymedriven, sounds like me....head/mental stuff is getting worse what are some non-herbal ways to detox? I take Epsom...
well that's not good news...I was only given the Doxy for 30 days by GP because I insisted...he will NOT give me anymore..my ND can not write out scripts besides my insurance will not cover this my...
when you "herx" what does it feel like...
Hi, I am on 100mgs doxy BID for 30 days as a "ABX challenge" someone at a support meeting suggested I try this to see if I could get a positive Lyme WB. I was negative WB with Igenex . Had band 31 ++...
well I have a problem that now I wonder if its Lyme induced. Back in 2013 after sonogram of belly (ended up having endoscopy and found I had H-pylori & SIBO....they found my rt kidney to be enlarged....
eating has no effect on my dizziness wish it did I would eat 24/7...
oh heres another one...DRY lips constantly putting on chapstick all day long my woozy/off balanced/dizziness is getting so bad I will need a walker soon...
what treatment are you on?...
neg two Elisa neg with Igenex had two pos bands though LLND dx by symptoms...
"End it all" oh how I feel that....all I do is cry every single day...I will not harm myself just want God to take me...NOW...
WOW...I only wrote down my worse ones but now I totally do not feel alone. Jenny you sound exactly like me with symptoms...I have been told for years its anxiety that's causing all the other stuff......
was wondering how many of you had neg blood tests but were dx by clinical observation....
so we have almost all the same symptoms...your sig suggests that you have basically treated with ABX mostly.. I want to try not to go that route because it seems that ppl get better but once off the...
Mine have been anxiety dizziness/woozy/off balanced spaced out head feeling/can not concentrate eyes blur/burn floaters Neck pain...horrendous Migraines Fibro pain...
my CNS symptoms are: EXTREME spaced head feeling woozy/off balanced/dizzy blurred vision/floaters/burning eyes ANXIETY akathasia I believe that I will be doing sublingually...
saw LLND and she said without a doubt I have Lyme...wants to test me for co-infections 1st for the next 4 weeks I am to take these supplements to calm my CNS down then we will add LDI (low dose...
Going for 1st apt with LLND this morning. as my mind raced all night..I remembered having what I thought was "ringworm" rash back in the mid 80's I may have had it 2xs can't remember...but definitely...
I have that symptom and I have not started any treatment...yet I had 48hr EEG and MRI done in Nov 2015 by neurologist told I have MAV (migraine /vestibular associated vertigo) It started with me...
My worst symptom is Spacey head/woozy/off balanced/dizzy...
well I have that so bad I can not drive most of the time and I am NOT on any treatment...yet...my 1st apt is tomorrow with LLND my worst symptom and have had it for a year increasing with time it has...
Any suggestions on what I might ask...tell (other than my looooong list of symptoms) I am so worried...I have to pay out of pocket a lot of $$$$ and whjat if its all not Lyme...what if its benzo w/d...
thanks all...but I am not new to this...I have been to MANY drs. and Have Heather Ashtons manual to go by...just was looking for others who can commiserate with...
thanks I will...
Ok I have that here too...how much of the ACV?...
anyone on here doing so? how is it going and what are you coming off of? I am now at 4.5mg diazepam after crossing over from 1.25mg lorazepam to 12.5mgs diazepam (Heather Ashton protocol) I am sicker...
I was on Klonopin and crossed over to Valium because it is the weakest but longest acting and therefore supposedly easier to get off... I am weaning by small amounts every 2 weeks but it is HELL and...
IgG was 41 & 58++ IgM was 31++ & 41 IND...
GOSH thank you so much...I am scared beyond words I have gone to many Lyme sites and have done some reading...waiting to get Dr Horowitzs book and Buhners book just wish I knew if continuing with...
I just found this thread/group last night. my woozy/off balanced/dizzy whacked head feeling is the hardest thing to deal with. Had MRI, 8 hr EEG blood work all normal My anxiety is off the charts now...
ANXIETY Mental confusion/woozy/dizzy/off balanced neck pain...
I am struggling with what may sx from tapering off benzo and what may be Lyme.. I tested Negative on Igenex though I was positive for bands 31 & 41 seeing LLND in Nov. question this but sx have...
I have been dx with IBS after 1st having h-pylori and then SIBO I find that my pain (which is daily) is 100xs worse after I take my three mile walk Exercise is supposed to relieve stress and be good...
Thank you for your reply, its as if I am invisible on this forum, no one answers any of my questions, so what foods are you sticking to?...
I am in the process of weaning off of Valium and do not want to take a prescription drug at this point. My IBS is really bad and just found enteric coated peppermint, it helped except there is a...
would cheese be a good snack? I am limited to so much now due to IBS and now possible pre diabetes. Still have not gotten my A1C results back yet...
I had H-pylori and then SIBO last summer 2013. treated for both and eradicated. Has left me with chronic IBS (according to GI) I explained to him that my pain is horrendous after being a wake for an...
I have chronic IBS and the pain is really bad in the mornings. Can this be a reason why my FBS are high and all post meals (2 hours) are in the 70-80 range...
oh btw I am 55yr old and am not overweight at all %'% 1/2 136lbs walk 3 miles daily what more can I do...Destress? I am going through w/d from tapering off a benzo so that's kind of hard to do and I...
I had a fasting Blood test done and glucose was 115. Dr said I am prediabetic. Diabetes is in my family, so I got a glucometer and have been testing for two weeks now my fasting average of 21...
hi the best place on the web is www.benzobuddies.org also look up Dr, Heather Ashtons manual and Dr Pearts. I am coming off .75mg clonazepam they advise a cross over to Valium which seems to be...
Ok I was just told by my Gyno of all people that to stay away from green leafy fresh veggies. I can eat them steamed or cooked but not raw My hubby has been "juicing" for a couple of months and my sx...
Theresa, God must have put you on my heart today, because out of the blue I thought about you and how you are doing. I no longer come to this site because I am in the process of tapering off my meds....
I know I have intolerance to both, my real question is why don't I feel the pain right away, instead of the next morning? always have pain in mornings...
why oh why does my gut hurt the worse in morning ? I can have the pain all the way into mid afternoon sometimes too. If I eat any gluten or dairy the night before its not till morning that my gut...
Therese, I am so saddened that you are still struggling as badly as you are. I am having a rough time also and therefore had to cut the texts between us out, was causing me more stress (I am sorry) I...
yes I get the "sunburned" feeling on arms back and shoulders...I always attributed it to anxiety but I get it everyday lately and am wondering if it fibro related...