I know! No real fruits either! How rude!! Lol! :turn:...
So...am I incorrect by stating that doctors don't know "what" causes UC, MS and several other auto-immune diseases? I, throughout my research have read many articles about genetic factors,...
Hi and yes thank you for your service! My hubby was a CO in the Army for years and has told many stories of being out in the field or deployed during Desert Storm, yep, we are old! Lol! So, I can...
I have been on Humira for about 3 1\2 months. I have seen signs of improvement, i.e., not as much urgency, less pain, some formed stools and less often. I do still have good days and bad days. I also...
I don't want to hijack anyone's post, as I see there are several with true concerns. Me...I just want to vent. I have had UC for many years and there are times I can eat certain veggies, not for the...
Well you can tell I haven't posted anything in a while, I just erased my whole response and managed to block you Sherry all in one touch of the finger!!! lol! /community/emoticons/shocked.gif...
Hey! I know I haven't been on the forum in forever and a day....that's a good thing right?! lol! I have recently had some issues with external ulcers...ever had them? My PCP thinks they are UC...
1hunter said... Hi Mamana monster? Yep, Mamana Monster! lol! A little game my son and I used to play when he was little, chased him around and told him "Mamana Monster" was gonna get him...the Mamana...
hmmm...interesting, I think I have had every test known to man to determine the cause of my constant hip/leg pain...I have said it must just be a MS thing, the more I read the more I believe that to...
I have read about it a bit over the past few days...would like to study up on it a bit more..don't think I will be able to take it if it has any similarities to Avonex...Are you looking into it?...
1hunter: Hope you are still lingering. :) I was dx'd with MS going on 4 yrs ago, I live in Tx and gosh do I sweat!! ugh... I haven't heard of the "no sweat, no gout" theory but I guess this wonderful...
Mamanan, Welcome and I hope you find some answers to your symptoms in the near future. I agree with Gretchen about the anxiety, try not to worry yourself silly, it doesn't help. ;) If it did I would...
Hi there! I too have difficulty with the heat and I live in Texas so it gets a bit toasty here esp during the summer months. I have difficulty with my vision and at times it makes me feel like I am...
Well, I had my first treatment on Monday morning, felt OK for the better part of the day. Later in the evening got a pretty bad headache, blue urine (novatrone is literally "Tidy Bowl" blue...
John, Thanks so much for the response. If you don't mind me asking how has the treatment worked out for you? Did you have any problems with it? Did the treatment make you ill at all? Improvement?...
Argh...I was so hoping that someone out there had taken this approach for treatment. I will start my first chemo (Novatrone) treatment on Monday. Guess I will be the lab rat! Ha!...
Has anyone taken Novatrone therapy for MS treatment? I initially started on Avonex but had to discontinue after six weeks when my liver enzymes were five times over the normal limit. I am now...
I also have double or blurred vision in both eyes. At first it was just my left eye, now I notice it from time to time in both. Since I have never had any eye issues, don't even wear glasses, I have...
I have these moments of vertigo as well. I try to explain it to friends because I never know when it will happen and honestly I feel so stupid when I'm standing talking to someone and BOOM! all of a...
I'm not the greatest at expressing my feelings, pain, symptoms, etc., esp. to my hubby, (he has a tendency to be overly sympathtic, I don't need that) but I do find it very comforting to be able to...
tehehe! Too funny! Thanks!...
Lizaa - I'm so sorry that you are having this issue but really glad that you posted the question. I too have been having issues lately, well, the last several months and thought I was just getting...
Hi Tertle! I don't have any wonderful words of wisdom and I haven't had to deal with all the lovely symptoms of MS for as long as you have but I wanted to say I understand about the stress and the...
Hi Nicaribbean! I too was told that normally you are dx'd with MS earlier in life, I'm 42 and recently dx'd. My GP sent me for an MRI then to neuro after having the "eye episodes", my neuro dx'd it...
Thanks everyone for the words of encouragement!! I will hang in there and hopefully this next dose won't be so bad. /community/emoticons/smile.gif Blessings!...
Cat - Thanks for the info...wow...I don't know how I feel about having a 103 fever every week. I woke this morning and don't have a fever, had a low grade one all day yesterday about 100, and I was...
I am sorry that I didn't post this yesterday, didn't get online, but wanted to say HAPPY BIRTHDAY! I really hope that it was a good day for you! Blessings, Teena...
Wow! Interesting stories and question... I can't base too much on MS and depression, although I have been experiencing some with it lately, but I can relate to depression and a chronic illness. Prior...
Hi Rhonda. I'm so sorry that you are having to go through this...the not knowing is the absolute worst. Please forgive my ignorance but I've only recently been posting on this forum, but there had to...
Hi all! I have a question, that most likely will differ for each of you, about the "flu like symptoms" you can get with Avonex treatments. I had my first injection yesterday at the doc's office...
Hi Lil Kimmie! Thanks for the feedback. My neurologist and I have decided for me to start Avonex, I start tomorrow. With all my symptoms and tests he and another doctor said it would be best to get...
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Hi Gretchen! You are right...as much as I hate to admit it, I am scared. I know deep in my gut I'm doing the right thing it's just not knowing how it will affect me. I'm sure it will be fine and I...
Ha! I meant do you own furballs!! tehehe! The toy sounds like it would drive the kitty's crazy, mine would probably run away from it. By the way...her name is C.A.T. (see-a-tee) a Persian, very...
Uppitycats, (cute name, do you have little fur balls too?) Thanks for the response. I thought that the primary difference between the two was the dosing and the side effects more often, ugh....
Hi all! I've been doing my research on treatments and my neurologist and I have decided to start with Avonex once a week then if not successful we will go with Betaseron. I can't really seem to find...
Thanks so much Linda for the comforting words. :) I guess the reason I am a bit nervous is because I had a spinal tap in the ER back about 13 years ago because I had viral menegitis and the wonderful...
Well...back from my GP's office and he agreed with my gut feeling to start the meds. Put a call into my neurologist afterward and let him know. Guess I will go from here...wish me luck! I'm sure I'll...
Hi and thanks for the responses! I'm going to meet with my family doctor today and discuss this further. May sound strange for me to want to get his opinion but we have seen him for over a decade and...
Hi all! I am a 42 year old confused woman! I have been through a variety of tests over the past month after experiencing optic neuritis that began about[b] two months ago, including an MRI that...
Hi Noitcudes! Red_34 posted your link over on the UC forum because of all the people over there that have been on prednisone. I thought I would chime in on my experiences with it, maybe it will help....
Hey all! I hopped over here from the UC forum and saw this topic. I have had the camera pill testing to rule out Crohn's. It is painless, the only thing that causes any discomfort is the monitor you...
Hey Randy! I'm so sorry to hear that you are going through such a difficult time right now. I can't imagine what I would do without the support of my family with this DD, I have UC not Crohn's but I...
What a wonderful accomplishment Dr. Ellen! Way to take the bull by the horns!! I'm from the UC forum but wanted to share my enthusiasm!...