Hey everyone, I haven't been here in forever (not sure if anyone remembers me)... I hope everyone is doing well. I'm doing ok I guess, waiting for the one day when I feel good again (and still...
Either your rheumy or a neurologist, whichever one would see you faster....
So glad to hear her first treatment went well... love her attitude. Keeping her in my thoughts. thank you for keeping us updated Lynnwood....
Yes, lupus can cause some of those symptoms however so can other things. I would highly suggest getting a neuro workup by a neurologist and let them know all your symptoms and see what tests they...
I think that I've read on some of my meds that may be a side effect however I have no idea which one. There is also something called multiple chemical sensitivity, my cousin has that. No one can wear...
Weleetka, Were you taking the generic or the Plaquenil formulary? I think some people can't take the generic because they are sensitive to the fillers. You may have had a reaction to that. That's a...
I get chest pain (and sometimes back pain along with it) due to costochondritis. Is this maybe what your rheumy was talking about? It really hurts, like a stabbing feeling almost....
I've been on Plaquenil since 2007, 400 mg a day. Although its a possibility, eye problems are rare from Plaquenil. That being said, my doc has had a case on another patient. It's important to get a...
Hi Patty, I'm like you, missing everyone too, nice to see your post and everyone here (hope you don't mind me tagging on it) :) I don't come on much. I don't use the computer much, not much time or...
I won't speak on the protein in the urine, only on the bilirubin. How are your other liver tests? If ok, it MAY (please see that I say may) be that the Lodine you are taking is causing a false...
Hi superdoo, I'm not sure what test they did so I can only assume its the ANA test. I don't know how often it comes up or if it does in UC. I know a lot of symptoms can overlap, I actually had a...
Although extremely rare when you are untreated(no meds), you can be ANA negative and have lupus. If there is enough evidence to suspect a lupus diagnosis and your ANA is negative, some doctors will...
I like the Genteal gel drops. They also have a nightime one that is a bit thicker. If your eyes are really bad (putting in drops more than x amount of times per day), there is Restasis as mentioned...
Nice to see you back misscali :)...
How was it? I did the one in my area on Sunday morning... it was great :)...
I agree about MD Anderson (I'm in Houston as well). Given that FAP is so rare, you may be able to get into some kind of program. It doesn't hurt to contact the hospital. In certain cases of rare...
I would suggest you contact your rheumy. Most likely the only concern, well at least for my situation, is that you are on antibiotics if you are on a high enough dose of Pred or other...
Since 2008 was a while ago, it wouldn't hurt to get your hormones checked again and maybe do a full workup with the endocrinologist. Thyroid issues can accompany lupus and other AI diseases. Also our...
(((Barb)))... I'm so sorry you are having troubles again. I'm keeping you in my thoughts that you recover quickly from this latest challenge you are facing....
Sounds like steps in the right direction. I'm so happy to hear of the positive progress. Thank you Lynnwood for the update....
Hi (((Carol))), I've been away for awhile myself and have started to dip my feet in again :) It's nice to see some older folks (not older, you know what I mean :P) along with the newer ones. I'm so...
Hi Serephina, I do get migraines, I'm not sure what stroke like migraines are but I get mild to severe migraines. Have you seen a neurologist for your migraines? Inflammation or CNS involvement or...
Hi Froggers, I'm going through something similar to you except I have a copper IUD now. I've been having a lot of issues with possible endometriosis but my doctor (gyno) really wants to take the IUD...
Wonderful Lynnwood! Thank you so much for giving us this great news! I'm sure Donna will be so happy to see you, please be sure to give her our love and wishes!!...
Hi lgail, I have anti-SMA antibodies as well in addition to others but I have secondary Sjogren's with Lupus. Yes, you need to watch for liver involvement with Sjogren's. PBC (primary bilary...
Thank you Lynnwood, will continue to keep Donna in my thoughts! I'm glad to hear that she is in rehab and that she can get out of bed and now talking, that is so great considering where she was the...
Hi slm, Looking at your medical hx and meds again, I noticed your are epileptic. I have a friend who is also and always had issues with not being able to gain weight when on his seizure meds. I'm not...
Hi slm, Have you had your thyroid checked to see if it's hyper? Are you having any GI symptoms like diarrhea, nausea, vomiting that could be contributing to the weight loss? I would definintely see...
Hi panther, Yes that was me who mentioned I was iron deficient. It was my iron storage, not my iron serum that led my dr to know about my iron deficiency. My ferritin was at 13 which he said that...
Wow, I have never heard of a titer that high either! I never knew it went that high. I agree that its so important to watch your diet. Be careful though if you go veg or vegan as we with lupus are...
Hi Randy, I don't know why but your symptoms keep making me think of adult onset still's disease which is so very similar to lupus but with one major difference being high fevers. It is very rare...
I understand also. You did the right thing coming here though because you will get the sense talked into you :) Many times I felt like that and I knew exactly where to go before I made the mistake....
According to a few sites I have seen, splinter hemorrhages can also be caused by trauma to the nail as well as you can get small clots although I still would bring this up to my doctor if I was you...
Hi randy, You definintely have a lot of symptoms that could point to lupus. It's just so hard to tell and lupus is just so hard to know as its called the great imitator. But I have to agree a lot of...
Hi Jessica, I agree with Bill. It's better to get this checked out, especially if it is recurring and I would recommend you see a neurologist - if you can, one who specializes in headaches. I have...
Lynnwood, thank you so much for taking the time to share this with us. This is very sad. Redrose was such a sweet person that had such a positive and uplifting nature about her. I know we will all...
Thank you Lynnwood for sharing that Donna is making progress, I hope she is still on the recovery path. I will continue to keep her in my thoughts and prayers....
Hi It's me dbab AKA Des ... I peep (lurk /community/emoticons/tongue.gif ) in every few days or so. My lupus has been more active than usual which isn't saying much because it's usually more on the...
Thanks Lynnwood for letting us know. I definintely will be keeping her in my thoughts and prayers that she is able to quickly recover from this....
Hi Amy, I'm sorry you had a rough time this holiday with what happened with your mother. My mother in law had a similar situation this holiday too. Earlier in December she had a heart attack and they...
RIP Hope :( Just keep those special memories close to you and know that you were special friends to each other, she had a complete life with a family that loved her dearly. I know the loss of a pet...
Stacy, Be careful with any product that contains any ingredient such as herbals or supplements, that's of course just IMO. If anything, I would just make sure to run the ingred list by your doctor to...
hey everyone, long time /community/emoticons/blush.gif .. I hope you all had a wonderful holiday /community/emoticons/smile.gif I have a bit of an issue that I'm kind of worried about but trying not...
Hi and welcome, I was also dx'd with UCTD before being dx'd with Lupus for about 5 years (beginning from my first symptoms). I had blood work that pointed to possible Lupus and Sjogren's but nothing...
Hi Patty, First, I just want to say how sorry I am about how much you are going through with all the things going on with your dad and your sister and your family. I can truly feel the sadness in...
Stacie, I'm so sorry to hear this. Sounds so painful. I hope the Pred kicks in fast and can ease the pain for you. Sending good thoughts your way. (((hugs))) Des...
(((Carol))) I know I haven't been around and it breaks my heart to come and find this thread to see you are in such poor health ATM. I'm praying for you and very hopeful and encouraged to hear that...
Thanks Amy, Babs, and Pat! You are right, I need to be here for support and also to give support. (((HUGS)))...
My ANA is sometimes positive, sometimes negative... my anti-Ro comes back highly positive every time its tested. No other ENA tests have come back positive for me except for my anti-Ro. I've been...
Hi everyone, I am just popping in to say hi. It's been awhile and I haven't been around but wanted you all to know that I think about you all. I have been so busy with work. Health not so good...