I had my loading dose of Stelara on 7/11/19 my crohns symptoms have continued to get worse. My Gi is sending me to another GI i really think he is not sure what to do for me at this point. I can...
Guess im the first to have these issues!...
Saw my GI yesterday and after two liver sonograms and a slew of blood work . My GI sems to think i have autoimmune hepatitis. He will be scheduling me for a liver biopsy . Has anyone else been dx....
Has anyone else started having liver issues and pancreatitis?...
Back in 2004 i was on Remicade for two years. went off it and other maintenance meds . I did well until October of 2017 had a partial hysterectomy that started my down hill spiral.Had a major flare...
I'm starting to think that maybe i have drug induced Lupus. My skin is really drying out more than normal and looks kinda like the butterfly rash. My joints have become so painful severly with...
I my self would definitely welcome a new treatment . As it is now treatments now come with bad side effects. I currently am having high liver enzymes on Remicade and LIialda .Had to go in yesterday...
Hi Susie and yes i'm back on Remicade been on it since Feb15 was in the hospital for three week due to a very bad flare up. I too have no been able to commit to this Fodmap diet. Kay...
Yes they are knots that swell in the neck also the back of my head and have had it once under my left arm. My GI has not run any labs on me even after me asking him to. My pcp ran labs on me and it...
So ive been in a bad flare up since October of last year. As of this past October ive started having swelling in the back of my neck and back of my head that comes and goes. Is this Crohns related or...
I was just wondering if any of you have tried the FODMAP diet. If so did it help with your symptoms. I have looked at it and my dr. suggested i try it. It looks like it's very restrictive and could...
Hi Straydog, thanks for taking the time to respond. Since being on the forum many things have happened.Had to take a disability retirement due to a back injury. I had to have back surgery in 2016 l5...
Thank you Lynn for reaching out to me . I remember meeting Donna in Atl. so sorry to hear of her passing. I haven't been on the forum in years . I miss Barb everyday and find it hard to come here....
Some of you may remember me. Had a terrible flare with GI bleed and my upper gi track was as inflamed as the colon. Took a three weeks hospital stay to get me stable enough to come home. So im on...
Hi everyone i haven't been on here in a very long time . Was reading this post and it's very informative .Thanks to all who contribute, So my hubby is in liver failure also with HE, He survived stage...
I miss Barb more than words can say.She was the one person i could tell her anything and she never judged . She helped me get thru the cancer treatment with my hubby. She will always be missed and i...
Thank you David, Barb impacted a lot of lives. Mine and many of us are truly blessed to have had her in our lives. She lives on in my heart and soul. Kay...
Donna,you are correct Babs did use the bridge analogy. She was a very caring and wise lady, i will truly miss her and Barb.Lynn i had stayed in touch with her mostly thru FB. After Barbs passing i...
I wanted to let you know for the ones that remember her. Mom 46 (Babs) who was a forum mod here at one time passed away yesterday.I know some of you remember her she and Barb and i met some of the...
Thank you Lynnwood !...
Thank you ppm guy!...
CONGRATULATIONS on your news. I wonder if that's possible with a decompensated liver?...
Thank you Lynn for keeping updated post on Barb. I did speak with her last night for a bit. What an amazing woman she is. Keeping Barb and her family in my prayers!...
Just thought i'd post a line or two. Chuck is still cancer free makes 1 1/2 years. If he remains cancer free for 5 years so we have 3 1/2 more to go we can try to get him listed for transplant at...
I fractured my foot in March and also have an inflamed tendon in it. So painful....
Barb i Love you and keeping you in my daily thoughts and prayers!...
Wow that is awesome news! Happy for you!...
So just a update Chuck has been fighting off a UTI been to the ER with him twice in the past month. On the brighter side of things found out that he has cleared the virus at week 4 of his treatment!!...
I was just wondering if having a small amount of bleeding with every bowel movement is considered normal with Crohn's. I had a colonoscopy earlier this year and it did show some inflammation in the...
Thank you both for your words of encouragement. We have been going down a long path to healing and i really don't think God is finished. MamaLama I hope Mike's labs came back with continued good...
I know it's been a long time since i posted last. I have been lurking some and feeling so lost hitting one wall after another. Chuck's hep dr is starting him on treatment for his hepc. We had a call...
Amy just wanted to say you are very blessed and may you have a long and happy life. Sending my love and prayers! Karen...
Well I really feel very discouraged and I do come here and lurk. I just have no more to say and keep hitting dead ends. I happy for everyone here that's getting much success in the new drugs and a...
:shakehead: Wow unreal!...
Seems like arthritis is taking over my body. The only joint I've never had pain in was my knees. As you can see I'm using past tense. Woke up about a week ago and my left knee was popping and hurting...
Hope everyone here is doing well and finding some relief. I'm still around at times mostly reading some times in chat and I do frequent the hepatitis forum . Wishing everyone here some pain free...
Hey Barb, just wanted to let you know your always in my thoughts and prayers. I hope you won't need the ER. I do know the last time we spoke on the phone you did sound pretty bad .So if you did have...
Hey look I'm back on top!...
Today I logged on and noticed my post at the bottom of the page. It hit that that's how things look and only God knows for sure when he's ready to take him home. I'm very aware of what the reality...
Thank you Splash, not sure how you do this. I know theirs no choice often you just have to manage best that you can. We met the transplant team Tuesday things were going well, until Wednesday the tp...
Splash my heart really is breaking for you right now. I know I don't post often but what your going thru really resonates deep to my core. I wish I had words to say that could comfort you and take...
Thought I'd update and let you guys know we have an appointment on the 15th to meet the transplant team. Any and all advice is welcome ...keep us in your prayers and thank you all. :yeah:...
I wanted to update you guys on my husband. We went to our appt. at Piedmont a few weeks back to meet with the Transplant Drs. of course they wanted all of his records and the actual disc of his scans...
They said there was not enough research to support his case. So I guess that was their way of turning us down. We do have an appointment with Piedmont in Atlanta tomorrow so please pray we get some...
I called the Mayo clinic today and they told me they have nothing they can offer us....
I had to call for an ambulance yesterday. Chuck had a really bad night and started running a fever and started shaking uncontrollably. We tried the usual things and nothing was working so I called...
Thank you MamaLama for asking we saw his hep dr. yesterday. She had us fill out the paper work to have him evaluated for tp at Piedmont here in Atlanta.So we are still waiting haven't heard from the...
We received a call from the Mayo clinic Friday and they told us they can't send his records to the hepatology dept. That he has to go to the oncology dept. so I'm wondering if their oncology dept....
Thank you all I feel very blessed to be able to be even saying the word transplant. Fifteen months ago he was given a death sentence of six months to a year. Now we are starting a process I didn't...
Thank you both for the positive replies it really helps give me some hope here. Karen...