This is where I've gathered a lot of info. The site seems appropriate to me both as a consumer and a healthcare prof. Let me know what you think. Thanks for the tea! [color=#800080>
Red, Do you have a means of checking your blood pressure at home? Edema can be caused by a multitude of things and your Dr's apparent neglect of it seems more that they don't know where it is coming...
Ugh. So the latest is that I have primary Sjogrens which consists of only dry mouth, secondary Sjogrens as a result from other auto-immune disease (i.e. Lupus) presents with both dry mouth and dry...
On my way to the rheumatologist to get the latest results...Please wish me well! I'm a bit anxious /community/emoticons/confused.gif ...
Not mad Ann - tired. Sick and tired of being sick and tired. I'm so sorry you're feeling like this, it sucks. Know that you're thought of and prayed over. Wish I could do more to help. :(...
Ok...so I'm a bit late to join the conversation, but I relate soooo much I just had to give support! I too am a Nurse and I know how the staff on my floor deal with those they see as drug seekers...
Hi all! I just put sunscreen on now along with my morning mositure cream. I have completely natural stuff I use for mositure cream and then I add in the sunscreen...flourescent lights have always set...
Ok, so I'm now about going crazy. (As if I haven't already been and stayed there). I think my rheumatologist is leaning toward connective tissue disease as opposed to straight out lupus. So that...
Awww Red :( If I lived closer I would come over and start an iv with just normal saline and monitor the drip for you so you didn't have to wake up once!!!!! Consider yourself squished (((( )))))...
Carol, Thanks for you post. :) It's funny how being miserable is just kind of a way of life. I am flat out just terrified of steroids. Yep, I've only been on plaquenil for a bit over a week. I see my...
Please don't think my response insensitive, that is not my intention. Sometimes I feel as if I don't laugh at myself with this disease all I'll do is cry (and sleep). Just an afterthought on my post....
I'll see your lupus rash and raise you a discoid rash with a clear nose? :)...
Hi Bee, Thanks for the info. I wouldn't mind if the lupus was confined only to the skin! However, I have systemic and am continuously (for the past 6 months) flaring. I have been anti steroids for...
I've been posting quite a bit about the discoid rash I have. Yesterday before I went to work I had an idea. After my 12 hours my face is [u][i]so hot and flaming it's just awful. Anyhow I thought...
I'm sorry to scare you Victoria, I don't think that yours would be chronic since they do seem to get worse and better. Mine just kind of .... stay there. With them getting worse at night when you are...
Why does it seem that prednisone is most often prescribed? Is it the best for all over tx. or just the most familiar?...
I was just reading the post regarding swollen glands. Does anyone else have lymphodenopathy (Continuous swollen glands)? Mine have been swollen for years, to the point where they are actually visible...
10% cortisone...now there's an idea. Thanks Ginny! My whole non steroid stance comes from when I was 15 (in high school) on prednisone and was laughed at for months, it sucked. You'd think at 34 I'd...
I am so greatful to my sister for giving me this website and ecouraging me to use it! I FINALLY feel as if people get it. Thank you, thank you, thank you! And thank you for not bashing my...
Does anyone else have the discoid rash instead of the "butterfly" rash? What has worked on it for you? I've described mine below in the post 'many questions' Would love to hear any suggestions!...
Hi all, I had a similar thing years ago. The dots were tiny, but all over the place. It ended up being purpora ( dots caused by tiny bruises), my platelet count ended up being 5000 (Normal...
Rosie, Your reply was so well balanced with care, information and realism~! Thank you a million times over. I've always been afraid to post d/t people automatically assuming what works for them is...
Hi, I'm new to this forum it was recommended by my sister who deals with other autoimmune issues. I have SLE and a ton of what I call additives that come with it. I have been diagnosed on and off for...