Any advice on anyone here that has had any experience.. lemme know. thanks all ... Oh I have hired an atty too......
Ginny?...
WELL HELLO GINNY!!!! Yep its me. The one and only Kookla! How the hell are you? I am doing alright. Its been a rough year to say the least. My marriage of 8 yrs ended. So we are trying to settle on...
I dont want to scare you because I do realize there are some people that can and do need pain medication and can control them. I however am not one of them. Oxycontin is a rich mans heroin. I am not...
Haven't been on this site for a while.. thought I would check in and see if anyone is familiar with these tests. I actually havent been feeling that great lately. Not on prednison but have had way...
Thanks Babs.. I will keep u all posted......
OMG seriously? Thats so scary.. I cannot even believe how many ER visits I have already had this year. I was forced to switch from a HMO at work to the only avail insurance. A high deductible. I hit...
Hey there.. I did do alot of research on Discoid Lupus because thats what I was first diagnosed with.. I developed the rash.... They did biopsies at the dermatologist.. they even did blood tests. I...
I really dont know at all what is going on with this pain I am having. I was in a major car accident on March 15th... I really have not been the same since. I have 4 cracked ribs from the air bag and...
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I just feel sick and passionate about this at the same time. Right now I am just strickly dealing with straight up pain every day. WHY? This is because I was completely dependent on OXYCONTIN! Its so...
Honestly if you want to mess up your life go for it. It ruined three years of my life and I have been off of it since October 2007 and I am still not the same person. Its addictive. Its a terrible...
mm your not on line... I will try you tommorow Gin... Loves Steph...
GINNY! I miss you! You bring real tears to my eyes and I feel a pain in my heart when I talk to you.. People reading this may not understand that.. or think I am a nutball... MAYBE I AM.. LOL... WHAT...
GIN! GIRL... I am so sorry....I dont even know what to say..Actually u know I cant say crap. NOthing I say will make you feel better hon... I have been there and It feels so horrible.. So Violating.....
THanks for the reply... I appreciate it.. I am resting up.. trying to... I just washed my hair today and its been almost 5 days. I couldnt do it.. too cold.... too hot. sweats... no energy.. high...
Okie and Rosie Thx for the reply. No they put me on a high dose of Antibiotics. Currently I am luckly to not have to be forced to take to prednizone yet, I dont know why my face is sooo swollon. I...
Thanks Rosie. I will.....
Gin! I am ok, How about you kiddo? How ya feelin? I hope well. I hope everyone that I have not talked to forever and a day is ok.... or better, I xame down with bronchiatus and the fever from hell...
My comp is flippin out,,,,/i was hopeing maybe you were around,,,...sorry holding a puppy and cant type right!...
LOL I laugh w/u not at u..... atleast you know what I feel.......
I have not posted for a while... sorry everyone.. I am sure everyone can understand the hell we go through.. MY LIFE IS HELL RIGHT NOW. I have been home for a week on FMLA.. I have Bronchitus and a...
Jenny WOW, I have been there... I am on FMLA too.. have been for three years. I cannot work overtime, I cannot work saturdays and sometimes I am late in the morning because I simply have bad...
Thanks Ginny! Big hug for you and I am sooo happy about your news and that you dont have diabetes.. THAT IS GREAT! SO HAPPY FOR YA! You should celebrate! You need some cheesecake or something girl! I...
Mellissa You know what Melissa, dont listen to me.. I am just being a pain in the butt. Cellcept is really all not that bad. I have just been going through some rough times lately. Alot has been...
Ginny Yea I know... I know.. I am just so tired of them. Tired of all of the medications. Not just the Cellcept. Sick of it. I feel like I have been on it for an eternity. I dont cancell doctor appts...
I have been in kidney remission for a year or so and I am still on a super high dose of cellcept. 25000 MGS a day... There are days that I forget to take the five pills... but for the most part I...
Im surviving.... I have not been thru the ordeal you have this year.l. I commend you.. I am proud of you.. I gotta hand it to ya girlfriend.. YOu are doing a wonderful job .. and it sounds like your...
My Bday is Feb too. Are ou a picses? 20th?...
JUST WANTED EVERYONE TO TAKE A COUPLE MINUTES AND GO BACK AND READ GINS POST.. SHE IS A ROCKSTAR!!!!! YOU ARE SO AMAZING GIRL!!! IM PROUD OF YOU!! HANG IN AND GO GET A MASSAGE IF YOU NEED ONE!! lOVE...
yea it sure is crazy how it all works... Its just crazy.. The more I think about it though.. the more I feel compelled to cover my husband nomatter what the cost... For better or for worse right? Yea...
Yea I am suggesting to my husband that he should look into health insurance at the U. He just started Graduate School so who knows when he will finish and ultimatly he is healthy so he doesnt need...
Oh yea Gin and the hair loss.. Welcome to my world.. If I dont clean the drain after every shower it would become a massive hair pile.. I loose soooo much hair... If my hairdresser quit I would just...
WOW Ginny! You have been thru a tremendous amount of stress and I am really proud of you for being strong and making it thru all of that. That is remarkable. I hope you know that. I read your story...
Got a word from email and then a letter in the mail at work.. I have had good insurance up untill now.. I pay a large premium to have an EPO.. I can go to any doctor... 35.00 co pay and its 15 for...
Thanks ladies...
My girlfriend at work is dating this guy.... kinda got a little seriouse so she says... anyway... this is sooo dumb and I dont know why I am posting but I thought I would ask an opinion from people I...
Does anyone here contact their Rheumatologist for a UTI? Or not... just wondering... seems like he has treated so many of my problems because of meds and stuff that I am on I would think to call him...
Hello Kristin Greetings! Well in answere to your question regarding my meds. I am no longer on prednisone. I was on that for my Nephritis.. wich I see you also have.. but the Cellcept I am on for the...
THX Marji... I appreciate you telling me about your experience. I appreciate everyone telling me. Is helpfull. I thought I was done with suprises and tests and being in the hospital. Hopefully this...
I have actually had several MRI's. I was just more questioning the experiences anyone here has had with the brain scan and if they found any lupus involvement in the MRI... what they found in the CNS...
Has anyone ever had a brain scan.. (MRI probobly) to see if the Lupus has attacked the CNS? If anyone has had that done can you tell me about the scan and the findings? Just want to know what people...
THanks for all your comments. I am still worried about my leg. It hasnot happened again.. My doctor is out of town for a week. I will probobly call him when he returns to let him know. But it hasnot...
To the front door at 2:00 AM to let my dog out. I dont know why she had to go in the middle of the night. But Why would my leg be soooo numb? I mean it was like I was stepping in a hole.. I cannot...
Wow..... I was just browsing the posts last night and came across this http://www.butyoudontlooksick.com. .... Well I have heard of the spoon theory and knew what it was about but never took the time...
I have been hacking up green goo and prior to that had the sore throat and stuffy nose.. No it moved to my lungs. My Rheumi called in the ZPAC for me... Im on day 4 and still feeling like crap. So I...
The nurse called me back and said he wanted to call me in a ZPAC and to see if that helps me and if not to call back after. I asked what he thought or said and she said just to see if it helps and to...
I personaly have chosen to be on FMLA. Stands for famliy medical leave act. Its a nationwide LAW... Your entiteled to I think 12 weeks a yr... Mine is set up to be intermittent... so I can call in...
I did call. I left a message with the front desk. If I could just speak to my doctor every time it would be fine. But I know that half of my message or more never gets back to him. I will let you...
Thanks guys. I guess I will call the Rheumy and leave a message for him and see what they say... Maybe he wont want to see me... I dont know......