Hi all, Thank you for your support, prayers, and well wishes. My dad and I greatly appreciate them. I am posting the link to her obituary for anyone who would like to look....
Hi everyone, this is Nikita, I am deeply saddened to tell you that my mother passed away this morning. At around 7am she went in to cardiac arrest because her lungs no longer converted oxygen in to...
Hello all, Nikita again. This morning at about 7:15am my mother was placed on a ventilator and is now no longer breathing independently. Her oxygen levels have increased since this morning but her...
David, I'm sorry I've not been around much to support you. You have, however, been on my mind daily. I hate that things have become so serious for you. Why, some of us must suffer so I don't...
Hi all, Nikita posting again. It appears that she has Interstitial Lung Disease (ILD) which is a condition in which the air pockets in your lungs are permanently deflated and scarred. Ultimately the...
Hello all this is Nikita, Barbara's daughter. She has been admitted to the ICU to be watched. Talking, deep breathing, and walking all cause her to desaturate to roughly 70 which is around the number...
Hi and welcome to the lupus forum. To answer your question Joy is correct that the ANA can be positive and then negative. When DX'ing lupus Rheumy's look at the criteria listed at the lupus...
Hi and welcome to the lupus forum, I'm sorry that you needed to find us to ask a question though. I do not have lupus nephritis nor have I ever had it. We do a few members that do and hopefully they...
Hey Donna: I've finally managed to drag my sorry you know what out of the bed to try to do some posting. I noticed this thread and I wanted to let know what happened to me and possibly it may help...
Lupus is so different among each and everyone of us. Some of us have worse cases versus others. Flares are affected by the medications you're taking and how long you've been on them. Remember, lupus...
Hi everyone: Thank you so much for checking on me and caring about me. I have to say, right at this moment in my life I feel like, NO ONE, but you all care about me. As I mentioned in my previous...
Hi Everyone: Sorry it's taken me so long to respond. I was back in the hospital last week for a nasty case of C-diff again. I had hoped that the Fecal Transplant I had back in May would prevent me...
I too have lupus and Fibro. My fibro was dx'd before my lupus, way, way before my lupus was DX'd. It seems common that Lupus folks also have a Fibro Dx' too. The two of them are so alike it's hard to...
David: I'm so GLAD this surgeon was able to put the dots together for you. I'm relieved and worried at the same time for you. This sounds like a huge operation for you and I'm sure there are many...
Hi all, I know it's been awhile since I stopped by. I've really been having a difficult time. My arthritis has flared up in my right had so bad I can't even turn the door knob on my front door. I'm...
Hi and welcome to our forum, I'm sorry that you've had to join us. This is a great place to get support and information on how things are going with lupus and other auto immune disease. I'm not...
Chart: I'm so sorry that you're not seeing the results as fast as you'd like. I noticed that you mentioned they think you may have UCTD. If that's the case you know it may be affecting your healing....
David: My friend you and I are in the same boat and I totally feel for you. I know that I've not been around a lot, I honestly have been struggling to keep my head above water. I know that you're...
Hi all! Thanks so much for caring about me and asking how I was doing. Sorry I've been MIA for so long. I've been dealing with a lot of stuff lately and I was afraid I might say the wrong thing. To...
Hi All: I'm here and I know I'm a few days late on posting my response as promised. It's now 4:19 am and I'm totally wiped out and need to sleep some. I'll come back later to give a full update and...
Struggle Bus: It does sound like you need to pace yourself a lot better. These types of diseases can really drag us down. You and I are the same age and I understand that feeling of like your 80...
Hi there and welcome to our forum. I'm sorry that you've been feeling so unwell and I know that you're worried. I've had lupus since I was 23 years old, I'm now 50 and it took my Doctors 13 years to...
Hi There: I have to agree with both Lynnwood and Joy! You're only making your situation with anxiety worse, by "searching" on the net. You need to stop and just take a deep breath in and out and try...
Good morning everyone: Sorry it's taken me all week to update you. A week ago I was sitting in a hospital room, this morning I'm sitting in my bedroom writing to you. I was discharged last week from...
Hi Donna, Diane, Joy, Chart, Linda, Thank you for your kind words and prayers I appreciate all of your caring posts so much I'm currently laying in my hospital bed have to say I'm already sick of...
Hello to all my dear friends: I know it's been a VERY LONG time since I posted. I'm sorry for that, but my head hasn't been in a very good place lately. I was afraid that I would say the wrong thing...
David: First off, happy belated birthday. I'm sorry I didn't manage to get on here Monday to wish you it on time. I was laid up in bed with a fever of 101.5. I'm really sorry that your Dr allowed is...
David: (((((gentle hugs))))) I know that I've not been posting to your threads, however, I've been reading them every day. I wanted you to know that you've been in my daily prayers and on my minds a...
Hi Everyone: I'm sorry that I'm not addressing each of your individually but I'm just to sick at the moment to handle much. I'd like to thank Lynnwood for starting this thread and keeping the updates...
Hi there sounds like you've been thru the ringer and back. I can totally relate with you though. I've had lupus since I was 23 yrs old, I turned 50 this past February. It took my doctors 13 years...
Hey Joy, UA, Diane, Chart and Lynn: Just thought I'd let you know how I'm feeling this morning. I spent most of yesterday just feeling like out of sorts. I tried to refill some prescriptions but...
David: I'm so sorry that you've suffered this loss. I know how hard it is to have a parent pass away, I know when my Mother passed I thought my world had stopped and would never restart. Even though...
Hi Chart and everyone: Sorry I've not posted in a long time. I just have been feeling so poorly that I don't even want to sit up and watch TV. My poor fractured pelvis seems to be not healing and...
David: So glad to see your post. I emailed you several weeks ago and didn't hear back from you. I was beginning to worry that something very serious had happened and there was no way to find that...
Hi all: Thanks so much for your prayers and well wishes and following this thread. It really helps me when I read your posts and it really makes me feel loved. Need a lot of that these days I'm...
Hi Zulily: I'm so sorry to hear about everything that's going on with you. You have every right to vent and be upset. It sounds like you're getting the "standard" run around with the Dr's. I went...
Hi Mimi: Welcome to the forum and I'm sorry to hear that you're having foot numbness. Yes, it can be a symptom of lupus. A lot of us ha neuropathy and it causes the numb feeling. Some of us take...
Thanks everyone for your prayers and well wishes. I'm sorry I've not been posting and updating you a lot. I have to say that the pain of a fractured hip/pelvis is NO FUN AT ALL. I truly believe I'm...
Leapyear, I've had lupus a really long time as well as fibro and a slew of other things. You mentioned that your titer was low, do you know what the number is? As you know there's not a specific...
Hi Everyone!! I want to say first off thank you so much for your caring support and well just everything!! I'll post more when I'm able to, I'm not sleeping to well and my pain is thru the roof 24/7....
Chart: I'm glad your appointment went well. I'm sorry that you've been strugling so badly again. You'll be in my prayers and (((hugs))). You know what's been happening with me, so I'm not staying on...
Rocckyd: Sweetie I just wanted to say I'm sorry that you're having to go thru all of this and you're just to darn young to have to. ((((((((((((gentle hugs))))))))))))). I'd be scared too and I know...
Morning ya'll: Yep, it's 1:20 am in my time zone and I'm not in bed yet. I guess that's what I get for going to bed last night at 8:00pm I felt so badly last night my legs and feet were numb and...
Yesterday was a very difficult day for me. I didn't sleep well that night and as you can see by the time I'm posting now, I'm not sleeping tonight either. It's only 3:12am and I'm wide awake. Anyway,...
zulily: Here is an article that was on the Lupus Foundation website I believe this should answer some of your questions on lupus affecting the thyroid....
Hi everyone I'm sorry but I'm not quite up to addressing everyone by name tonight. I just wanted to give an update on how I'm doing. Which is NOT GOOD. Today I saw my Doctor and she confirmed that my...
Hi, sorry I haven't responded sooner but I've been really ill. I have had the Rituxan infusions, I did mine back in 2008 I believe. I did a total of 5 infusions and my counts dropped very low and my...
David: ((((((hugs))))), hey man what on earth are you doing? I first want to say that I'm sorry I've not been around to support you, like I should have been. I've been in a very dark place as of...
Hi all: First to all the new members welcome to the Lupus forum. I'm sorry that I've not come on and posted on your threads, but I have read them. I hate it when I read on here that more and more...
I'm sorry to hear about your friend and his situation. I've had lupus a very long time now and I have to say I've never heard that tick bites cause Lupus. Honestly, researchers DO NOT know what...