I too am allergic to the sulfa group-must be why I was never prescribed any of the migraine drugs....
I am sorry you are in so much pain. I have been trying to figure out how to best treat my pain as well. Lupus and AI diseases are so tricky, we never know when they will hit--you said narcotics give...
I was recently put on Oxy Cr (debilitating lupus headdache) and I am a bit worried about taking this drug, but I know I need it. I am wondering if any of you have used it and was it effective? Also,...
I think it just highlights how insensitive some physicians can be about SLE...or maybe their lack of knowledge about the disease....
Thanks. I should see a neurologist. I will ask for a referral. I think mentioning Lupus at all scares most Docs to death. My (old) GP told me he' d rather have R.A or AIDS than Lupus. How rude!...
Thanks for all your responses-- To Audrey, What kind of meds do you get from your doctor? Is it along the same lines as Norco? Are pain clinics effective? Do you find that (some) Docs are scared to...
Carol, Thanks so much for replying. I think being in a "group" will do me good. I did tell my rhuemy that it wasn't helping, and he said he'd have to put me on super addictive meds since the...
*Also, what do you use to treat severe lupus headache?...
Hi, I am new to this forum. I have had SLE (diagnosed) for almost two years. Last August , I experienced the dreaded lupus haeadache for 5 days. I really wanted to kill myself, because I thought it...