I've always gotten headaches even before I was diagnosed with Lupus. Usually, I just took extra strength tylenol but when that stopped working my doctor prescribed Midrin. Which you took when you got...
Okay, so it's been a few days. The first day when I came home from the urgent care on sunday I felt a little better. That monday the swelling did go down a bit, I think it was from the solu-medrol....
I'm currently on a fairly low dose of prednisone at 6mg a day. But when I started, I was on a high dose before so I'm familiar with it's side effects. I'll be on the high dose for a week, and...
I posted not to long ago about losing my health insurance. That's the bad news... The good news is that I applied for the state's high risk pool and got accepted, however there's a 2-3 month wait...
Hi sorry, I didn't see this til now..I do recommend the injection. I got it on both eyelids and I haven't had a stye or chalzion since, and it's been over 2 years. Which is amazing for me because I...
Someone from the patient advocate did end up calling me back. They took down more info, and told me they would look into what resources were in my area and then call back again. That was yesterday...
Oops, it looks like I was reading old information. Apparently the 36month cap was lifted and you can stay on the program as long as you want now....
Thanks for the advice.. I'm still going to try and appeal the denial, but even with my doctor saying that it probably isn't going to help. I'm not going to keep my hopes up on that. Also, I haven't...
So I went to go drop off the letters today and for the most part the receptionists were nice and said they would leave the letters with my doctors. However when I tried to leave one at my...
Thank you, I'll try and call first thing tomorrow morning since they're not open today. To talk to a case worker to see what my options are and if they can help. I have all my letters for my doctors...
I'm trying to stay as calm as possible, but I'm not going to lie I'm scared. I get chemotherapy every six months and I'm about to reach that mark when I'll be needing it again soon and that's usually...
I haven't posted in a while but I was diagnosed back in November 05 and I also have APS and need to take coumadin. The past few years have been crazy, I've been to the ER four times, hospitalized,...
I notice my eyes get really red and have a burning sensation if I'm out in the sun too long. The eye drops helps a little bit, but the sensation doesn't go away until I've been indoors and rested...
I do have a really good relationship with my Rheumy. She's been there for me since the start and we've had monthly follow ups for about a year and a half. Now I see her once every three, but I still...
Oh no, I hope you start to feel better soon. Chest pains and not being able to breath are the worst feeling ever I swear. I'm keeping my fingers crossed and sending prayers your way as well. In...
For the most part, for the past year I've been pretty stable. I had severe chest pains back in July 07 and couldn't breathe and was rushed to the ER. I stayed a few days, but they couldn't tell me...
Hey Carol, I do not have kidney involvement either, although for the past few months my kidneys have been spilling protein on and off. My doctor said that's a sign of the Lupus still being active. I...
I've been on Cellcept for the past year and a half. I'm currently on 2000mg a day and I honestly don't notice to much of a difference. But my labs have been somewhat stable, so I'm taking that as a...
I take about 15-18 pills depending on the day as well. I bought a weekly pill case at dollar tree that's labeled by the day and has four compartments that work out well. I actually have four of them,...
I'm on Rituxan, I get it twice every 5-6 months for the past two years. I know I responded really well to it the first couple times and it's helped me with tapering prednisone. Before that, I've been...
I'm glad you're okay now! Tapering pred is no joke, and even with the consent of my doctor I was having a lot of issues. I've had to bump myself back up on the pred a few times because I just...
The last few days, I've been having some chest pains. And it seems to get increasingly worst. The last time this happened, I ended up in the ER because it got so bad I was having trouble breathing...
This is an interesting thread. =) I'm Chinese and I don't think ethnicity played a role in my case. No one in my family has any auto immune disease. So I'm the odd ball one in the family. I'm not...
Hopefully a rheumy and dermatologist may be able to help you with your rash. I had horrible malar rashes on my face, red, dry, itchy, bumpy, to the point where they were bleeding. Over the counter...
The soles of my feet get swollen sometimes. I was just wondering if it happens to anyone else? I've tried massaging, soaking, and just trying not to walk on them. But of course, that doesn't really...
My last rheumy visit was on July 26th and everything went fairly well. I decreased my Cellcept due to my WBC being low and my hair was falling out at an alarming rate. So my rheumy decided to cut...
I woke up this morning with a swollen knee. I can't bend it without a sharp pain shooting down my leg. Hobbling down the stairs wasn't fun. And I had to take my dog out for a walk because he refuses...
I get a bunch of bruises all over too from the prednisone and coumadin. It's just one of the side effects from being on the medications. I find that massaging them helps them go away faster. But as...
I know the feeling of having to slow down and catch your breath. Sometimes the people I'm with forget, and they just speed walk through everything and I just can't keep up. Hang in there and just...
I get stomach issues everynow and then too. Sometimes, it comes after I increase med or get a new one. So I'll blame it on that. But other times, I haven't changed anything and I'll have stomach...
Tell me about it! My hair's been coming out lately and it's the worst it's ever been. And at my most recent doc's appointment, my rheumy said it might be because I'm taking too much Cellcept too. So...
I woke up from a nap on Friday afternoon with chest pains and difficulty breathing. My brother brought me into the ER and they brought me right in to do some blood work, EKG, and a CT scan. I ended...
I've always got headaches and migraines. But ever since I've been diagnosed, they've gotten worst. They're usually pressure/tension headaches that make me feel like my eyes are going to pop out. I...
Yeah, that was my original thought at well since it's summer and there's a ton of bugs outside. It did swell up and then disapeared after a few days. And now that's it's reappeared and seems to be...
Yes, I emailed my rheumy to ask. I'll email my dermatologist as well to see if I can get a better response. I haven't seen my primary care physician in over two years, since most my doc appointments...
I have this weird lump on my head. It's maybe the size of a quarter, it actually appeared last month. Which I brushed off as a bug bite because it just felt a bit swollen like how a bug bite feels....
I eat yogurt everyday and it has natural probiotics in there. I don't want to add anything to my current medication schedule, but it works for me. It helps calms stomach sometimes when it gets upset...
I'm using triacinolone acetonide ointment for my hands/rashes and I'm not particularly fond of it. It's a thick ointment and when my rashes are bad it stings like crazy when I put it on. So I don't...
Yeah, my arms are usually pretty unpleasant looking. I don't think I would mind the bruises so much, but they seem to take a long time to disapear. I usually try to rub or massage them out which...
I bruise very easily, and it doesn't help that I'm extremely clumsy as well. So I always have a bruise somewhere especially on my arms since I'm always bumping into things. Sometimes a few appear out...
The past two weeks or so, I noticed my hair started coming out again. First it was just a few strands here and there. On my pillowcase, my towel, or on my shirt. And now, it's just coming out...
Well, my appointment was this morning and everything went fairly well. My doctor examined my eyelids and explained everything to me. I have two chalzions on my eye lids since the glands are not...
The ophthalmologist that I will be seeing is one that my rheumy referred me to. So he's familiar with lupus and auto immune diseases. I had a check up with him last year just to make sure everything...
Blah! So now I have one on my left eyelid as well, and the one on my right eyelid is still here and just as big as it was. It's pea sized on my right eye, and 1/2 peasized on my left eye. So my eyes...
My rheumy is out of town for the week and won't be returning until Monday. But I spoke with the doctor that is covering for her at the moment and he said that I can go back up to 10mg of prednisone...
I don't think I'm handling the prednisone change to well. I woke up feeling completely sick today with a headache that made my whole left side throbe. I slept early last night because I was tired and...
My appetite fluctuates as well, I'm usually really hungry when I wake up in the morning and usually eat more then. And then it's just snacks through out the day. Sometimes my medications don't agree...
Oops, I had one more question. What containers do you guys use to sort out your medications? I'm on so much stuff that they don't fit into my pill sorters anymore. Especially the capsules since...
It seems like everytime I get to lower a medication, I also have to bump up another medication. So I always end up taking more then I did before. So I had my routine rheumy appointment today and my...
I was severely anemic at one point, and my mom made me "liver soup" and made me drink the broth. I just started coumadin as well, so I couldn't eat any dark leafy greens like spinach or it would...