Hi, i am dropping in here for a short while. Presently in hospital, PD has been ruled out even though twin has that and we are identical. I am being prescribed akineton and wonder have any had...
I rang the endocrinologist, he said I took two tabs at midnight prior to doing this test and suppressed the cortisol so the reading was ok, as my cortisol was slightly high he wanted to see if I had...
I got sick again on Saturday, I am doing too much. I got astounding cortisol results, it was SO low. The cortisol ref range is AM 138-690 PM 70-345 Mine is 27.6!!! Methodology used Siemens immulite...
back in hospital, I have a partial resection obstruction which is causing me to vomit everyso often Now being treated conservatively and will be considered for Inflexi something or other, what is...
Hello everyone here, I have been sent an appointmemt to go see a psychiatrist and not until I see him will I get to see the neuro, nor get my DAT scan result. I feel this was foisted on me and cannot...
ginny en all! I am feeling much better today, I think Gingin, it was your prayers, defo. I have never felt so ill. I didnt get a great sleep but I went early and this morning I never felt such a...
I often thought my art practises since 1997 might have kicked off my neuro symptoms. Especially lead in white paint, although I am not sure if it is still in oil paints anymore. But also white...
Tried the Parkinson's nurse at the unit but I didnt hear the phone go when it rang as am deaf. He left a message to go to the GP for the pain and that the professor had arranged an appointment for...
thanks Laura for that. Way, way beyond what I can afford I am afraid. I wouldnt be insured either from Ireland to go there, so it would have to be out of my own pocket and I am single and have hardly...
still not recovering from the bloody hospital vomiting bug. No more vomit or s.. but very very weak and get shattered in an instant. No energy. crohns also flared as did the sjogrens. So meds for...
Ed, to even get INTO the neuro system can take up to two years, be it private or public and people have died in the waiting! We have 11 neurologists in all of Ireland to deal with a population of...
Still no dx on the Parkinsons. Twin still thinks I have it. I am 'pill rolling' alot now and the dystonia in the morning is grim. I go into a massive contraction of all muscles and usually shout out,...
I have had three vomiting attacks since before Christmas. The first was put down to food poisoning, the second, I donno, and the third was contracting the 'vomiting bug' when visiting a rheumy last...
hey, redrose, please contact by email, forgive me but I cannot find yours at present. Everything was set to 'send' but couldnt find your email to send it to. Sorreeee. xann k...
HI,oh Redrose, I have your email eh? Must send you pics of my dinky little van too!! She is called 'Mrs Obama!' the 'Driving force' behind Ann. Now Redrose and GINNY here is my GOOD news, I have...
thank you for that advice my friend. I came in from a very difficult walk to a letter from the neuro who referred me to a psychiatrist on our first meeting. I had been in the psych system for FAR far...
New Van so I am now Ann with the Van!! with purple and pink flowers on! Flower power rules OK! Bloods back, took a few months to come back CK is 358, the prof. who I have now left sent me the results...
ginny, you are an inspiration, er, well you AND the proof of good medicine I have to say. You have been suffering for SO long chuck. xxann with the van...
This is very interesting. I have an obvious muscle wasting 'disorder' and most evident in my extremities and a weakness in legs and arms, eg reaching up, down and walking etc. But although I have...
Thanks to you both for your responses. Yes, Redrose, the knee is killing me now! My flat is fab despite the state of its major structure as I have made it my own and a real palace I have to say. The...
This is a MEGGA problem for me now in the last four years. I have no interest in food at ALL! I eat the wrong foods and most food I am now allergic to. the usual ones we all know. I drink 'fortisip'...
Was back at the Lupus Unit in London UK, the director and the doctor seeing me says I have sjogrens and not Lupus. I am to find a rheumy in Ireland, well that will be difficult! I am relieved cos the...
Hey chuck, being ashamed of being sick!!! Well, I DO understand that, I really do. This is a feeling brought on about 'difference' and difference is not viewed well in society. That is a result of...
Barb, I'm thinking of you big time! I havent been here for a while, first time back I thought of you and how you were doing. sorry to hear you are in hospital. Hey Barb, my companions now are two...
Hi Ginny, lovely to see, er, read you are back. Constipation, not a prob with me AT all since they lopped bits out of my lower colon and I am exactly the complete opposite. but do walk and rest, when...
Ginny! You BACK! have you had the op? HOw ARE you now, lovely to see you here again. Have been thinking of you every day. xxxxxAnn...
Severe burning sensation in soles of feet and palms of hands and knees, now involves lips and inside of mouth. When very bad cannot put my two feet together, too painful, flesh against flesh, same...
Here goes. all my bloods are fine, for Lupus but I have a positive ANA at 1 in 400. the gastroenterologist says that it is non specific and that a lot of women have this! well, i understand about all...
Does anyone have this. the palms of my hands, soles of feet, back of calves, knees and now my lips and inside bottom lip burn like hell. The worst now is the lips, it is very very painful indeed. It...
My thoughts are with Ginny ALL day today and I wonder if the winds were blowing across the huge watery divide from little old Ireland here. Ginny chuck, I am thinking of you heaps, heaps, heaps,...
I have been on Entocort 3mg daily more times on then off it since 2002! In the beginning was on it daily for 5yrs! I only come off it for short periods. At present on 9mg daily as in flare. About...
I am concerned about Serina, Serina do please go to ER just to check everything is alright with you. anyone who does know Serina more personally, keep us informed about her wellbeing. We are all...
GINNY!!!! Now, I presume all the doctors concerned know your history, that is your general practicianer, the person who looks after your lupus, your bloods and the surgeon. They would never do an...
Ginny chuck, was going to email you alone but I wanted my other friends here too, to know that the CAT scan indicated that there is enough crohns activity around the join of the surgery to cause my...
Firstly roxette! Would love to meet up. I am not sure if my email is in my profile, we both might have to ask admin how we communicate. NOW, the GOOD news is that I got the results, well my gastro is...
No, no results but I hope to get them today. Conor, the doctors here have utterly destroyed my confidence in the breed. I have been put through the wringer by four, all at the same hospital and have...
I peeked in here tonight too, as I popped into the Crohns, cos I have a bad scare there. Hey, hey, hey my friend, GINNY! You are Always in my thoughts, and Maggie Mai and Ana Chi are just longing to...
My doctor is a good one, I think, although he let me out of the hospital with an infected wound which burst two days later, even though two junior doctors spotted it the night prior to leaving. We...
Are you IN ireland? No I am ok today, I am going to try and do some work here. I will ring the consultant later, or even ask my twin!!! talk about passing the buck. xAnn...
Hi Conorconan, Firstly thank you for your speedy encouragement. I went for a strong walk along a gailforce seafront with my two chihuahuas, even though I was in pain and legs weak but I had to go....
Went to have a colonoscopy today, I was feeling AWFUL and had spent almost 48hrs asleep at home before it. Usually it all goes well, get a light sedative and I watch the screen and the camera going...
Pain not improving and still feel bloated. Not eating much. Can't. I think it was food poisoning. I think it has triggered a crohns reaction. Am too terrified of more surgery. Taking steroids until I...
Oh, baby food veggie and broth, sound great idea. I was hoping that this bout wont set off the crohns, I really, really, really have enough probs! I will buy some of that tomorrow. Great idea,...
No havent been around for a good long while. Well, I think it is food poisoning and having crohns is not helping it all. I am sure a whack of the steroids until I see consultant for the scope will...
After a few hours in the hospital, they xrayed me and said everything looked fine. I had alot of runs in the morning, really really bad runs. and today not a lot past through, as wasnt eating much at...
Hi everyone, I am still on the go, just about. Been really sick of late, food is now pathologically bad for me to touch, eg, I find I never feel hungry and eating is a struggle as I dont feel like...
Been getting really sick with one thing and another. gone off food mega and very tired all the time. was careless with food in past few days I think and I may have gotten food poisoning. reheated...
Xanax, I feel is a very severe med. I dont like it and yes, with all these meds you have to come off slowly, if poss. I would ask your friend to give Xanax a wide berth. I am only on a mild...
This topic really interrests me and so do the meds people take. I really, really do not intend to hurt the person who wrote up their meds and added, wife and mother of three. I laughed hoots, do you...
When I am very tired and done too much my finger joints pain AND itch! I kinda pull and scratch em. Twin asks how can your joints be itchy? Well I ask the same question? does anyone experience this?...