Hey Jennifer Heck yes. I felt great for 3 months...then once day the fog made it over the hill. Some time last week. EVer since then I am quickly getting worse. Everyday a new symptom re-emerges! I...
"Its never Lupus, except when it's Lupus"...
Mom- what did you eat that night for dinner? Very important question. I am wondering if you had any of the following... -Tomatoes -Potatoes -Bell Peppers -Eggplant -Legumes : peanuts, lentils, peas,...
Rosie is right, IMHO ofcourse. Plaquenil takes so long to start working, and its starts wroking gradually. SO you dont truely realize how well it IS working. I keep thinking I can stop taking it but...
Rosie- I researched my butt off when I first got sick. The nightshade group came up so much I thought I would give it a try. At first I just cut out tomatoes, since my reactions always came within 10...
Sister...from the day it started ...December 14, 2007...I felt sick& feverish. In waves though. One minute I was fine, next I was out for the count....
1. ) What do you think may have been your very first clue(s) that something wasn't right?-- In a matter of 5 days I went from happy and healthy to swollen, severely sick, serverely swollen, 3...
If its more of a knot then I know what you mean. There is a thread about this from a few weeks ago. They are hot to the touch..itch and burn and also painful. Check the other thread for more info....
I am doing superb! My plaquenil must have finally started working and my new diet minus all triggers is working great as well.For the last month I have only had 2 minor flares. One lasted only 3...
Yeast hasnt been a noticeable problem for me. My mom gets headaches/migraines from it though. For me I can eat cake, bread and pasta no problem. But since I am trying to keep of water weight from...
FOr me my diet has 100 percent affected me. I went on a nightshade free diet. SInce I started it ( it took maybe 4 weeks to start working-my body had to detox) all my symptoms are down 99 percent -...
I know EXACTLY what you are talking about! No one ever does know what I am talking about. Doctors look at my crazy. I made a post on here a while back and everyone thought I meant a rash, but its...
Embriderymama- My last post was started by me and finished by my boyfriend. He was diagnosed with epilepsy when her was 15, he is 26 now. I do NOT have seizures but I did want to tell you that many...
embroiderymama- I say try it out. Just be careful about you daily activities. Its great that you dont drive, since its summer I would also suggest staying away from the pool or ocean. Tell you...
Any help would be lovely! I have been posting in the Lupus forum for a few months now. SInce until 3 weeks ago I was diagnosed with lupus. In December 2007 @ the age of 25 I very rapidly came down...
I was reading about this lady who was diagnosed with lupus and actually had M.E(Myalgic Encephalomyelitis). The symptoms are the same...plus many more that I have and dont 100 percent sound like...
I think everyone is different because sun exposure makes my rash on my legs lighten within 20 minutes and my hives lighten up fairly fast. I have always been good in the sun though. I never burned or...
I have every possible symptom. Chronic fatigue, exhaustion, fevers, joint pain, breathing problems, chest pains, swollen hands and feet, anemia, severe flares, knots in my feet and hands, burning...
I was thinking of starting to exercise again. I saw people talking about water aerobics. Are there any other exercises anyone can recommened. Keep in mind, I use to(last year) exercise 7 hours a week...
canuckgirl- I wasnt saying argue in a rude way. I ment argue, as a healthy debate. People should definitely do their own research. Also my friends dad telling his daughter how much he got is not...
You may be able to argue about xylitol. However splenda aka sucralose is HORRIBLE. Everyone I know gets either a rash a headache or a stomache ache after eating anything that contains it. My friends...
I don't mean to be rude but I dont think he has "you dont look sick" syndrome. Especially if you are in a serious flare, because I bet you look VERY sick. I think he has a "jerk" problem. I wish I...
Plaquenil is a goodsend for me...as I am sure many others. The only problem I have ever had with it is dry mouth/thirstyness....I never want to stop drinking--ever! Before I was a freakin camel...I...
My doctor told me allergies for a month. I can tell you for me, it was NOT allergies.My doctor finally agrees. I get like that alot. Chills and my throat especially. I take a clariten Hives . One...
Well now Im just paranoid. I have that blue stuff in my toilet water so I can't tell anything with by color. My feet and eyes are ALWAYS puff, since I first started with this whole lupus thing 4...
Tobacco is a nightshade. Like I always say, nightshades are evil. It will cause the same reaction as tomatoes or peppers. It's poison, but hey, who needs tobacco anyways! =)...
I hear a lot about kidney complications with lupus. Its made me a little nervous and I was wondering if there are any signs I should watch out for? Or things I should not eat/drink/do to insure my...
Gagirl I drink chai tea everyday:) Also you should really try to stay away from peanuts aka no PB&Js =( Its sad for me cause I love them. Peanuts are legumes, which are nightshades, which is pure...
Plaquenil is one of those drugs that you take for so long before it works...and it starts working slowly...you forget its working, and then want to stop taking it. Its actually on the side effects...
Little Cookie is right about pineapple but some people need to check because pineapple and grapefruit can have interactions with certain meds. Just a quick FYI :)...
MJLD - thats what I mean exactly! Today I only had some fruit , water juice and tea and I feel pretty good. Patty- I have already figured out my trigger foods and stay away from them, they are...
Finally I had a great day today! I looked great my hives and rash disappeared. I lost about 15 Lbs of water weight overnight!!!breathing is great, no pain, no burning, no swelling( besides my chest...
Its insane how some people can have the same identical issue and one thing works for one and not for the other. Vicodin or percocet actually stops my itching. I take a half of one before bed. If I...
Thank you everyone for the response. I have an appointment with a rheumy that is not until next month. I think I will call on Monday and talk to the doctor directly. The receptionist won't help me...
I am sorry for people that have had horrible problems with it but I have been taking it and am not addicted at all. Some days I would not have made it to the hospital if it wasnt for that drug. I...
I always have those symptoms and do NOT have the flu. I actually think that its not the flu. You described exactly how I am right now actually. I never hear anyone say anything about a sore throat...
Splenda is evil. Its bad for everyone not just people with lupus. Ever since I was young anything that said sucralose or aspartame will make me extremely ill....
I am 25 years old. Thought my life was perfect. I am a student and promo model. Just started doing great in both. Live healthy. My family history is amazingly perfect, no one has ever been sick and...
This is a pretty late response but I just wanted to say Mogaly was right especially with the nightshade veggies which also includes beans and SOY. A lot of people say things with out real facts. I...