Hi everyone, Y'all probably don't remember me...it's been a while since I checked in; quite a few months actually. Just wanted to check in tonight and see how everyone is doing. As for me, I am 5...
Thanks, Ginny! Still feeling really icky today, and as luck would have it, there's a big writers' conference I'm committed to tonight and tomorrow. I really, really don't want to miss any of it, but...
I havent' felt well today...kind of sinusy, nauseous, just overall feeling of "ick". The past few hours, the lymph nodes under my jaw have been achy and they're tender when I press on them. At least...
My husband had PTSD when he came back from Iraq. Like you, he was VERY good at hiding his true feelings for a while, but eventually, the facade came down and when it did...whew. We nearly split up...
Just wanted to post a little update: my mom came to the rescue! She had a Z-pack that she hadn't taken, and she gave it to me. (Safe because I've taken zithromycin before and knew it was OK for me.)...
That's how I understood it too, Rosie. Our bodies can actually make enough Vit D through sun exposure, but the sun isn't needed to get the benefit from supplements taken orally....
Thanks so much for your input! You guys always calm me...I have been a nutcase trying to get ready for this trip! LOL It's good to hear that others have been bitten but nothing came of it. I will...
We were putting flea treatment on my favorite cat tonight...I love him, I really do. Max is normally a big cuddle bear, but when we get out the Frontline...he becomes a MONSTER! Anyway, DH was trying...
Hi again! Here is a link to one of the articles I found: http://www.westonaprice.org/basicnutrition/vitamindmiracle.html I didn't keep links to some of the others I read, but it's pretty easy to find...
My rhuemy has started testing Vitamin D levels because of all the new research showing the link between deficiencies and autoimmune disease. (Actually, the research isn't that new. A naturopath told...
I went to the rheumy two weeks ago, and I have a new problem: costochondritis. I know I've seen some of you mention it on the board before. I'd been aware of vague chest wall achiness, but didn't...
My hands hurt all the time, despite having a normal MRI of them last year. I don't know what that's about, but I definitely plan to use some of the tips shared in this thread. THANKS!...
I know I'm very late in sending my apologies for not coming...please forgive me for that! I ended up having car trouble that weekend, and only got my car back last week. DH had other committments...
That wasn't a very clear subject line... What I mean is, do you find that just being out in extreme heat can cause you to flare, even if you're careful to stay out of direct sunlight? I know I'm...
Yeah, I definitely feel that way sometimes. I told DH the other day (after apologizing for complaining yet again about joint pain) that the bad thing about chronic illness is that I want to complain...
I took myself off of it last year due to stomach issues. It took me a while to figure out that the reason I was feeling like crap again all the time was because I did that. (Yeah, I blame lupus brain...
Hmmm...I never knew that could be a part of lupus, too! I have night sweats a couple of times a week. I never even thought to mention them to the rheumy. I always assumed I was just hot-natured. And...
Thanks for all the input, ladies. Now I'm scared! LOL I will call the rheumy tomorrow. I hate calling again...I have been so high-maintenance between appointments this time. But I've never done that...
This is kind of TMI, but I thought it was worth asking since I don't see the rheumy again until the end of June, and I'll probably have another cycle before then. Warning, if you get queasy easily...
I'm doing OK. We had a very busy May, and it was a quite "flare-y" month for me because of it. I started myself back on plaquenil because in retrospect, I think it really did help make the flares...
Thanks for the replies, ladies. I'm still struggling along; able to do some things but mostly still feeling icky. It just helps to be able to share with people who will understand and not just think...
A flare started very suddenly tonight. I can't remember the last time I had one hit me this quickly. I had a busy weekend (hosted a baby shower Saturday morning and it took most of Thurs. and Fri. to...
I can't imagine how scary that is for you...I will keep you and Alexander in my prayers. Please let us know what the doctor says....
Babs, I sent one last night. Did you get it? LMK! Thanks!...
Sulfa drugs make me soooo nauseous and pukey. This happened YEARS before I had any idea I had something autoimmune going on. So it was interesting to find out that they aren't good for us....
I have looked into it as well after a friend had a wonderful experience with her lap band. I was all excited about it until I learned that it's not for people with autoimmune disease or anyone who...
Oh cool...we live in metro ATL. I haven't been on the board in a while, but I would love to meet some other people in real life who also deal with this autoimmune crap. I'll send you an email! Thanks!...
I haven't been to the board in a while, but I'm so glad to hear you guys talking about this! I always wondered if it was just me! The only other time in life that this ever happened to me was when I...
After four years, I'm still waiting for an official diagnosis. The first two rheumies said I had lupus. When the second one wanted to leave me on prednisone indefinitely, I found another doctor. I...
Oh, absolutely! It's been nearly four years for me. Four rheumy's later, they still aren't sure what exactly is going on with me. Two said I definitely had lupus, two said I didn't. I've had positive...
Audrey Ann, you are so sweet! I love your ideas and will definitely implement them. I'll probably be at the Dr. on Monday because this feels like a sinus infection now. And the mechanic let us know...
Hi there! Sorry I've been MIA since the last post...I bet you can guess why? LOL The move has gone ok. We hired a teenager to help, and between him, DH, my oldest son and my sister, I didn't really...
I had an awful bout of those a few months ago. I started taking my multivitamins again, and used an antifungal cream (nystatin) on the mouth corner cracks themselves. Not sure which did the trick,...
Gloryroad, that does make me feel better about it. Thanks for sharing!...
It's so funny that someone posted about this here today, because it's been on my mind a lot lately. I've also read that the lap band is contraindicated for anyone with autoimmune disease and even...
Thank you for all the insight and advice. I have been taking it! Plus, it just helps to hear that others have, at times, just had to say, "OK, I know I'm risking a flare but this has to get done." It...
I posted quite a while back, asking for moving advice. It took a while to work out the details, but we finally closed and this is moving weekend. We moved all of our heavy stuff today. I was careful...
Thanks so much for the replies. I have been so busy lately, I kept forgetting to check in again. The sore is STILL there! Thanks for all the useful hints. I will try them and let you know what works....
This has been one of those weird things for me, but I've it happen a couple of times this year. I get a raw, red sore right in the corner where my upper and lower lips connect. I've had one now for...
Thanks for all the great tips! I kind of like the idea of getting rid of half our stuff. The house we're moving to is older than our current one, which translates into more square footage but WAY...
That's moving as in, moving to another house... Long story, but the house we thought we'd move into at some point later this year, is actually going to be available in about a month! It's in our best...
I'm sorry you are going through so much! /community/emoticons/sad.gif Sending hugs and prayers, Barbara....
Hugs to all of you! So many here are going through so many difficult things...things that would be hard whether one was battling a serious illness or not! I can totally relate to the feelings of...
I've noticed the past couple of weeks, that I often feel cold. It's not fever-related chills...I've taken my temp just to see. I'm ordinarily the kind that stays hot in summer...even with the a/c...
My stomach has been bothering me off and on for the last month or two. I was having a series of "good tummy days" at my last rheumy appt. so I forgot to mention it. I googled lupus/gastrointestinal...
I guess this is a sensitive issue for many of us. I didn't mean to make any attacks or cause disruption by my response...I love this board and wouldn't want to cause any problems by my posts. I...
Jen, for me anyway, the lupus and the weight are two unrelated disorders. I have been fairly close to the same weight for over a decade, and would've never ever considered it to be a disability...
Thanks so much for the support, guys. It means a lot to have this forum, where people understand so well what I'm going through! I'll have to remember that rabies comment...heheheh! Thanks again!...
So at my last appointment, my rheumy filled out the paperwork so I could get a handicapped parking placard to carry with me. Though I know that on bad days, I will really appreciate saving some...
I agree with the others: you're going to have to tell her that you won't watch them if they're sick. Granted, they say that people are most contagious before they show symptoms...so there really...