Hi, I know how you feel about getting a diagnosis. When I was first diagnosed I was happy for the diagnosis because it meant it wasn't all in my head, yet I wasn't sure if I really had Lupus either....
Thank you for posting these. I will share them on my Facebook page....
Hi Butterflake, When I am flaring I barely move. I usually don't stay in bed, but move to my recliner and that is where I stay for the whole day. I get too achy if I stay in bed too long. I know how...
Hi, Getting a new diagnosis is always a little scary. Just take things slowly and make sure you see the Rheumatologist. They most likely will do more tests on you to hopefully, get a definitive...
I live in Phoenix, Arizona which is great during the fall and spring, but the summer's are awful. The heat is unbearable for me. Luckily we have a pool so we can cool down in the heat of the day....
Hi, I have not heard of a problem like this so I can't really help you out. Hopefully someone will come along with more knowledge than I have. Did you see your urologist yet?...
Hi Lynnwood, I haven't been on here for awhile but I will make it a priority to check in at least once a day and help. I didn't realize that people weren't posting as much and leaving you with a full...
I am so sorry you are going through a flare. I just got recent labs back an my inflammation markers are all elevated so my rheumie is going to give me an injection of steroids . It is hard to stay...
My condolences to you and your family. Your mother was a great encourager to so many people on this board. I am sad to see her go but glad she isn't suffering anymore....
I too, and keeping Barb up in my prayers. Hang in there Barb!...
Thank you Ashaline for that Information. My doctor did say if it doesn't go away we may have to biopsy it. He mentioned skin cancer, too. So I am really hoping it goes away with the steroid cream. I...
Well, I went to my doctor and he said that I have excema, not Discoid Lupus. He has given me a steroid cream to use. I sure hope it helps because I am getting another one on my face. :-( Hope you all...
Thank you Ladies for the information, concern and prayers. I am seeing my primary doctor tomorrow to get a referral to the dermatologist. I will let you know how it goes. Thanks, Mary Ann...
Joy, I guess we are kind of in the same boat. I am hoping my doctor will send me to a dermotologist, too....
I was wondering if it is possible to have Systemic Lupus and also Discoid Lupus at the same time. I have begun to break out with a almost round red scaly blotches. I have one on my face and one on my...
Thank you all for your replies. I spoke to someone who does insurance and she told me that because I am under 65 I don't qualify for a Medigap policy. So to keep my doctors I guess I am just going to...
I have qualified for Medicare but I am totally lost as to what is the best way to go. Does anyone have any advice. My doctors will only accept the Original Medicare. Thank in advance. Mary Ann...
Just thought I would share this with you all. I find it absolutely ironic! On Monday, I went to the ophthamologist for my eye checkup for Plaquenil. Well, they did the works including dilating my...
Oh no, Joy. I am so sorry for the diagnosis of RA. I have been taking MTX for years and I really don't have a problems with taking it. It actually helps me feel better. The only side effect I have...
Hi, I was diagnosed with MCTD several years ago. At first I was okay with just plaquenil, but I started having flareups that were preventing me from working. My Dr. put me on Methotrexate. I, like...
OH Barbara, I know how you feel about the loss of your pet cat. I have two little chihuahuas and I would be lost without them. I am home alone during the day and they keep me company. I even talk to...
HI, Don't know if this is what you are describing but when I have overdone it, my legs will hurt and lock up on me. They get really stiff and it is hard to bend my knees and ankles. It goes away if I...
HI, I was wondering if you had been checked for Peripheral Artery Disease (PAD)? It has some of the same symptoms that you have described. My cardiologist keeps an eye out for me on this. I don't...
Hi, I just got back from Disneyland and was able to ride whatever rides I wanted to. However, I don't like roller coasters, so I didn't do any of them. Pirates of the Caribbean was as wild as I got....
LadyBug, I am glad to know the symptoms ease up. I have been afraid to take it but the buzzing and tingling is driving me nuts during the day. I will start taking it more regularly and see how it...
Well, I have been taking the gabapentin for about a week now. It really has helped me. The only problem is if I take it during the day I get really dizzy. Since I am home alone during the day that...
My blood markers are negative for inflammation right now. However I do take Mobic which is an anti-inflammatory. My dr. gave me gabapentin. I took it last night and it took awhile but did give me...
Hi, I haven't posted here in awhile. Yesterday I was diagnosed with Peripheral Neuropathy. My rheumy said it could be part of Lupus but didn't give me anything for it. My primary doctor gave me...
A few months ago I was diagnosed with restless legs and then about a month ago I started having problems with my whole body jerking when I was falling asleep. It got so severe I felt that if it...
Hi Carol, I see you are back in Arizona. I am in Mesa. I found out last year that I have pulmonary hypertension and it is frustrating at times, too. My son's girlfriend has scleroderma and it is...
Thanks, Laura. I am better today. I ended up having chest pains and then throwing up last night. I got a good night sleep and I feel better. I had forgotten to take my Lasix and I think it just put...
I know there are some on here that have Pulmonary Hypertension. I am having a problem today that almost feels like asthma. Whenever I get up and move around I instantly get short of breath and start...
Laura, My mom had Juvenile Diabetes or Type I Diabetes which is considered autoimmune. My sister has Hashimotos Disease which is an autoimmune disease of the thyroid. I have read that if you have an...
I went to Mayo clinic last year and wasn't impressed at all. At first all was good because they ran a lot of tests and did then quickly but when it came down to an actual diagnosis, they hemmed and...
Hi, I normally post in the Lupus boards. Does anyone know of a online support group for people with pulmonary hypertension? Thanks, Mary Ann...
Oh Joy, I'm so sorry you got denied. I'm glad you have a lawyer and will fight. Hang in there. Sending hugs your way. Mary Ann...
I have the butterfly rash although it isn't as bad as it was when I was first diagnosed. I think taking Plaquenil has helped it. I get one when I am flaring or just when I am extra tired. It...
Welcome to the group. I was diagnosed with MCTD in 2005. I have taken Plaquenil and MTX consistently since then. I also have like you extreme fatigue and pain in my joints. I have acid reflux a lot...
Thanks for the ideas. I will try some of them. Also, I have an appointment with my dr. on Tuesday and will discuss this with her also. Mary Ann...
Hi Joy, I called SS and asked them. They were very nice and had them mailed to me the next day. I waited about a month or so before I called. I wanted to give the doctors time to get them turned in....
I think I have the worst insomnia I have ever had. I can't sleep hardly at all. I have tried every over the counter sleep aid. I can't take prescription sleeping pills because I am one of those that...
At least that part is over. When I had my grip tested I had about no grip left in either hand. I drop things a lot. I can't believe he said you can't have Lupus and fibro at the same time. Like you...
Just thought to let you know that when I was done with all the testing with the SSD doctors I called and asked for copies of their notes. It was really interesting to see what they said about me....
Oh, Barbara. I'm so sorry that all this is happening to you. It seems like you can't get a break. I am keeping you in my prayers. Hugs, Mary Ann...
I had blood gases taken one time and was terrified of it. Actually it didn't end up being as bad as I thought it would be. My mom had told me the pain was worse than labor. LOL. But it wasn't. The...
I went to a medical doctor and a psychiatrist. The medical doctor did just like Lynn said. Just general stuff. He had the information I had supplied to SSD and he kind of went over it. He tested my...
Hang in there, Barb. Many prayers and many hugs are coming your way. We are all rootin' for you. Hugs, Mary Ann :turn:...
I am keeping you in my prayers. I hope we hear a good report soon. Hugs, Mary Ann :smile:...
Hang in there Barbara. You are in my thoughts and prayers. I hope you are feeling better soon. Hugs, Mary Ann...
I guess I'll share what just happened to me tonight. I was coming home from the store and had to stop for a light. When I looked up at the street sign I freaked out. Even though I knew I lived...